The Rare hour with Christopher Velona
By Christopher Velona
Listen to a podcast, please open Podcast Republic app. Available on Google Play Store and Apple App Store.
Image by Christopher Velona
Category: Mental Health
Open in Apple Podcasts
Open RSS feed
Open Website
Rate for this podcast
Subscribers: 1
Reviews: 0
Episodes: 44
Description
Join us for a one-hour rare disease community support group. Here we will discuss the topics that affect your daily life in rare diseases as well as special needs. Being a parent is hard but having a child in rare disease takes a special kind of person and the journey is filled with potholes along the way. The pathway may never be clear, but together we can navigate by supporting each other.
P.S. we are not a glum lot!
| Episode | Date |
|---|---|
|
Mental Health support has a new face.
|
Jan 30, 2024 |
|
Nasty People in Rare...What gives?
|
Aug 05, 2023 |
|
Wes Michael~ Giving families the opportunity where it is most needed. Their opinion.
|
Jun 29, 2023 |
|
Rare thoughts on the #Rarewarrior 5 x 5 challenge!
|
May 03, 2023 |
|
Conference Season
|
Mar 31, 2023 |
|
End of 2022 Re Cap Show
|
Dec 31, 2022 |
|
I AM ANGRY
|
Nov 30, 2022 |
|
Rare Thoughts...First 2 weeks of september.
|
Sep 16, 2022 |
|
How social media helps awareness with Megan Loden
|
Aug 29, 2022 |
|
Rare Thoughts/ Stop wasting time!
|
Aug 11, 2022 |
|
Drydocked- How early detection in a routine exam saved his life and his rare life began
|
Aug 08, 2022 |
|
Rare Thoughts...The Birthday one.
|
Jul 20, 2022 |
|
Grandma in rare
|
Jul 09, 2022 |
|
The Batten update(reality) #08
|
Jun 29, 2022 |
|
Today was a good day...
|
May 27, 2022 |
|
When the promise of Gene therapy does not apply to your child
|
May 18, 2022 |
|
Rare thoughts... Frustration
|
May 12, 2022 |
|
Rare thoughts
|
Apr 26, 2022 |
|
We all want CURES!
|
Mar 15, 2022 |
|
The Special Needs Sensei
|
Feb 01, 2022 |
|
Welcome
|
Jan 10, 2022 |
|
EFFIE PARKS
|
Dec 20, 2021 |
|
Dr. Drew
|
Nov 04, 2021 |
|
New Show.
|
Jan 09, 2021 |
|
"We knew nothing about this..." Kristen Gray
|
Apr 18, 2020 |
|
The Cystic fibrosis financial planner
|
Mar 21, 2020 |
|
Josh the super uncle!
|
Mar 04, 2020 |
|
Melissa and Haley~Heros
|
Feb 19, 2020 |
|
Accountability and Autism
|
Feb 11, 2020 |
|
The year in review
|
Jan 01, 2020 |
|
Breaking down Epilepsy with Dr. Shaun Hussain
|
Nov 14, 2019 |
|
The Update
|
Jul 16, 2019 |
|
BDSRA Family Liaison Tracy Kirby
|
Jun 18, 2019 |
|
Bill Bussey
|
Apr 28, 2019 |
|
In my opinion
|
Apr 02, 2019 |
|
Episode 12
|
Feb 28, 2019 |
|
VERNON MAXXWELL
|
Jan 18, 2019 |
|
Holiday message with Sebastian and Gage
|
Dec 24, 2018 |
|
John Montazeri: Father, Advocate, Businessman
|
Dec 12, 2018 |
|
Gage
|
Nov 17, 2018 |
|
Dena
|
Oct 26, 2018 |
|
Vanessa severance
|
Oct 01, 2018 |
|
Welcome
|
Sep 29, 2018 |
|
Batten disease...
|
Sep 18, 2018 |