Child Life On Call: Parents of children with an illness or medical condition share their stories with a child life specialist

By Katie Taylor, Certified Child Life Specialist

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Category: Medicine

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Subscribers: 26
Reviews: 0
Episodes: 225

Description

Parents share their journeys and experiences related to having a child with an illness or medical condition. These powerful, and sometimes emotional, stories offer connection in what can typically feel like an isolating world. Visit www.childlifepodcast.com or email info@childlifepodcast.com to share your story.

Episode Date
218: How NOT to Give Families Medical Information - A son with CHARGE syndrome, Taylor's Story
May 15, 2024
217: Navigating IEPs, Infantile Spasms, NICU & STXBP1 - Erin's Story
May 08, 2024
216: How to talk with Kids about Child Abuse - Jane's Story [Repost]
Apr 24, 2024
215: Ruptured Appendix: Emergent Surgery, 6 Days in the Hospital & Struggles to Discharge - Aspen's Story
Apr 17, 2024
214: Sacrifice, Advocacy, Joy: Raising a Son with End Stage Kidney Disease - The Ransome Family's Story
Apr 10, 2024
213: Parents, CCLS, Students: Show Up Exactly As You Are
Apr 03, 2024
212: CCLS Story: 18 Years of Supporting Kidney Families -Julie's Story
Mar 27, 2024
211: A Son Born with End-Stage Kidney Disease (Part 1): Lyndsey's Story
Mar 20, 2024
210: Connection, Healing, and Love: Insights from Patrice Karst, Author of The Invisible String
Mar 13, 2024
209: Research on Parent Caregivers of Children with Medical Complexities - Elise's Story
Mar 06, 2024
208: Military Life, Pediatric Complex Care Abroad & Resiliency: Kat's Story
Feb 28, 2024
Healing Without Surgery: Umbilical Hernia Solutions from a Physical Therapist
Feb 21, 2024
206: Founder's Vision: Katie's Journey, Child Life Tech, Future Insights
Feb 14, 2024
205: How to Support Kids who are Grieving, Bittersweet Relationships & Personal Loss
Feb 07, 2024
204: Caregiver Isolation, Transitioning to Adult Special Needs, and Becoming CapeAble - Marna's Story
Jan 31, 2024
203: 12 Years to Diagnosis, Understanding Four Key Emotional Reactions, and Channeling Her Story into Positive Action - Jessica's Story
Jan 24, 2024
202: Infantile Spasms, Healing from Trauma and Emotional Resilience
Jan 17, 2024
201: Personal Growth Theory, NEC in the NICU and Shielding Siblings - Kathryn’s Story
Jan 10, 2024
200: Anonymous questions from Instagram, Katie's personal burn story, and reflecting on 2023
Dec 20, 2023
Episode 199 | Kate's Story- A daughter with Infantile Spasms
Dec 13, 2023
Episode 198 | Jennifer's Story- A son with necrotizing enterocolitis (NEC)
Dec 06, 2023
Episode 197 | James' Story- A son with a congenital heart defect
Nov 29, 2023
Episode 196 | Hannah’s Story-A son with VACTREL Association
Nov 15, 2023
Episode 195 | Mackenzie's Story- A daughter with Severe Tethered Cord and Caudal Regression Syndrome
Nov 08, 2023
Episode 194 | Keeley's Story- A daughter with hydrops fetalis
Nov 01, 2023
Episode 193 | Katie’s Takeaways from the American Academy of Pediatrics Conference
Oct 25, 2023
Episode 192 | [Repost] Teresa's Story- A daughter with Spina Bifida and a Tethered Cord
Oct 18, 2023
Episode 191 |[Repost] Shani’s Story-A child with a learning difference #ADHD #Anxiety #Dyslexia #Dysmorphia
Oct 11, 2023
