Two Disabled Dudes

By The Dudes

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Category: Self-Improvement

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Subscribers: 17
Reviews: 0
Episodes: 266

Description

The 2DD podcast is about setting sights beyond the challenges in your life and dreaming big, making a plan, and then executing like mad. You are guaranteed an emotional rollercoaster, and practical thoughts that you can apply to your life with this podcast. Hosts Sean and Kyle are both affected by a rare disease called Friedreich’s ataxia (FA). FA affects their balance and coordination, significantly limiting their physical abilities. However both dudes have completed several long distance bike rides including “The World’s Toughest Bike Race” - Race Across America (RAAM). Their RAAM journey is the subject of an award winning documentary called The Ataxian. Kyle rode his trike to the top of the highest paved road in North America and Sean ran with the Olympic Torch. Join us, subscribe, and tell a friend!

Episode Date
259 - If Sean & Kyle Won The Election
Nov 11, 2024
258 - Navigating Setbacks: 4 Tips for Gaining Momentum
Oct 14, 2024
257 - Journey to the World's Highest Road, Part 2
Sep 09, 2024
256 - Journey to the World’s Highest Road, Part 1
Aug 05, 2024
255 - Season Finale - We’re Riding the World’s Highest Road
May 27, 2024
254 - From Dad to Advocate to CEO: John Crowley's Continued Commitment
May 20, 2024
253 - Uplifting Athletes: Harnessing the Power of Sport for Rare Diseases
May 13, 2024
252 - NFL Plans Crushed, His Response Changes Lives
May 06, 2024
251 - From Canes to Canines: Linda's Path to Mobility
Apr 29, 2024
250 - Thriving with Duchenne - Rare Disease Day with Jett Foundation
Apr 22, 2024
249 - 20 Years in the Making: REATA's Story of Skyclarys
Apr 15, 2024
248 - Everyone Holds a Piece w/ FARA CEO, Jen Farmer
Apr 08, 2024
247 - Tenacity and the Power of Persistence
Apr 01, 2024
246 - Empowering Accessibility, One Review at a Time
Mar 25, 2024
245 - Settle or Soar? Embracing Uncertainty
Mar 18, 2024
244 - Change & Consistency with Progressive Disease
Mar 11, 2024
243 - EveryCure and the Power of Collaboration w/ Dr. David Fajgenbaum
Mar 04, 2024
242 - Dave Lynch: 27 Years, 700+ Patients, and the First Treatment
Feb 26, 2024
241 - Feeling Helpless? Here Are 4 Ways To Help
Feb 19, 2024
240 - Adapting to Life's Curveballs
Feb 12, 2024
239 - Season Premier - Are You a Doer or a Talker?
Feb 05, 2024
238 - Season Finale - The Dynamics of Friendship
Nov 27, 2023
237 - The Vital Role of Caregivers in Rare Disease Advocacy
Nov 20, 2023
236 - A Mom's Perspective on Devastation and Gratitude
Nov 13, 2023
235 - Addressing the Epidemic of Wheelchair Damage by Airlines
Nov 06, 2023
234 - World Duchenne Awareness Day - Jett Foundation
Nov 01, 2023
233 - Should Disability Heighten Our Sense of Responsibility?
Oct 30, 2023
232 - Can Rare Disease Create Heroes?
Oct 23, 2023
231 - Speak Up, Stand Out: Silence is Not Advocacy
Oct 16, 2023
230 - Navigating Mental Illness: Parent Stories
Oct 09, 2023
229 - Exercise and Motivation: Challenges of Disability
Oct 02, 2023
228 - Podcasting Insights and Reflections
Sep 25, 2023
227 - Pushing Boundaries: A Blind Athlete's Story
Sep 18, 2023
226 - Navigating Disability & Long-term Relationships
Sep 11, 2023
225 - From Preterm to Pediatrician: Tyler's Triumph with CP
Sep 04, 2023
224 - The Power of the Patient Voice - BIO International
Aug 28, 2023
223 - Attitudes Can Change - Let's Talk Debra
Aug 21, 2023
222 - Is Technology Good or Bad? Yes.
Aug 14, 2023
221 -Disability & Fun Can Coexist
Aug 07, 2023
220 - Season Finale - How Much is Too Much?
