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Episode | Date |
---|---|
259 - If Sean & Kyle Won The Election
|
Nov 11, 2024 |
258 - Navigating Setbacks: 4 Tips for Gaining Momentum
|
Oct 14, 2024 |
257 - Journey to the World's Highest Road, Part 2
|
Sep 09, 2024 |
256 - Journey to the World’s Highest Road, Part 1
|
Aug 05, 2024 |
255 - Season Finale - We’re Riding the World’s Highest Road
|
May 27, 2024 |
254 - From Dad to Advocate to CEO: John Crowley's Continued Commitment
|
May 20, 2024 |
253 - Uplifting Athletes: Harnessing the Power of Sport for Rare Diseases
|
May 13, 2024 |
252 - NFL Plans Crushed, His Response Changes Lives
|
May 06, 2024 |
251 - From Canes to Canines: Linda's Path to Mobility
|
Apr 29, 2024 |
250 - Thriving with Duchenne - Rare Disease Day with Jett Foundation
|
Apr 22, 2024 |
249 - 20 Years in the Making: REATA's Story of Skyclarys
|
Apr 15, 2024 |
248 - Everyone Holds a Piece w/ FARA CEO, Jen Farmer
|
Apr 08, 2024 |
247 - Tenacity and the Power of Persistence
|
Apr 01, 2024 |
246 - Empowering Accessibility, One Review at a Time
|
Mar 25, 2024 |
245 - Settle or Soar? Embracing Uncertainty
|
Mar 18, 2024 |
244 - Change & Consistency with Progressive Disease
|
Mar 11, 2024 |
243 - EveryCure and the Power of Collaboration w/ Dr. David Fajgenbaum
|
Mar 04, 2024 |
242 - Dave Lynch: 27 Years, 700+ Patients, and the First Treatment
|
Feb 26, 2024 |
241 - Feeling Helpless? Here Are 4 Ways To Help
|
Feb 19, 2024 |
240 - Adapting to Life's Curveballs
|
Feb 12, 2024 |
239 - Season Premier - Are You a Doer or a Talker?
|
Feb 05, 2024 |
238 - Season Finale - The Dynamics of Friendship
|
Nov 27, 2023 |
237 - The Vital Role of Caregivers in Rare Disease Advocacy
|
Nov 20, 2023 |
236 - A Mom's Perspective on Devastation and Gratitude
|
Nov 13, 2023 |
235 - Addressing the Epidemic of Wheelchair Damage by Airlines
|
Nov 06, 2023 |
234 - World Duchenne Awareness Day - Jett Foundation
|
Nov 01, 2023 |
233 - Should Disability Heighten Our Sense of Responsibility?
|
Oct 30, 2023 |
232 - Can Rare Disease Create Heroes?
|
Oct 23, 2023 |
231 - Speak Up, Stand Out: Silence is Not Advocacy
|
Oct 16, 2023 |
230 - Navigating Mental Illness: Parent Stories
|
Oct 09, 2023 |
229 - Exercise and Motivation: Challenges of Disability
|
Oct 02, 2023 |
228 - Podcasting Insights and Reflections
|
Sep 25, 2023 |
227 - Pushing Boundaries: A Blind Athlete's Story
|
Sep 18, 2023 |
226 - Navigating Disability & Long-term Relationships
|
Sep 11, 2023 |
225 - From Preterm to Pediatrician: Tyler's Triumph with CP
|
Sep 04, 2023 |
224 - The Power of the Patient Voice - BIO International
|
Aug 28, 2023 |
223 - Attitudes Can Change - Let's Talk Debra
|
Aug 21, 2023 |
222 - Is Technology Good or Bad? Yes.
|
Aug 14, 2023 |
221 -Disability & Fun Can Coexist
|
Aug 07, 2023 |
220 - Season Finale - How Much is Too Much?
|
May 29, 2023 |
219 - Physical Therapy Goals with Dr. Gretchen Hawley
|
May 22, 2023 |
218 - Accessibility: Inconvenient or Impossible?
|
May 15, 2023 |
217 - Are Disabled Students Forgotten On University Campuses?
|
May 08, 2023 |
216 - The Emotional Response To Research
|
May 01, 2023 |
215 - Birthday Parties Can Be Tough with Guest Host: Effie Parks
|
Apr 24, 2023 |
214 - Inspiration Porn - Are We Part of the Problem?
|
Apr 17, 2023 |
213 - Why is Government so HARD?
|
Apr 10, 2023 |
212 - Wheelchairs: If You Help, This is For You
|
Apr 03, 2023 |
211 - Thriving with Duchenne, RDD 2023
|
Mar 27, 2023 |
210 - Death and Sex - Buckle Up!