Episode 190 |Sara’s Story- Telling your Child you have Cancer [Repost in honor of Breast Cancer Awareness Month]
Oct 04, 2023
Episode 189 | Ryan's Story - A son with Costello Syndrome
Sep 27, 2023
Episode 188 | Rhandyl and Deonna's stories from Raising Disabled
Sep 20, 2023
Episode 187 | Kayleigh's Story-A Child Life Specialist's son with Tetralogy of Fallot [part 2]
Sep 13, 2023
Episode 186 | Kayleigh's Story - A Child Life Specialists son with Tetralogy of Fallot [part 1]
Sep 06, 2023
Episode 185 | J.R.'s Story- A son with a Rare Disease
Aug 30, 2023
Episode 184 | Casey's Story - Free Resources to Bring Families Together
Aug 23, 2023
Episode 183 | An EMS professional tells us how to prepare your child for an ambulance ride
Aug 16, 2023
Episode 182 | Virtual Child Life Services in the Hospital with Sarah Lanham
Aug 09, 2023
Episode 181 | Jan’ s Story- A daughter with PVOD and a Lung Transplant
Aug 02, 2023
[Child Life 101] How to Prepare Babies, Kids and Teens for Procedures
Jul 31, 2023
Episode 180 | Dianne's Story- How Neurofeedback helped her son
Jul 26, 2023
Episode 179 | Laura's Story-Why Therapeutic Play is Essential During Healthcare Experiences
Jul 19, 2023
Episode 178 | Expert Guest on Adolescent Medicine: Dr. Hina Talib
Jul 12, 2023
Episode 177 | Kimberly’s Story - Cord Prolapse and Emergent C-Section at 26 Weeks
Jul 05, 2023
[Child Life 101] Empowering Parents: How Child Life Specialists Teach Effective Advocacy
Jul 03, 2023
Episode 176 | Deaf, Deaf+ and Hard of Hearing Support with Barbara Hecht from Clarke Schools
Jun 28, 2023
Episode 175 | Child Life in the Emergency Room (ER)
Jun 21, 2023
[Child Life 101] Supporting the Siblings in Pediatrics
Jun 19, 2023
Episode 174 | Finding out your Child has Cancer During your Pediatric Residency with Dr. Maureen Michele
Jun 14, 2023
[Child Life 101] How to Have Difficult Conversations with Kids
Jun 12, 2023
Episode 173 | Dr. Korie Leigh - What Does Grief Feel Like?
Jun 07, 2023
Episode 172 | Rylee’s Story - A child life specialist with Tetralogy of Fallot
May 31, 2023
Episode 171 | Dr. Kate Lund - Growing up with Hydrocephalus
May 24, 2023
[Child Life 101] How to Support Kids in Pain
May 22, 2023
Episode 170 | Courtney’s Story - A daughter with Trisomy 21, AVSD and Pulmonary Hypertension
May 17, 2023
[Child Life 101] What is Child Life?
May 15, 2023
Episode 169 | Dr. Kelly Fradin - Building Trusted Relationships with your child’s Pediatrician
May 10, 2023
[Child Life 101] Series Preview
May 08, 2023
Episode 168 | Olivier’s Story - A Film Inspired by A son with Down Syndrome
May 03, 2023
Episode 167 | Leah’s Story - A son with Hypoplastic Left Heart Syndrome
Apr 26, 2023
Episode 166 | Lo’s Story - Milk Making, Breastfeeding and Lactation Support in the Hospital Setting
Apr 19, 2023
Episode 165 | Kelsey’s Story - A daughter with gastroparesis and hereditary spherocytosis
Apr 12, 2023
Episode 164 | [Repost] How to Talk with Kids About Child Abuse with Jane Donovan
Apr 10, 2023
Episode 163 | Emma’s Story - A daughter with Trisomy 18
Apr 05, 2023
Episode 162 | Kayla’s Story - A daughter with Ollier’s Disease
Mar 29, 2023
Episode 161 | Dana’s Story - Micropreemie Twins Born at Home
Mar 22, 2023
Episode 160 | Jodi’s Story - HELLP Syndrome and a Premature Birth
Mar 15, 2023
Episode 159 | Ryan’s Story - A son with Muscular Dystrophy (Becker’s)
Mar 08, 2023