May 29, 2023
219 - Physical Therapy Goals with Dr. Gretchen Hawley
May 22, 2023
218 - Accessibility: Inconvenient or Impossible?
May 15, 2023
217 - Are Disabled Students Forgotten On University Campuses?
May 08, 2023
216 - The Emotional Response To Research
May 01, 2023
215 - Birthday Parties Can Be Tough with Guest Host: Effie Parks
Apr 24, 2023
214 - Inspiration Porn - Are We Part of the Problem?
Apr 17, 2023
213 - Why is Government so HARD?
Apr 10, 2023
212 - Wheelchairs: If You Help, This is For You
Apr 03, 2023
211 - Thriving with Duchenne, RDD 2023
Mar 27, 2023
210 - Death and Sex - Buckle Up!
Mar 20, 2023
209 - How A Mom Launched The First Drug Approval in FA
Mar 13, 2023
208 - Is There a Wrong Way?
Mar 06, 2023
207 - Asking For Help: Pride vs. Practicality
Feb 27, 2023
206 - Why Authenticity Matters at Home & Work
Feb 20, 2023
205 - Finally, A Dating App For People With Disability
Feb 13, 2023
204 - What If Kindness Isn't The Answer?
Feb 06, 2023
203 - Reason vs Excuse: It's Up To You
Nov 28, 2022
202 - Addressing Independence and Accessibility with Rare Disease
Nov 21, 2022
201 - How Does Positivity Become Toxic?
Nov 14, 2022
200 - State of the Podcast and A Few Favorite Moments
Nov 07, 2022
199 - RAVE: A Principle Everyone Ought to Consider
Oct 31, 2022
198 - What's Your CanDo Story?
Oct 24, 2022
197 - Looking for the Pause Button on Friedreich's Ataxia
Oct 17, 2022
196 - Two Disabled Slackers
Oct 10, 2022
195 - Leveraging Crypto for Rare Disease - Vibe Bio CEO, Alok Tayi
Oct 03, 2022
194 - Taking It Personally May Hold You Back
Sep 26, 2022
193 - Accessibility Matters, Air Travel Is Not Exempt
Sep 18, 2022
192 - Life's Short, Live With Intention
Sep 12, 2022
191 - A Mother Who Never Stops
Sep 05, 2022
190 - Our Reactions Determine Our Outcomes
Aug 29, 2022
189 - LIVE at Chan Zuckerberg Initiative Rare As One
Aug 22, 2022
188 - Dealing With Disability Among Friends
Aug 15, 2022
187 - Life Lessons From the Bike Trail
Aug 07, 2022
S8 - Catching Up with The Dudes
Aug 01, 2022
185 - Season Finale - Nothing Stays the Same
May 30, 2022
184 - Thriving With Duchenne - Jett Foundation
May 22, 2022
183 - Doing The Right Thing with James Mackay, CEO Aristea Tx
May 16, 2022
182 - Comparing Ted Lasso to Reality with Heidi Behr, LCSW
May 09, 2022
181 - Every Person Matters with Tom Hamilton
May 02, 2022
180 - The Not So Dark Side with Amy Grover
Apr 25, 2022
179 - Keep Your Eye On The Ball
Apr 18, 2022
178 - Man Turning Into Stone - Joe Sooch
Apr 11, 2022
177 - The only thing to fear is...
Apr 03, 2022
176 - Rare Disease Symptoms - The Devil You Know
Mar 28, 2022
175 - Making Noise About Hemophilia
Mar 21, 2022
174 - The Dudes with Squirmy and Grubs
Mar 13, 2022
173 - Don't be Weird - Ennis Rook Bashe
Mar 06, 2022
172 - Rare Disease is Complicated but There's Reason for Hope
Feb 27, 2022
171 - What if Everyone Is Disabled?
Feb 21, 2022
170 - What's Your Strategy?
Feb 14, 2022
169 - Season Finale - NO REGERTS!