|
Mar 20, 2023 |
209 - How A Mom Launched The First Drug Approval in FA
|
Mar 13, 2023 |
208 - Is There a Wrong Way?
|
Mar 06, 2023 |
207 - Asking For Help: Pride vs. Practicality
|
Feb 27, 2023 |
206 - Why Authenticity Matters at Home & Work
|
Feb 20, 2023 |
205 - Finally, A Dating App For People With Disability
|
Feb 13, 2023 |
204 - What If Kindness Isn't The Answer?
|
Feb 06, 2023 |
203 - Reason vs Excuse: It's Up To You
|
Nov 28, 2022 |
202 - Addressing Independence and Accessibility with Rare Disease
|
Nov 21, 2022 |
201 - How Does Positivity Become Toxic?
|
Nov 14, 2022 |
200 - State of the Podcast and A Few Favorite Moments
|
Nov 07, 2022 |
199 - RAVE: A Principle Everyone Ought to Consider
|
Oct 31, 2022 |
198 - What's Your CanDo Story?
|
Oct 24, 2022 |
197 - Looking for the Pause Button on Friedreich's Ataxia
|
Oct 17, 2022 |
196 - Two Disabled Slackers
|
Oct 10, 2022 |
195 - Leveraging Crypto for Rare Disease - Vibe Bio CEO, Alok Tayi
|
Oct 03, 2022 |
194 - Taking It Personally May Hold You Back
|
Sep 26, 2022 |
193 - Accessibility Matters, Air Travel Is Not Exempt
|
Sep 18, 2022 |
192 - Life's Short, Live With Intention
|
Sep 12, 2022 |
191 - A Mother Who Never Stops
|
Sep 05, 2022 |
190 - Our Reactions Determine Our Outcomes
|
Aug 29, 2022 |
189 - LIVE at Chan Zuckerberg Initiative Rare As One
|
Aug 22, 2022 |
188 - Dealing With Disability Among Friends
|
Aug 15, 2022 |
187 - Life Lessons From the Bike Trail
|
Aug 07, 2022 |
S8 - Catching Up with The Dudes
|
Aug 01, 2022 |
185 - Season Finale - Nothing Stays the Same
|
May 30, 2022 |
184 - Thriving With Duchenne - Jett Foundation
|
May 22, 2022 |
183 - Doing The Right Thing with James Mackay, CEO Aristea Tx
|
May 16, 2022 |
182 - Comparing Ted Lasso to Reality with Heidi Behr, LCSW
|
May 09, 2022 |
181 - Every Person Matters with Tom Hamilton
|
May 02, 2022 |
180 - The Not So Dark Side with Amy Grover
|
Apr 25, 2022 |
179 - Keep Your Eye On The Ball
|
Apr 18, 2022 |
178 - Man Turning Into Stone - Joe Sooch
|
Apr 11, 2022 |
177 - The only thing to fear is...
|
Apr 03, 2022 |
176 - Rare Disease Symptoms - The Devil You Know
|
Mar 28, 2022 |
175 - Making Noise About Hemophilia
|
Mar 21, 2022 |
174 - The Dudes with Squirmy and Grubs
|
Mar 13, 2022 |
173 - Don't be Weird - Ennis Rook Bashe
|
Mar 06, 2022 |
172 - Rare Disease is Complicated but There's Reason for Hope
|
Feb 27, 2022 |
171 - What if Everyone Is Disabled?
|
Feb 21, 2022 |
170 - What's Your Strategy?
|
Feb 14, 2022 |
169 - Season Finale - NO REGERTS!
|
Dec 06, 2021 |
168 - 2DD Forum: CureDuchenne FUTURES Conference 2021
|
Nov 26, 2021 |
167 - Peace of Mind with Mobility Roadside Assistance
|
Nov 21, 2021 |
166 - Ultra Rare Drugs at No Cost to the Patient - Stan Crooke
|
Nov 15, 2021 |
165 - Coaching for Rare and Chronic Conditions - Denise Archilla
|
Nov 08, 2021 |
164 - Mental Health: Why Talking About the Tough Stuff Takes the Weight off
|
Oct 31, 2021 |
163 - Actor, Producer, Person - Patrick James Lynch
|
Oct 25, 2021 |
162 - Superheroes With Once Upon a Gene
|
Oct 18, 2021 |
161 - Men's Mental Health in Rare Disease With David Ross
|
Oct 10, 2021 |
160 - Money Talks With the Dudes
|
Oct 04, 2021 |
159 - Patient Pioneers in Gene Therapy with AVROBIO
|
Sep 27, 2021 |
158 - 2DD Forum With The Marfan Foundation
|
Sep 20, 2021 |
157 - Letters to the Younger 2DDs
|
Sep 13, 2021 |
156 - Using Technology to Improve Accessibility
|
Sep 06, 2021 |
155 - How We Describe the Challenges of Disability
|
Aug 30, 2021 |
154 - SMA Awareness with Nick Sinagra
|
Aug 22, 2021 |
153 - NTSAD Annual Family Conference
|
Aug 16, 2021 |
152 - How Do You Use Your Influence?