Episode 158 | Kristen’s Story - Licensed Family Therapist - Anxiety in Children
Mar 01, 2023
Episode 157 | Crystal Polk - Social Worker + Caregiver Expert
Feb 22, 2023
Episode 156 | Michele’s Story - Child loss and the sibling relationships
Feb 15, 2023
Episode 155 | Travis’ Story - A daughter with Cystic Fibrosis
Feb 08, 2023
Episode 154 | Savannah’s Story - Traumatic birth, Micro Preemie Twins, and Cerebral Palsy
Feb 01, 2023
Episode 153 | Expert: Virtual Speech Language Pathologist
Jan 25, 2023
Episode 152 | Kelly’s Story - A daughter with Epilepsy [Trigger Warning: Death]
Jan 18, 2023
Episode 151 | Gavin + Cindy’s Story - A son with Osteosarcoma
Jan 11, 2023
Episode 150 | Grandparents Guide to Supporting Their Kids + Grandkids during Illness
Jan 04, 2023
Episode 149 | Last of the Year
Dec 14, 2022
Episode 148 | Katy’s Story - A daughter with scars and a story
Dec 07, 2022
Episode 147 | Expert: Child Life Specialists in Sweden
Nov 30, 2022
Episode 146 | Caryn’s Story - A daughter with ALCAPA Congenital Heart Defect
Nov 16, 2022
Episode 145 | Ashley and Martha’s Stories from Dear NICU Mama
Nov 09, 2022
Episode 144 | Alex’s Story - A NICU Dad Perspective
Nov 02, 2022
Episode 143 | Emily’s Story - Staying Organized as a Medical Parent
Oct 26, 2022
Episode 142 | Swapnil’s Story - A daughter with severe food allergies
Oct 19, 2022
Episode 141 | Hannah’s Story - Kids with Febrile Seizures
Oct 12, 2022
Episode 140 | Melanie’s Story - A toddler diagnosed with Type 1 Diabetes
Oct 05, 2022
Episode 139 | Facility Dog’s In Children’s Hospitals
Sep 28, 2022
Episode 138 | Piper + Enza: A Covid-19 Inspired Health and Happiness Company for Kids
Sep 21, 2022
Episode 137 |Lauren’s Story - A son with Aicardi-Goutieres Syndrome (AGS)
Sep 14, 2022
Episode 136 | Jaime’s Story - A daughter with limb loss and Tetralogy of Fallot
Sep 07, 2022
Episode 135 | Judith's Story- A twin with albinisim
Aug 31, 2022
Episode 134| Rebekah’s Story - A teen with food allergies
Aug 24, 2022
Episode 133 | Expert: A Hard of Hearing Child Becomes an Audiologist
Aug 17, 2022
Episode 132 | Tanisha’s Story - A son with Lower Urinary Tract Obstruction
Aug 10, 2022
Episode 131 | Paola’s Story - A son with ADA-SCID
Aug 03, 2022
Episode 130 | Belinda’s Story - A son with autism, low tone and epilepsy [A BELOVED MENTOR]
Jul 27, 2022
Episode 129 | How to Explain Covid-19 to Kids [2nd MOST DOWNLOADS]
Jul 20, 2022
Episode 128 | Maura’s Story - A son with Down syndrome [MOST SHARED]
Jul 13, 2022
Episode 127 | Courtney’s Story - A daughter born at 25 weeks [MOST DOWNLOADED]
Jul 06, 2022
Episode 126 | Supporting Children in Hospice
Jun 22, 2022
Episode 125 | Katie on Child Life Wild Life
Jun 15, 2022
Episode 124 | Laura’s Story Part 2: A son with Congenital Leukemia
Jun 08, 2022
Episode 123 | Laura’s Story Part 1: A son with Congenital Leukemia
Jun 08, 2022
Episode 122 | Meditation for Kids with a Music Therapist
Jun 01, 2022
Episode 121 | Sarah's Story: A daughter with an ischemic stroke
May 25, 2022
Episode 120 | How to Stay Present... Not Perfect
May 18, 2022
Episode 119 | Michelle’s Story: A Son’s Pediatric Rehab Experience
May 11, 2022
Episode 118 | How to Give Your Child Medicine
May 04, 2022
Episode 117 | [Repost] Ashlyn’s Story: A Son with VACTERL Association
Apr 27, 2022
Episode 116 | Psychosocial Considerations for Parents of Tweens and Teens
Apr 20, 2022