Dec 06, 2021
168 - 2DD Forum: CureDuchenne FUTURES Conference 2021
Nov 26, 2021
167 - Peace of Mind with Mobility Roadside Assistance
Nov 21, 2021
166 - Ultra Rare Drugs at No Cost to the Patient - Stan Crooke
Nov 15, 2021
165 - Coaching for Rare and Chronic Conditions - Denise Archilla
Nov 08, 2021
164 - Mental Health: Why Talking About the Tough Stuff Takes the Weight off
Oct 31, 2021
163 - Actor, Producer, Person - Patrick James Lynch
Oct 25, 2021
162 - Superheroes With Once Upon a Gene
Oct 18, 2021
161 - Men's Mental Health in Rare Disease With David Ross
Oct 10, 2021
160 - Money Talks With the Dudes
Oct 04, 2021
159 - Patient Pioneers in Gene Therapy with AVROBIO
Sep 27, 2021
158 - 2DD Forum With The Marfan Foundation
Sep 20, 2021
157 - Letters to the Younger 2DDs
Sep 13, 2021
156 - Using Technology to Improve Accessibility
Sep 06, 2021
155 - How We Describe the Challenges of Disability
Aug 30, 2021
154 - SMA Awareness with Nick Sinagra
Aug 22, 2021
153 - NTSAD Annual Family Conference
Aug 16, 2021
152 - How Do You Use Your Influence?
Aug 09, 2021
151 - Season Premier: Pandemic Observations
Aug 01, 2021
150 - Drugs, Turning 40 & The Future
May 31, 2021
149 - An Elvis Presley Tribute Artist with Autism
May 24, 2021
148 - Why Sean Hates His Gym
May 17, 2021
147 - DD pt5: My view: Patients Get Medicine at Lowest Cost Possible - Tim Walbert
May 10, 2021
146 - DD pt4: Why Sean Baumstark Is Banned From Clinical Trials
May 03, 2021
145 - DD pt3: Pre-clinical & Tacos
Apr 26, 2021
144 - DD pt2: Do Good and...with John Crowley
Apr 19, 2021
143 - DD pt1: Half a BILLION Dollars!?
Apr 12, 2021
142 - Rare Disease in India
Apr 04, 2021
141 - Rude or Cooperative?
Mar 29, 2021
140 - A Sister's Perspective on Bullying
Mar 20, 2021
139 - Where The Hell Are The Instructions?
Mar 14, 2021
138 - We Only Have One Life to Live
Mar 08, 2021
137 - Rare Disease Day Special with Psychologist Dr. Al Freedman
Feb 28, 2021
136 - When It Hits The Fan - Part 1
Feb 22, 2021
136 - When it Hits The Fan - Part 2
Feb 22, 2021
135 - Goals Don't Accomplish Themselves
Feb 15, 2021
134 - Our Wants vs. Our Don't Wants
Feb 08, 2021
133 - Season 5 Premiere - What do You Want out of Life?
Feb 01, 2021
132 - 2DD Forum with the XLH Network
Jan 04, 2021
131 - 2DD Forum at Ultragenyx Rare Family Day
Dec 14, 2020
130 - Season 4 Finale - More 2DD Grievances
Nov 30, 2020
She Created What She Needed - Effie Parks
Nov 23, 2020
128 - Addressing Rare Disease Mental Health - Psychologist Al Freedman
Nov 16, 2020
127 - Does Disability Force Premature Decisions?
Nov 09, 2020
126 - I'm Fine, Thanks - Chris Doveton
Oct 30, 2020
125 - "I know you're drunk, buddy"
Oct 26, 2020
124 - Walk in My Shoes - A Journey With Cystinosis
Oct 19, 2020
123 - Why Do We Keep Our True Selves Hidden?
Oct 12, 2020
122 - Red Tape is Easier With Help
Oct 05, 2020
121 - How to Join the rideATAXIA Global Challenge
Sep 28, 2020
120 - What is Alport Syndrome? - Kevin Schnurr
Sep 21, 2020
119 - Are You Messy Like Kyle or Neat Like Sean?
Sep 14, 2020
118 - How We Can Serve the Community Through Google's Project Euphonia - Bob MacDonald
Sep 07, 2020
117 - What does Team Gleason have in Common with Google?
Aug 31, 2020
Bonus Conversation With Friends!
Aug 26, 2020
116 - What would you change about yourself if you could?
Aug 24, 2020
115 - Leading the VEDS Movement - Katie Wright
Aug 17, 2020
114 - Don't Judge a Dude by his Wheelchair
Aug 10, 2020
113 - How do we Define Each Other?
