WeHaveAVoice
By WeHaveAVoice
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Episodes: 116
Description
WeHaveAFace.org Inc. has created "WeHaveAVoice" Radio for the Huntington's and Juvenile Huntington's disease community. It is time for the community to speak out...speak up! We must openly share what all of us in the Huntington's community experience on a daily basis! Removing the stigmas and broadening social awareness and acceptance is paramount!
Visit: www.WeHaveAFace.org/Radio for more information.
Visit: www.WeHaveAFace.org/Radio for more information.
| Episode | Date |
|---|---|
|
Rare Disease Day
|
Feb 13, 2024 |
|
New Guidelines to Revolutionize Care for Huntington's Disease Patients
|
Dec 21, 2023 |
|
Bunny Clark and the 10th Annual Huntington's Heroes Walk
|
May 23, 2023 |
|
Erin Paterson - Huntington's Disease Heroes
|
Apr 21, 2023 |
|
WeHaveAFace! What's next?
|
Mar 16, 2023 |
|
Worthlessness
|
Sep 29, 2022 |
|
Coffee Talk with Kevin and Jen (Chat #7)
|
Jul 01, 2022 |
|
Coffee Talk with Kevin and Jen (Chat #6)
|
Jun 27, 2022 |
|
Coffee Talk with Jen and Kevin (Chat #5)
|
Jun 16, 2022 |
|
Kevin speaks about memories and nurturing relationships
|
Jun 14, 2022 |
|
Coffee Talk with Jen and Kevin (Chat 4)
|
Jun 11, 2022 |
|
Coffee Talk with Jen and Kevin (Chat #3)
|
Jun 02, 2022 |
|
Coffee Talk with Jen and Kevin (Chat #2)
|
May 25, 2022 |
|
Coffee Talk with Jen and Kevin (Chat 1)
|
May 17, 2022 |
|
James Valvano and what's next for WeHaveAFace
|
Mar 22, 2022 |
|
Dr. Herwig Lange and James Valvano discuss why it is necessary to change the diagnostic criteria for Huntington's Disease
|
Nov 25, 2021 |
|
Louise Vetter concerning support for changes to the current diagnostic criteria for Huntington's Disease
|
Nov 23, 2021 |
|
Erin Paterson speaks about having Huntington's Disease and starting a family
|
Nov 08, 2021 |
|
Kevin Jess speaks candidly about the recent death of his wife Sheila
|
Oct 14, 2021 |
|
WeHaveAVoice: HDSA - HD Parity Act with Jennifer Simpson!
|
May 11, 2021 |
|
WeHaveAVoice Radio - HD Warrior, John Howard Poetry!
|
May 07, 2021 |
|
WeHaveAFace PSA - HDSA: HD Parity Act with Jennifer Simpson!
|
May 03, 2021 |
|
Jimmy Pollard - Finding Nana's Smile
|
Nov 30, 2020 |
|
James Valvano: Season 1 of WeHaveAFace TV
|
Oct 18, 2020 |
|
Dr. Finn of the Mayo Clinic: How and when to talk to children about Huntington's disease.
|
Aug 08, 2020 |
|
Dr. Bird of the University of Washington speaks about the HDSA Centers of Excellence
|
Aug 04, 2020 |
|
Grandma has HD and it's okay with Dr. Kelsey Finn
|
Jul 21, 2020 |
|
HD/JHD Facebook Wish List. What's that about?