Episode 115 | Megan’s Story: A Son with Williams Syndrome
Apr 13, 2022
Episode 114 | How to Talk with Kids About Child Abuse with Jane Donovan
Apr 06, 2022
Episode 113 | Amy’s Story: A Son with Craniopharyngioma
Mar 30, 2022
Episode 112 | Sehreen’s Story: A Daughter Requires Neurosurgery
Mar 23, 2022
Paige’s Story: A Daughter with Nursemaid’s Elbow
Mar 16, 2022
A 12 Minute Talk with Dr. Jin Lee, a Licensed Clinical Psychologist
Mar 09, 2022
Episode 109 | Dimitra’s Story: A Son with Transposition of the Great Arteries and Coarctation of the Aorta
Mar 02, 2022
Episode 108 | Melissa’s Story: A Son with Transposition of the Great Arteries
Feb 23, 2022
Episode 107 | How to Support Healthy Children of Adults with Illness with Julie May
Feb 16, 2022
Episode 106 | Elizabeth’s Story: A Son with PANDAS
Feb 09, 2022
Episode 105 | How Child Life Specialists Help Kids and Families After Disasters
Feb 02, 2022
Episode 104 | Maureen’s Story: A Daughter with Bilateral Clubfoot
Jan 26, 2022
Episode 103 | A Talk with an Expert: Kat Harrison on Living with Medical Challenges, Disability, Mental Health, and Chronic Illness
Jan 19, 2022
Episode 102 | Betsy’s Story: Hope for HIE (Hypoxic Ischemic Encephalopathy)
Jan 12, 2022
Episode 101 | Christiana’s Story: A Son with Osteosarcoma
Jan 05, 2022
Episode 100 | Thoughts about the Child Life Field
Dec 22, 2021
Episode 99 | Kat’s Story: Chronic Illness as a Teenager
Dec 15, 2021
Episode 98| Checking in with Meg and Jess from Friends with Fros
Dec 08, 2021
Episode 97 | Samarrah’s Story: A Son with an Ependymoma Brain Tumor
Dec 01, 2021
Episode 96 | Carrie’s Story: A Son with Spina Bifida and Hydrocephalus
Nov 24, 2021
Episode 95 | How to Start a Gratitude Journal
Nov 17, 2021
Episode 94 | Moira’s Story: Kids with Celiac Disease and Migraines
Nov 10, 2021
Episode 93 | Expert Advice Every Parent Should Know From an Occupational Therapist
Nov 03, 2021
Episode 92 | The Dad’s Perspective: A Son with a Rare Genetic Disease
Oct 27, 2021
Episode 91 | How Do You Explain the COVID-19 Vaccine to Kids?
Oct 20, 2021
Episode 90 | Jenny’s Story: Head-Conjoined Twins and Adoption
Oct 13, 2021
Episode 89 | How to Talk with Kids About Disabilities with Dr. Brittany Ferri
Oct 06, 2021
Episode 88 | [Repost] Life On Pause: Cancer Survivors Share Their Stories
Sep 30, 2021
Episode 87 | Lisa and Brady’s Story - A Mom and Son Discuss Their Past Cancer Experience
Sep 29, 2021
Episode 86 | Starlyn's Story - Quadruplets in the NICU
Sep 22, 2021
Episode 85 | Lisa's Story - A daughter with Sickle Cell (Repost!)
Sep 15, 2021
Episode 84 | Parents of Kids with Cancer
Sep 08, 2021
Episode 83 | How to Talk to About a Friend or Classmate's Cancer
Sep 01, 2021
Episode 82 | Taraneh's Story - A son with cleft palate
Aug 25, 2021
Episode 81 |How to Support Your Kids for Back to School
Aug 18, 2021
Episode 80 | Bonnie’s Story - A son with Type 1 Diabetes
Aug 11, 2021
Episode 79 | How to Talk to Kids About an Upcoming Surgery
Aug 04, 2021
Episode 78 | Kara’s Story - A son with a brain tumor and the journey after resection
Jul 28, 2021
Episode 77 | How Can Music Therapy Help my Child
Jul 21, 2021
Episode 76  | Cortney’s Story - A daughter with Hypoplastic Left Heart Syndrome
Jul 14, 2021
Episode 75 | How to Talk to Kids About Death
Jul 08, 2021
Episode 74 | Jessica’s Story - A son with Prader-Willi syndrome
Jun 30, 2021
Episode 73 | Should Kids Go To Funerals?