Aug 03, 2020
112 - Season Finale - Different Reactions to Coronavirus
May 25, 2020
111 - Copiing in Times of Uncertainty with Team Amicus
May 18, 2020
110 - How Rare Diseases Impact Carriers - Taylor Kane
May 11, 2020
109 - Hawk's Eye View on Duchenne MD - Hawken Miller
May 04, 2020
108 - #QuarantineLife
Apr 27, 2020
107 - Patient focused Drug Development - James Valentine
Apr 20, 2020
106 - No Arms, no Legs, no Problem - Gabe Adams
Apr 13, 2020
105 - The Dudes Vent
Apr 06, 2020
104 - His Brain Injury Created a New Mindset
Mar 30, 2020
103 - Giving Back After Spinal Cord Injury
Mar 22, 2020
102 - Four Tips for Making Decisions
Mar 15, 2020
101 - Funding Research One Cookie at a Time
Mar 07, 2020
100 - Jeremy Cowart
Mar 01, 2020
099 - The Scarcity Mindset
Feb 24, 2020
098 - The Pharma/Patient Relationship - Opportunities to Improve - Andra Stratton
Feb 16, 2020
097 - A life of Ehlers Danlos Advocacy - Lara Bloom
Feb 09, 2020
096 - Owning up to your shortcomings
Feb 03, 2020
095 - Season 2 Finale - Are you Determined or Stubborn?
Nov 25, 2019
094 - 2DD Update on 2019 Goals
Nov 18, 2019
093 - Online Dating for People With a Disability
Nov 11, 2019
092 - Why Humor is Essential with Dr. David Fajgenbaum
Nov 03, 2019
091 - Chasing Our Cure with Dr. David Fajgenbaum
Oct 28, 2019
090 - LIVE at the 2019 Global Genes RARE Patient Advocacy Summit
Oct 21, 2019
089 - Creating Community for Young Adults with Our Odyssey
Oct 11, 2019
088
Oct 07, 2019
087 - Conquering White Mountain
Sep 30, 2019
086 - How to Gain Control Over Life - Kipp Wesslen
Sep 22, 2019
085 - Beyond the Finish With the Pease Brothers
Sep 15, 2019
084 - How to Stop Limiting Yourself
Sep 09, 2019
083 - Reasons to Push Your Limits
Sep 01, 2019
082 - What are you proud of? - Muffy Ritz
Aug 06, 2019
081 - Be Yourself - LIVE at Amicus Therapeutics
Jul 01, 2019
080 - Accountability is the key to getting stuff done (GSD)
Jun 10, 2019
079 - Cindy Kolbe Interview
Jun 03, 2019
078 - South Dakota
May 26, 2019
077 - Thriving Blind with Kristin Smedley
May 20, 2019
076 - Our Moms
May 12, 2019
075 - The Relationship Between the Patient and the Scientist
May 06, 2019
074 - Jeff Bell Part 2 - Adversity to Advocacy
Apr 29, 2019
073 - Jeff Bell Part 1 - Adversity 2 Advocacy
Apr 21, 2019
072 - Reasons Versus Excuses
Apr 15, 2019
071 - Photos from the first part of 2019
Apr 08, 2019
070 - Rob Long
Apr 01, 2019
069 - Things We Like
Mar 24, 2019
James Miller | Lifeology
Mar 18, 2019
067 - He's an Athlete No Matter the Circumstance - Glenn Hartrick
Mar 11, 2019
066 - Death March for Ataxia with Mike De Rosa
Mar 04, 2019
064 Official - Hasan Banks
Feb 20, 2019
065 - Can of Worms
Feb 17, 2019
Grievances with the Dudes
Feb 11, 2019
062 - Only You Have the Power to Destroy Your Life - Gabriel Cordell
Feb 04, 2019
061 - Just Do It!