|
Jun 14, 2020 |
|
Coping with separation anxiety during Covid-19 pandemic
|
Apr 30, 2020 |
|
#WeHaveAFace #WeHaveAVoice - Carol Kennedy (President of WHAF England and Wales) HD3 Training Program and COVID-19 Discussion
|
Apr 29, 2020 |
|
A trip down memory lane with Mary Etta Robertson
|
Apr 23, 2020 |
|
German Dr. Ansgar Klimke: New approach for hydroxychloroquine in aerosol form for COVID-19
|
Apr 14, 2020 |
|
WeHaveAVoice: Discussing the Coronavirus (COVID-19)
|
Mar 20, 2020 |
|
Cherry Chism: When you leave the Roche clinical trial
|
Mar 19, 2020 |
|
Louise Vetter, President and CEO of HDSA: HD Trial Finder
|
Mar 16, 2020 |
|
Dr. Peg Nopoulos: KidsHD/ChANGE-HD
|
Mar 12, 2020 |
|
Jonathan Monkemeyer Rare Disease Day
|
Mar 12, 2020 |
|
James Valvano: New Horizons After 2020
|
Mar 08, 2020 |
|
Jimmy Pollard of CHDI: HD Education on a Global Scale
|
Mar 07, 2020 |
|
Gene Veritas: CHDI Therapeutics Conference
|
Mar 05, 2020 |
|
Karen Marais: HD in South Africa
|
Mar 03, 2020 |
|
Advocating in suicide prevention and other topics with Sarah Warehime and Dr. Herwig Lange
|
Jan 11, 2020 |
|
A caregivers experience with behaviorial issues with Huntington's Disease
|
Dec 29, 2019 |
|
Diamonds on the Water
|
Nov 14, 2019 |
|
One woman's experience with testing for Huntington's Disease
|
Oct 13, 2019 |
|
2019 Convention and Event update
|
Sep 27, 2019 |
|
James Valvano talks with Kevin about his climb in Scotland
|
Aug 28, 2019 |
|
Juvenile Huntington's Disease: A Story of Friendship
|
Aug 08, 2019 |
|
Walk for a Cure
|
Aug 02, 2019 |
|
Episode 104 - Milestones
|
Jun 23, 2019 |
|
WeHaveAFace with special guest James Valvano
|
Apr 29, 2019 |
|
The case for repurposing existing drugs for the fight against Huntington's Disease
|
Apr 26, 2019 |
|
Huntington's Disease Awareness Month (The Port Pub and Bistro)
|
Apr 22, 2019 |
|
WeHaveAVoice Radio Show Updates
|
Mar 24, 2019 |
|
WeHaveAFace News and Events (TEVA Update!)
|
Mar 09, 2019 |
|
Difficulties with HD testing
|
Mar 08, 2019 |
|
James Valvano: Climbing Mountains for Huntington's Disease
|
Mar 02, 2019 |
|
How And When To Talk To Your Children About Huntington’s Disease
|
Mar 02, 2019 |
|
Baby Shaming in the Huntington's Disease Community
|
Feb 22, 2019 |
|
Moving Beyond Body Limits. And The Quickest Way to Wellness
|
Feb 17, 2019 |
|
James Valvano Addresses HD/JHD Community about 2019
|
Feb 15, 2019 |
|
A New Host for 2019: Kevin Jess (VP of WHAF Canada)
|
Jan 21, 2019 |
|
WeHaveAFace International Events Update!
|
Sep 23, 2018 |
|
#WeHaveAVoice: Suicide in Huntington's Disease
|
Aug 22, 2018 |
|
#WeHaveAVoice with Leaha Mattinson!
|
Apr 26, 2018 |
|
#WeHaveAVoice Radio: Poetry Project!
|
Apr 08, 2018 |
|
#WeHaveAFace 🔈#WeHaveAVoice: Event Updates / 🎥 #FilmFestival #Documentary
|
Mar 20, 2018 |
|
#WeHaveAVoice - Join the new poetry project!
|
Feb 22, 2018 |
|
#WeHaveAVoice: WeHaveAFace Canada! LIVE
|
Feb 16, 2018 |
|
#WeHaveAFace Canada! Introducing Dr. Susan Potter!
|
Dec 15, 2017 |
|
#WeHaveAVoice LIVE Update: Ionis-HTTRx - Hope for Huntington's disease?
|
Dec 13, 2017 |
|
Introducing WeHaveAFace Mexico!
|
Nov 28, 2017 |
|
#WeHaveAVoice - Cindy Moore: Listen to Erin Wade's Story
|
Nov 04, 2017 |
|
WeHaveAVoice with Carol Kennedy - HD3 Training Program!
|
Nov 02, 2017 |
|
#WeHaveAVoice Update! Help4HD.org 2017 Symposium
|
Oct 23, 2017 |
|
Huntington's Disease Assistance Fund - Hurricane Irma
|
Sep 10, 2017 |
|
LIVE - WeHaveAVoice
|
Aug 31, 2017 |
|
#WeHaveAFace in the UK and Germany! #ThePurpleRoad
|
Jul 16, 2017 |
|
LIVE: Help4HD - President Katie Jackson Talks About "KEY" Webinar!