|
Aug 09, 2021 |
151 - Season Premier: Pandemic Observations
|
Aug 01, 2021 |
150 - Drugs, Turning 40 & The Future
|
May 31, 2021 |
149 - An Elvis Presley Tribute Artist with Autism
|
May 24, 2021 |
148 - Why Sean Hates His Gym
|
May 17, 2021 |
147 - DD pt5: My view: Patients Get Medicine at Lowest Cost Possible - Tim Walbert
|
May 10, 2021 |
146 - DD pt4: Why Sean Baumstark Is Banned From Clinical Trials
|
May 03, 2021 |
145 - DD pt3: Pre-clinical & Tacos
|
Apr 26, 2021 |
144 - DD pt2: Do Good and...with John Crowley
|
Apr 19, 2021 |
143 - DD pt1: Half a BILLION Dollars!?
|
Apr 12, 2021 |
142 - Rare Disease in India
|
Apr 04, 2021 |
141 - Rude or Cooperative?
|
Mar 29, 2021 |
140 - A Sister's Perspective on Bullying
|
Mar 20, 2021 |
139 - Where The Hell Are The Instructions?
|
Mar 14, 2021 |
138 - We Only Have One Life to Live
|
Mar 08, 2021 |
137 - Rare Disease Day Special with Psychologist Dr. Al Freedman
|
Feb 28, 2021 |
136 - When It Hits The Fan - Part 1
|
Feb 22, 2021 |
136 - When it Hits The Fan - Part 2
|
Feb 22, 2021 |
135 - Goals Don't Accomplish Themselves
|
Feb 15, 2021 |
134 - Our Wants vs. Our Don't Wants
|
Feb 08, 2021 |
133 - Season 5 Premiere - What do You Want out of Life?
|
Feb 01, 2021 |
132 - 2DD Forum with the XLH Network
|
Jan 04, 2021 |
131 - 2DD Forum at Ultragenyx Rare Family Day
|
Dec 14, 2020 |
130 - Season 4 Finale - More 2DD Grievances
|
Nov 30, 2020 |
She Created What She Needed - Effie Parks
|
Nov 23, 2020 |
128 - Addressing Rare Disease Mental Health - Psychologist Al Freedman
|
Nov 16, 2020 |
127 - Does Disability Force Premature Decisions?
|
Nov 09, 2020 |
126 - I'm Fine, Thanks - Chris Doveton
|
Oct 30, 2020 |
125 - "I know you're drunk, buddy"
|
Oct 26, 2020 |
124 - Walk in My Shoes - A Journey With Cystinosis
|
Oct 19, 2020 |
123 - Why Do We Keep Our True Selves Hidden?
|
Oct 12, 2020 |
122 - Red Tape is Easier With Help
|
Oct 05, 2020 |
121 - How to Join the rideATAXIA Global Challenge
|
Sep 28, 2020 |
120 - What is Alport Syndrome? - Kevin Schnurr
|
Sep 21, 2020 |
119 - Are You Messy Like Kyle or Neat Like Sean?
|
Sep 14, 2020 |
118 - How We Can Serve the Community Through Google's Project Euphonia - Bob MacDonald
|
Sep 07, 2020 |
117 - What does Team Gleason have in Common with Google?
|
Aug 31, 2020 |
Bonus Conversation With Friends!
|
Aug 26, 2020 |
116 - What would you change about yourself if you could?
|
Aug 24, 2020 |
115 - Leading the VEDS Movement - Katie Wright
|
Aug 17, 2020 |
114 - Don't Judge a Dude by his Wheelchair
|
Aug 10, 2020 |
113 - How do we Define Each Other?