Jan 28, 2019
060 - Mind Games and Disability
Jan 21, 2019
Two Dudes' Goals for 2019
Jan 13, 2019
058 - 2018 Year Review
Dec 31, 2018
057 - The Nomadic Dreamer
Dec 17, 2018
056b - Australia Researcher Q&A
Dec 02, 2018
056a - AUS Intro Story
Dec 02, 2018
Exploring Life Transitions with Kyle and Sean
Nov 19, 2018
054 - Travis Flores
Nov 02, 2018
053 - Nutrition with Shana and Donna
Oct 18, 2018
052 - Surviving Sepsis Unshattered with Carol Decker
Oct 05, 2018
051 - PR with Heather Burgett
Sep 22, 2018
050.Kyle - Sean Interviews Kyle
Sep 09, 2018
050.Sean - Kyle Interviews Sean
Sep 09, 2018
049 - Little Levi & Miracle Flights
Aug 26, 2018
048 - Rare Disease Advocate Luke Rosen, KIF1A.org
Aug 13, 2018
047 - Barry Rice, Cycle Ataxia
Jul 29, 2018
046 - A conversation With the Dudes
Jul 16, 2018
045 - sick Chick Shira Strongin
Jul 01, 2018
044 - Francisco Sanchez - A Doctor With SCI Paying it Forward
Jun 14, 2018
043 - Nic Noviki - Easterseals Disability Film Challenge
Jun 04, 2018
042 - On Being Savage with Les Ballard
May 21, 2018
041 - Spring Cleaning of the Mind
May 07, 2018
040 - Breaking the Paralyzed Paradigm, with Arash Bayatmakou
Apr 23, 2018
How to Ward Off Decrepitude
Apr 09, 2018
038 - Ilana Jacqueline
Mar 21, 2018
037 - RDW Panel For The Ataxian
Mar 12, 2018
036 Patient engagement live at Reata
Feb 21, 2018
LIVE at Reata Pharmaceuticals
Feb 06, 2018
Katie Stevens President, Dyskeratosis Congenita Outreach (DCO)
Jan 28, 2018
033 - Steps to Bust Your Funk
Jan 15, 2018
032 Behind The Scenes
Jan 01, 2018
031 - Anniversary Episode! Listener Appreciation
Dec 18, 2017
030 - 000 Rerun
Dec 04, 2017
029 - Wonderful and Different with Paul Avery
Nov 19, 2017
028 2DD Challenge Check-in
Nov 14, 2017
Episode 027
Nov 06, 2017
026 - Self Discipline
Oct 23, 2017
025 - Leadership with Drew Dudley
Oct 07, 2017
024 - The Parent Perspective with Tom Hamilton
Sep 19, 2017
023 Patrick Lawrence & CAF
Sep 11, 2017
023 - Challenged Athletes Foundation
Sep 07, 2017
023 - The Psychology of Disability with Dr. Dan Gotlieb
Aug 31, 2017
021 - rideATAXIA Europe, Le Peloton de l'Espoir
Aug 07, 2017
020 - LIVE at Horizon Pharma
Jul 22, 2017
019 - Dr. David Fajgenbaum - Conquering Castleman Disease
Jul 14, 2017
018 - Breaking Your Chains w/ Rudy Garcia-Tolson
Jul 03, 2017
017 -Roger Crawford
Jun 16, 2017
KHTK Interview
Jun 09, 2017
016 - Nutrition with Dr. Liz Applegate
May 31, 2017
Race Across America - Team FARA
May 22, 2017
RAAM Crew Chief Mike Bryant (Kyle's Dad)
May 08, 2017
013 - Kyle & Sean's #1 Advice
Apr 24, 2017
012 - Matt Fritsch - The Spinal Cord Injury (SCI) Community
Apr 10, 2017
011 - Ron Bartek Part 2 - Collaboration: We're All In This Together
Mar 27, 2017
010 - Adaptive Equipment Grants - The Ataxian Athlete Initiative
Mar 13, 2017
009 - Ron Bartek, Co-Founder and President, FARA
Feb 26, 2017
008 - Paul Melmeyer of the National Organization for Rare Disorders
Feb 22, 2017
007 - Max Bronstein
Feb 20, 2017
006 - Nicole Boice
Feb 15, 2017
005 - Focus on Rare Disease Day with Special Guests: Nicole Boice, Max Bronstein, and Paul Melmeyer
Feb 13, 2017
004 – Travel Gone Wild – How to conquer apprehension during travel with a disability.
Jan 30, 2017
003 - Travel and Mobility
Jan 16, 2017
002 - Self Image
Jan 02, 2017
001 - Life Is About How We React
Dec 18, 2016
000 - Welcome to the Two Disabled Dudes Podcast
Dec 07, 2016