|
Jul 05, 2017 |
|
LIVE Show: @KatieJackson Help4HD - 7/5/17
|
Jul 03, 2017 |
|
#WeHaveAVoice - Michael Greene from Greene's Quality Construction of Jacksonville
|
Jun 29, 2017 |
|
#WeHaveAVoice Radio #News #Updates
|
Jun 27, 2017 |
|
WeHaveAFace - Upcoming Events! #HuntingtonsDisease
|
Jun 21, 2017 |
|
#WeHaveAFace 2nd Annual Convention - June 10th @CPOrlandoUniv
|
Jun 05, 2017 |
|
#WeHaveAVoice LIVE UPDATE! #HuntingtonsDisease Awareness Month!
|
May 25, 2017 |
|
#WeHaveAVoice - "Blue and Purple" Poetry Publication!
|
May 11, 2017 |
|
#WeHaveAVoice LIVE Update - @HuntingtonSG
|
May 08, 2017 |
|
#WeHaveAVoice! LIVE with Heather Hare: Huntington Study Group!
|
May 04, 2017 |
|
May is HD/JHD Awareness Month! #WeHaveAFace LIVE Update!
|
May 01, 2017 |
|
HD Care Improvement Project - #HuntingtonsDisease Survey! @HuntingtonSG
|
Apr 28, 2017 |
|
Dr. Herwig Lange wendet sich an unsere Patienten and Familien
|
Apr 27, 2017 |
|
WeHaveAFace Canada! Meet the Team!
|
Apr 20, 2017 |
|
LIVE Update! WeHaveAFace Canada & Publications!
|
Apr 13, 2017 |
|
HSG: Dr. Frank Discusses TEVA's New Drug AUSTEDO - Treatment of Chorea in Huntington's Disease
|
Apr 06, 2017 |
|
LIVE UPDATE! TEVA Pharmaceuticals released HD Drug!
|
Apr 04, 2017 |
|
LIVE Show - Dr. Lange talks about HD Webinar!
|
Mar 30, 2017 |
|
LIVE update from Costa Mesa California
|
Mar 24, 2017 |
|
Update from Sacramento
|
Mar 16, 2017 |
|
WeHaveAVoice - LIVE "Dental Care and HD/JHD"
|
Mar 09, 2017 |
|
Cannabis Oils? Can they help patients with Huntington's and Juvenile Huntington's disease?
|
Feb 10, 2017 |
|
Let’s Talk About Cannabis Oils – Cindy Moore and Traci Pratt!
|
Feb 06, 2017 |
|
Listen to Dr. Herwig Lange: Discussion About CAG!
|
Jan 19, 2017 |
|
WeHaveAVoice: "Behavior with Huntington's and Juvenile Huntington's Disease" with Dr. Herwig Lange from Germany
|
Dec 02, 2016 |
|
LIVE Update - Brockville, Ontario Canada JHD Bowling Tournament on November 11, 2016
|
Oct 20, 2016 |
|
Hurricane Matthew LIVE Update - Saint Cloud, Florida
|
Oct 07, 2016 |
|
LIVE Update! "HD/JHD Community Events!
|
Oct 03, 2016 |
|
"Families torn apart by Huntington's and Juvenile Huntingtn's disease" - LIVE Radio Broadcast!
|
Sep 29, 2016 |
|
"All About CAG" - LIVE with Dr. Herwig Lange from The George Huntington Institute of Germany!
|
Aug 18, 2016 |
|
Brockville, Ontario Canadian JHD Walk! LIVE with Dr. Kyle Fink and Dr. Jan Nolta of UC Davis California!
|
Aug 07, 2016 |
|
HD/JHD Awareness Events! LIVE Update!
|
Jul 27, 2016 |
|
Community Address for John Valvano
|
Jul 20, 2016 |
|
Home Healthcare - Nursing Home Care, and Sexuality in Huntington's Disease.
|
Mar 31, 2016 |
|
Home Healthcare / Nursing Homes, Sexuality and Huntington's Disease
|
Mar 29, 2016 |
|
No Time To Spare! 1st Community Bowling Tournament for Huntington's and Juvenile Huntington's disease!
|
Mar 12, 2016 |
|
Mary Robertson speaks from the heart. Caring for her husband Paul who had Huntington's disease.
|
Mar 11, 2016 |
|
Special Show with Mary Etta Robertson - Love and Care for Huntington's Disease
|
Mar 05, 2016 |