AAMDSIF Podcasts for Patients

By The Aplastic Anemia and MDS International Foundation

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Episodes: 56

Description

"Podcasts for Patients" from the Aplastic Anemia and MDS International Foundation. For more, see our podcast page at: https://www.aamds.org/podcast/

Episode Date
Recent FDA Approval of Danicopan for patients with PNH
Apr 15, 2024
Athletic Service Member Conquers Aplastic Anemia and MDS with Transplant
Apr 11, 2024
Conquering PRCA: a conversation with Ron Duncan, Patient Survivor
Jan 11, 2024
Hepatitis-Associated Aplastic Anemia with Dr. Roma Rajput
Jan 11, 2024
Brian Anderson Explains Life, Treatment, and Surviving MDS
Jan 05, 2024
Conversation with patient, Mario Rivera: His Experience with Aplastic Anemia
Jan 05, 2024
Athlete's life is turned upside-down by diagnosis of PNH: Evan's story
Dec 21, 2023
Learn about newly approved oral medication for patients with PNH
Dec 21, 2023
FDA approval of Tibsovo with Dr. Amir Fathi
Nov 01, 2023
Expanded Access to Reblozyl® for Patients with Dr. Guillermo Garcia Manero
Oct 02, 2023
Understanding The Americans with Disablities Act
Sep 20, 2023
Living with PNH: The Family Medical Leave Act
Sep 19, 2023
The Importance of Getting Second Opinion with Dr. Mikkael Sekeres
Sep 15, 2023
Managing Chemo Brain With Dr. Jorg Dietrich
Dec 20, 2022
Meningitis and PNH with Dr. Bhumika Patel
Dec 19, 2022
COVID - 19 And Vaccines For Patients - with Dr. Veronica Dioverti Prono
Dec 05, 2022
What is a Clinical Trial? With Olga Rios, RN
Nov 21, 2022
Dealing With Fatigue During Treatment With Christina Cline, RN
Nov 21, 2022
Intermediate Risk MDS With Dr Swapna Thota
Nov 17, 2022
Diagnosing MDS with Dr. Joshua Zeidner
Nov 09, 2022
Treatments For AML, (Acute Myeloiod Leukemia,) in Older Adults, with Dr Timothy Pardee
Nov 08, 2022
Blood Clots in Patients with PNH, (Paroxysmal Nocturnal Hemoglobinuria) with Dr. Maxim Norkin
Nov 08, 2022
Advances in Treating PNH with Dr Allyson Pishko - 2022
Nov 02, 2022
Transplant For Older Adults with Dr. Nandita Khera
Nov 02, 2022
Treatment Options for MDS with Dr. Rory Shallis
Nov 02, 2022
Hypomenthylating Agents with Dr. Jacqueline Garcia
Nov 02, 2022
AAMDSIF Podcast for Patients: MDS - Inqovi Treatment with Dr. Amer Zeidan
Aug 10, 2020
Dr. Eunice Wang discusses Secondary MDS
May 15, 2020
Dr David Steensma discusses MDS and toxins
May 15, 2020
Dr. Yacoub explains MDS-MPNs overlap
Apr 17, 2020
Explaining Luspatercept with Dr. Amit Verma
Apr 13, 2020
Dr. Gustavo Rivero on Low-Risk MDS and Supportive Care
Apr 01, 2020
Dr. Vu Duong explains High-Risk and Low-Risk MDS
Apr 01, 2020
Julie Lowe explains March for Marrow and other events
Mar 13, 2020
MDS to AML, treatment and options with Dr. Tiffany Tanaka, UC San Diego
Mar 13, 2020
Eliot thrives after transplant and clinical trial for MDS - AML
Feb 18, 2020
Dr. Ehab Atallah Explains Transplant for MDS in Older Patients
Feb 10, 2020
A Teenager with MDS? His Mom Explains
Feb 10, 2020
Leigh Ann and her son are both successful transplant patients after MDS!
Feb 06, 2020
What Happens in a Clinical Trial? How do I know if it's the right option for me?
Dec 06, 2019
Surprised by diagnosis, Mark learns to live with low-risk Myelodysplastic Syndrome
Dec 06, 2019
Brian finds his way through low-risk, long-term MDS
Oct 28, 2019
Using Integrative Medicine to help patients through Treatment
Oct 21, 2019
New marrow: Transplant and GvHD with Dr. Corey Cutler
Oct 08, 2019
Hedgehog Pathway Inhibitors, Vitamin C, and MDS
Sep 10, 2019
A Clinical Trial Saves her Life! with Theresa Elgin
Aug 23, 2019
Sarah was ready for a great career, but the diagnosis changed her plans... temporarily!
Mar 29, 2019
30 years survivorship! Norma's Story of Aplastic Anemia and MDS
Mar 15, 2019
Kat Edmonds coaches patients on how to make the best decisions for their own lives.
Mar 15, 2019
Busy, happy retirement shaken by MDS - AML: Shirley's story of survivorship!
Mar 15, 2019
Is sleep that important for bone marrow disease patients? Discover Dr. Mekonnen's insights here:
Mar 15, 2019
"What do I do now?" Nancy Corbitt, Nurse Navigator shares her wisdom
Feb 28, 2019
Patrice led the charge in her treatment for aplastic anemia
Feb 22, 2019
Duane's Normal, Active Life: Disrupted by MDS, Transfusions, Treatments
Feb 16, 2019
From Diagnosis to Transplant to Survivorship
Feb 07, 2019
"Never give up!" Inspiration from patient, to patient
Feb 04, 2019