#BeyondHAE Youth Produced Podcast
By US Hereditary Angioedema Association
Listen to a podcast, please open Podcast Republic app. Available on Google Play Store and Apple App Store.
Image by US Hereditary Angioedema Association
Category: Non-Profit
Open in Apple Podcasts
Open RSS feed
Open Website
Rate for this podcast
Subscribers: 0
Reviews: 0
Episodes: 72
Description
The #BeyondHAE Podcast is a series dedicated to amplifying the voices of young people affected by Hereditary Angioedema and raising awareness about the disease. Hear from a different host each episode as they share stories of perseverance, activism, and support. We hope that you find strength in listening to stories from HAEA community members. Everyone has a story and this podcast series is just that, an opportunity for young people affected by HAE to share their unique stories with you!
Visit www.haea.org for Hereditary Angioedema support, information and resources.
| Episode | Date |
|---|---|
|
#BeyondHAE: High-Fiving Palm Trees
|
Nov 03, 2025 |
|
#BeyondHAE Podcast: Advocating for Yourself As You Transition into College
|
Aug 25, 2025 |
|
#BeyondHAE Podcast: A Family’s Journey with HAE
|
Jun 30, 2025 |
|
#BeyondHAE Podcast: Young Advocates on Capitol Hill Fighting for Rare Disease Policy
|
May 01, 2025 |
|
#BeyondHAE Podcast: A Letter to my 10 year old Self
|
Mar 04, 2025 |
|
#BeyondHAE: Meet 2024 Social Media Interns - Jason and Tyler
|
Feb 28, 2025 |
|
#BeyondHAE: Meet the Newest Members of the HAEA's Youth Leadership Council Kaylee and Kiarra
|
Feb 14, 2025 |
|
#BeyondHAE: Meet HAEA Youth Leadership Council Members - Kati and Ella
|
Feb 03, 2025 |
|
#BeyondHAE: Meet the Newest Members of the HAEA's Youth Leadership Council Cassidy and Skylar
|
Jan 31, 2025 |
|
#BeyondHAE: Meet 2024 Social Media Intern - Kailani
|
Jan 17, 2025 |
|
#BeyondHAE: Meet HAEA Youth Leadership Council Members - Caroline and Avery
|
Jan 10, 2025 |
|
#BeyondHAE: Meet the HAEA's Youth Leadership Council's Newest Member Sully
|
Dec 30, 2024 |
|
#BeyondHAE Podcast: A Day in the Life - Jasmeen's Journey of Resilience
|
Nov 04, 2024 |
|
#BeyondHAE BONUS Episode: Empowering Youth Voices: Ally & Luke's Journey in Legislative Advocacy
|
Oct 01, 2024 |
|
#BeyondHAE: A Day in the Life of Zach
|
Aug 30, 2024 |
|
#BeyondHAE Podcast: A Day in the Life of Sanyu
|
Jul 01, 2024 |
|
#BeyondHAE Podcast: A Day in the Life of Caregiver Kailani
|
May 01, 2024 |
|
#BeyondHAE Podcast: A Day in the Life of Caroline
|
Mar 04, 2024 |
|
#BeyondHAE Podcast: A Day in the Life of Bryn
|
Dec 29, 2023 |
|
Sponsored by BioCryst: HAE, the holidays and you. Navigating the holiday season with HAE
|
Dec 19, 2023 |
|
#BeyondHAE Digging Deeper Interview Series: The Parent Perspective (Nikia)
|
Nov 01, 2023 |
|
#BeyondHAE Digging Deeper Interview Series: Overcoming Barriers to Pursue A Passion for Filmmaking (Natalie)
|
Aug 30, 2023 |
|
#BeyondHAE Digging Deeper Interview Series: Studying Abroad with HAE (Nathan)
|
Jul 01, 2023 |
|
#BeyondHAE Digging Deeper Interview Series: My caregiver journey (Eliana)
|
May 01, 2023 |
|
#BeyondHAE Digging Deeper Interview Series: I am a young adult with HAE (Mariel)
|
Feb 27, 2023 |
|
#BeyondHAE Digging Deeper Interview Series: My brother has HAE (Avery)
|
Dec 30, 2022 |
|
#BeyondHAE: HAEA Round Table: Young Adults (Kayla, Jack, and Morgan)
|
Dec 02, 2022 |
|
#BeyondHAE: My HAE Diagnosis and Management Journey (Ally)
|
Oct 31, 2022 |
|
#BeyondHAE: Commemorating HAE Youth Advocacy Month with a talk about advocacy and awareness
|
Sep 28, 2022 |
|
#BeyondHAE: Preparing for Back to School (Lisa & Hannah)
|
Aug 31, 2022 |
|
#BeyondHAE: I Use Social Media to Advocate for HAE (Maddie)
|
Aug 01, 2022 |
|
#BeyondHAE: HAEA Round Table: Anxiety, Stress, and Growth with HAE
|
Jul 01, 2022 |
|
#BeyondHAE: Managing my HAE in Middle School (Paige)
|
May 31, 2022 |
|
#BeyondHAE: HAEA Round Table: How Does It Feel to Be a Kid with HAE?