Jun 23, 2021
Episode 72 | Laurie’s Story - A son with Fanconi Anemia and Tetralogy of Fallot
Jun 16, 2021
Episode 71 | How To Tell Your Kids That Mom Has Cancer
Jun 09, 2021
Episode 70 | Sara's Story - Telling Your Child You Have Cancer
Jun 02, 2021
Episode 69 | Liza's Story - A daugther with Lyme Disease
May 19, 2021
Episode 68 | Child Life Specialists Talk About How They Support Transplant Families
May 12, 2021
Episode 67 | Todd and Morgan's Story - A son with Biliary Atresia and a liver transplant
May 05, 2021
Episode 66 | How to Support Siblings of Children with Medical or Special Needs
Apr 21, 2021
Episode 65 | Holly's Story - A son with Hereditary Spastic Paraparesis (HSP)
Apr 14, 2021
Episode 64 | Mijha's Story - A daughter with Triplication of Gends on Chromosome 15q
Apr 07, 2021
Episode 63 | Krystal's Story - A son with Neonatal Pneumothorax in the NICU
Mar 31, 2021
Episode 62 | Madeline's Story - The sibling of a child with a rare genetic condition
Mar 24, 2021
Episode 61 | Lindsey's Story - A son with Infant Botulism
Mar 10, 2021
Episode 60 | Dafne's Story - Children with Chronic Illness: Juvenile Type 1 Diabetes, Psoriatic Arthritis and Ankylosing Spondylitis
Mar 03, 2021
Episode 59 | Shay's Story - A daughter with Klippel-Trenaunay syndrome
Feb 24, 2021
Episode 58 | Shani's Story - A child with a learning difference #ADHD #Anxiety #Dyslexia #Dysmorphia
Feb 10, 2021
Episode 57 | A NICU stay for micro preemie twins born at 23 weeks
Feb 03, 2021
Episode 56 | Effie's Story - A son with a Rare Disease , CTNNB1
Jan 27, 2021
Episode 55 | Dana's Story - Child Life Speialists in Schools - 12:14:20, 8.23 PM
Jan 20, 2021
Episode 54 | Danielle's Story - A daughter with Eosinophilic Gastroenteritis
Jan 13, 2021
Episode 53 | Teresa's Story - A daugther with Spina Bifida and Tethered Cord
Jan 06, 2021
Episode 52 | Nichole's Story - A son fighting cancer with help from My Special Aflac Duck and Child Life
Dec 09, 2020
Episode 51 | Katie and Jamie's Top 5 of 2020
Dec 04, 2020
Episode 50 | Eileen's Story - A son with Recessive Dystrophic Epidermolysis Bullosa
Nov 11, 2020
Episode 49 | Supporting families facing childhood medical experiences in the miltary
Nov 04, 2020
Episode 48 | Meg's Story - A daughter with craniosynostosis
Oct 14, 2020
Episode 47 | Rosaria's Story - A son's legacy after passing from cancer
Oct 07, 2020
Episode 46 | Pediatric Pain with the Meg Foundation
Sep 30, 2020
Episode 45 | Amrita's Story - A son with GERD and feeding aversion
Sep 23, 2020
Episode 44 | Lisa's Story - A daughter with Sickle Cell Anemia
Sep 16, 2020
Episode 43 | Ashlyn's Story - A son with VACTERL association
Aug 19, 2020
Episode 42 | Maura Senneff's Story - A son with Down syndrome
Aug 12, 2020
Episode 41 | Dominique's Story - A daughter born three months premature
Aug 05, 2020
Episode 40 | A conversation about anti-racism and diversity in the field of Child Life
Jun 10, 2020
Episode 39 | Jessica's Story - A son with Autism
May 26, 2020
Episode 38 | Elizabeth's Story - A daughter with Leukemia
Apr 27, 2020
Episode 37 | Meg's Story - A daughter with Idiopathic Thrombocytopenic Purpura (ITP)