|
Aug 03, 2020 |
112 - Season Finale - Different Reactions to Coronavirus
|
May 25, 2020 |
111 - Copiing in Times of Uncertainty with Team Amicus
|
May 18, 2020 |
110 - How Rare Diseases Impact Carriers - Taylor Kane
|
May 11, 2020 |
109 - Hawk's Eye View on Duchenne MD - Hawken Miller
|
May 04, 2020 |
108 - #QuarantineLife
|
Apr 27, 2020 |
107 - Patient focused Drug Development - James Valentine
|
Apr 20, 2020 |
106 - No Arms, no Legs, no Problem - Gabe Adams
|
Apr 13, 2020 |
105 - The Dudes Vent
|
Apr 06, 2020 |
104 - His Brain Injury Created a New Mindset
|
Mar 30, 2020 |
103 - Giving Back After Spinal Cord Injury
|
Mar 22, 2020 |
102 - Four Tips for Making Decisions
|
Mar 15, 2020 |
101 - Funding Research One Cookie at a Time
|
Mar 07, 2020 |
100 - Jeremy Cowart
|
Mar 01, 2020 |
099 - The Scarcity Mindset
|
Feb 24, 2020 |
098 - The Pharma/Patient Relationship - Opportunities to Improve - Andra Stratton
|
Feb 16, 2020 |
097 - A life of Ehlers Danlos Advocacy - Lara Bloom
|
Feb 09, 2020 |
096 - Owning up to your shortcomings
|
Feb 03, 2020 |
095 - Season 2 Finale - Are you Determined or Stubborn?
|
Nov 25, 2019 |
094 - 2DD Update on 2019 Goals
|
Nov 18, 2019 |
093 - Online Dating for People With a Disability
|
Nov 11, 2019 |
092 - Why Humor is Essential with Dr. David Fajgenbaum
|
Nov 03, 2019 |
091 - Chasing Our Cure with Dr. David Fajgenbaum
|
Oct 28, 2019 |
090 - LIVE at the 2019 Global Genes RARE Patient Advocacy Summit
|
Oct 21, 2019 |
089 - Creating Community for Young Adults with Our Odyssey
|
Oct 11, 2019 |
088
|
Oct 07, 2019 |
087 - Conquering White Mountain
|
Sep 30, 2019 |
086 - How to Gain Control Over Life - Kipp Wesslen
|
Sep 22, 2019 |
085 - Beyond the Finish With the Pease Brothers
|
Sep 15, 2019 |
084 - How to Stop Limiting Yourself
|
Sep 09, 2019 |
083 - Reasons to Push Your Limits
|
Sep 01, 2019 |
082 - What are you proud of? - Muffy Ritz
|
Aug 06, 2019 |
081 - Be Yourself - LIVE at Amicus Therapeutics
|
Jul 01, 2019 |
080 - Accountability is the key to getting stuff done (GSD)
|
Jun 10, 2019 |
079 - Cindy Kolbe Interview
|
Jun 03, 2019 |
078 - South Dakota
|
May 26, 2019 |
077 - Thriving Blind with Kristin Smedley
|
May 20, 2019 |
076 - Our Moms
|
May 12, 2019 |
075 - The Relationship Between the Patient and the Scientist
|
May 06, 2019 |
074 - Jeff Bell Part 2 - Adversity to Advocacy
|
Apr 29, 2019 |
073 - Jeff Bell Part 1 - Adversity 2 Advocacy
|
Apr 21, 2019 |
072 - Reasons Versus Excuses
|
Apr 15, 2019 |
071 - Photos from the first part of 2019
|
Apr 08, 2019 |
070 - Rob Long
|
Apr 01, 2019 |
069 - Things We Like
|
Mar 24, 2019 |
James Miller | Lifeology
|
Mar 18, 2019 |
067 - He's an Athlete No Matter the Circumstance - Glenn Hartrick
|
Mar 11, 2019 |
066 - Death March for Ataxia with Mike De Rosa
|
Mar 04, 2019 |
064 Official - Hasan Banks
|
Feb 20, 2019 |
065 - Can of Worms
|
Feb 17, 2019 |
Grievances with the Dudes
|
Feb 11, 2019 |
062 - Only You Have the Power to Destroy Your Life - Gabriel Cordell
|
Feb 04, 2019 |
061 - Just Do It!