Apr 14, 2020
36. Delanie's story - An American in Quarantine in China
Mar 30, 2020
Episode 35 | Talking to kids about the Coronavirus
Mar 12, 2020
Episode 34 | Katie + Jamie's Top 10 - Heart Month
Feb 27, 2020
Episode 33 | Scott's Story - A daughter with a rare cancerous tumor
Feb 14, 2020
Episode 32 | Tara with Making Cancer Fun's Story - A daughter with neuroblastoma
Jan 14, 2020
Episode 30 | Katie Chat with other Child Life Specialists
Nov 25, 2019
Episode 29 | Tiger Livy's Story - An interview with Erin Garcia and Betsy Miller
Nov 04, 2019
Episode 28 | Lauren's Story - A daughter with Congenital Heart Defects
Oct 28, 2019
Episode 27 | Alex Ortega's Story - A son's traumatic brain injury at birth and another born at 28 weeks
May 08, 2019
Episode 26 | Gillian's Story - A daughter with Infant Leukemia
Apr 23, 2019
Episode 25 | Meredith Howell's Story - a daughter with a rare genetic condition (BBSOAS)
Apr 04, 2019
Episode 24 | Jade Marie’s Story - A daughter with hypoplastic left heart syndrome
Mar 26, 2019
Episode 23 | Stephanie's Story - A daughter with functional short bowel syndrome
Mar 18, 2019
Episode 22 | Belinda's Story - A son with low muscle tone, epilepsy and autism
Apr 30, 2018
Episode 21 | Alex’s Story - A daughter born with congenital heart defects and heterotaxy
Apr 23, 2018
Episode 20 | Sarah's Story - A toddler hospitalized with RSV and Pneumonia
Apr 16, 2018
Episode 19 | Courtney's Story - A daughter born at 25 weeks
Apr 09, 2018
Episode 18 | Meredith's story - A newborn with meningitis and a Tonsillectomy and Adenoidectomy at 2 years old
Apr 02, 2018
Episode 17 | Torie's Story - A young adult with gastroperesis
Mar 26, 2018
Episode 16 | Lyndsey's story - A daughter with hearing loss and bilateral cochlear implants
Mar 19, 2018
Episode 15 | Alexis' Story - Ear tubes surgery and how to support your child through surgery
Mar 12, 2018
Episode 14 | Shani's Story - An interview with Child Life Mommy
Mar 05, 2018
Episode 13 | Nina's Story - A son with craniosynostosis
Feb 26, 2018
Episode 12 | Season 1 Finale
Dec 07, 2017
Episode 11 | Susan's story - A son with Crohn's disease
Oct 19, 2017
Episode 10 | Roxanne's Story - A son with viral encephalitis and epilepsy
Sep 11, 2017
Episode 9 | Liz and Jamie's Story - A daughter acquires HIV after a blood transfusion during cardiac surgery
Aug 28, 2017
Episode 8 | Part Two of Mandy's Story - A son born with a rare genetic condition
Aug 21, 2017
Episode 7 | Part 1 of Mandy's Story - A son born with a rare genetic condition
Aug 14, 2017
Episode 6 | Tricia's Story - A daughter diagnosed with Rolandic Epilepsy
Aug 07, 2017
Episode 5 | Karen's Story - A nicu stay after undected gestational diabetes
Jul 31, 2017
Episode 4 | Abigail's story - a son diagnosed with Spina Bifida and Hearing Loss
Jul 17, 2017
Episode 3 | Kim's Story - A son born with Microtia Atresia and hearing loss
Jul 10, 2017
Episode 2 | Michelle's Story - A life-threatening illness leads to a week-long coma
Jul 03, 2017
Episode 1 | Kelli's Story - A daughter with Goldenhar and Caudal Regression Syndrome
Jun 26, 2017
Child Life On Call
May 11, 2017