|
Jan 28, 2019 |
060 - Mind Games and Disability
|
Jan 21, 2019 |
Two Dudes' Goals for 2019
|
Jan 13, 2019 |
058 - 2018 Year Review
|
Dec 31, 2018 |
057 - The Nomadic Dreamer
|
Dec 17, 2018 |
056b - Australia Researcher Q&A
|
Dec 02, 2018 |
056a - AUS Intro Story
|
Dec 02, 2018 |
Exploring Life Transitions with Kyle and Sean
|
Nov 19, 2018 |
054 - Travis Flores
|
Nov 02, 2018 |
053 - Nutrition with Shana and Donna
|
Oct 18, 2018 |
052 - Surviving Sepsis Unshattered with Carol Decker
|
Oct 05, 2018 |
051 - PR with Heather Burgett
|
Sep 22, 2018 |
050.Kyle - Sean Interviews Kyle
|
Sep 09, 2018 |
050.Sean - Kyle Interviews Sean
|
Sep 09, 2018 |
049 - Little Levi & Miracle Flights
|
Aug 26, 2018 |
048 - Rare Disease Advocate Luke Rosen, KIF1A.org
|
Aug 13, 2018 |
047 - Barry Rice, Cycle Ataxia
|
Jul 29, 2018 |
046 - A conversation With the Dudes
|
Jul 16, 2018 |
045 - sick Chick Shira Strongin
|
Jul 01, 2018 |
044 - Francisco Sanchez - A Doctor With SCI Paying it Forward
|
Jun 14, 2018 |
043 - Nic Noviki - Easterseals Disability Film Challenge
|
Jun 04, 2018 |
042 - On Being Savage with Les Ballard
|
May 21, 2018 |
041 - Spring Cleaning of the Mind
|
May 07, 2018 |
040 - Breaking the Paralyzed Paradigm, with Arash Bayatmakou
|
Apr 23, 2018 |
How to Ward Off Decrepitude
|
Apr 09, 2018 |
038 - Ilana Jacqueline
|
Mar 21, 2018 |
037 - RDW Panel For The Ataxian
|
Mar 12, 2018 |
036 Patient engagement live at Reata
|
Feb 21, 2018 |
LIVE at Reata Pharmaceuticals
|
Feb 06, 2018 |
Katie Stevens President, Dyskeratosis Congenita Outreach (DCO)
|
Jan 28, 2018 |
033 - Steps to Bust Your Funk
|
Jan 15, 2018 |
032 Behind The Scenes
|
Jan 01, 2018 |
031 - Anniversary Episode! Listener Appreciation
|
Dec 18, 2017 |
030 - 000 Rerun
|
Dec 04, 2017 |
029 - Wonderful and Different with Paul Avery
|
Nov 19, 2017 |
028 2DD Challenge Check-in
|
Nov 14, 2017 |
Episode 027
|
Nov 06, 2017 |
026 - Self Discipline
|
Oct 23, 2017 |
025 - Leadership with Drew Dudley
|
Oct 07, 2017 |
024 - The Parent Perspective with Tom Hamilton
|
Sep 19, 2017 |
023 Patrick Lawrence & CAF
|
Sep 11, 2017 |
023 - Challenged Athletes Foundation
|
Sep 07, 2017 |
023 - The Psychology of Disability with Dr. Dan Gotlieb
|
Aug 31, 2017 |
021 - rideATAXIA Europe, Le Peloton de l'Espoir
|
Aug 07, 2017 |
020 - LIVE at Horizon Pharma
|
Jul 22, 2017 |
019 - Dr. David Fajgenbaum - Conquering Castleman Disease
|
Jul 14, 2017 |
018 - Breaking Your Chains w/ Rudy Garcia-Tolson
|
Jul 03, 2017 |
017 -Roger Crawford
|
Jun 16, 2017 |
KHTK Interview
|
Jun 09, 2017 |
016 - Nutrition with Dr. Liz Applegate
|
May 31, 2017 |
Race Across America - Team FARA
|
May 22, 2017 |
RAAM Crew Chief Mike Bryant (Kyle's Dad)
|
May 08, 2017 |
013 - Kyle & Sean's #1 Advice
|
Apr 24, 2017 |
012 - Matt Fritsch - The Spinal Cord Injury (SCI) Community
|
Apr 10, 2017 |
011 - Ron Bartek Part 2 - Collaboration: We're All In This Together
|
Mar 27, 2017 |
010 - Adaptive Equipment Grants - The Ataxian Athlete Initiative
|
Mar 13, 2017 |
009 - Ron Bartek, Co-Founder and President, FARA
|
Feb 26, 2017 |
008 - Paul Melmeyer of the National Organization for Rare Disorders
|
Feb 22, 2017 |
007 - Max Bronstein
|
Feb 20, 2017 |
006 - Nicole Boice
|
Feb 15, 2017 |
005 - Focus on Rare Disease Day with Special Guests: Nicole Boice, Max Bronstein, and Paul Melmeyer
|
Feb 13, 2017 |
004 – Travel Gone Wild – How to conquer apprehension during travel with a disability.
|
Jan 30, 2017 |
003 - Travel and Mobility
|
Jan 16, 2017 |
002 - Self Image
|
Jan 02, 2017 |
001 - Life Is About How We React
|
Dec 18, 2016 |
000 - Welcome to the Two Disabled Dudes Podcast
|
Dec 07, 2016 |