|
May 02, 2022 |
|
#BeyondHAE: An Interview with Lisa Facciolla (Sydney & Lisa)
|
Mar 28, 2022 |
|
#BeyondHAE: Learning to feel comfortable with my condition (Zanya)
|
Feb 28, 2022 |
|
#BeyondHAE: HAE and Dating (Kelsey and Matt)
|
Jan 31, 2022 |
|
#BeyondHAE: The first in my family with HAE (Kira)
|
Jan 03, 2022 |
|
#BeyondHAE: Finding Comfort in Community (Jess and Hannah)
|
Nov 30, 2021 |
|
#BeyondHAE: How Advocacy and Awareness Has Impacted My Life (Emma)
|
Oct 29, 2021 |
|
#BeyondHAE: Moving Away for College (Kobe)
|
Oct 04, 2021 |
|
#BeyondHAE: Never Give Up (Karissa)
|
Sep 01, 2021 |
|
#BeyondHAE: Living #BeyondHAE with the HAEi Youngsters (Nanna, Erini, Isabel, and Nevena)
|
Aug 04, 2021 |
|
#BeyondHAE: How I Support Team Jack (Ally)
|
Jun 30, 2021 |
|
#BeyondHAE: We are Caregivers (Ava)
|
Jun 01, 2021 |
|
#BeyondHAE: Understanding Anxiety (Carlie)
|
Apr 30, 2021 |
|
#BeyondHAE: Chat with my Mom: Managing Life's Changes (Sophie)
|
Apr 05, 2021 |
|
#BeyondHAE: Modern HAE medication has allowed me to live #BeyondHAE (Sophia)
|
Mar 02, 2021 |
|
#BeyondHAE: Interview With My College Roommate (ReyJeanne)
|
Feb 01, 2021 |
|
#BeyondHAE: 5 Years Can Make a BIG Difference (Luke)
|
Dec 30, 2020 |
|
#BeyondHAE: My Emergency Room Experiences (Jack)
|
Nov 30, 2020 |
|
#BeyondHAE: HAE and Sports (Noah)
|
Oct 30, 2020 |
|
#BeyondHAE: Talking to friends about HAE (HAEA YLC)
|
Oct 30, 2020 |
|
#BeyondHAE: Managing Stress (Ava)
|
Oct 01, 2020 |
|
#BeyondHAE: Art is my Therapy (Gabriela)
|
Oct 01, 2020 |
|
#BeyondHAE: Maddie's Story
|
Aug 31, 2020 |
|
#BeyondHAE: Being Different is Normal (Kobe)
|
Aug 31, 2020 |
|
#BeyondHAE: Back to School Tips with the HAEA Youth Leadership Council
|
Jul 29, 2020 |
|
#BeyondHAE: Advocating for yourself at school (Gabriela P.)
|
Jul 29, 2020 |
|
#BeyondHAE: Independence and Self-Administration (Sophia)
|
Jul 01, 2020 |
|
#BeyondHAE: Travel Tips (Kyleigh)
|
Jun 25, 2020 |
|
#BeyondHAE: Interview with my Mom (Carlie)
|
Jun 03, 2020 |
|
#BeyondHAE: The Impact of COVID-19 on our lives and our HAE (HAEA Youth & HAEi Youngsters Collaboration)
|
May 22, 2020 |
|
#BeyondHAE: Navigating Friendships and HAE (Jasmeen)
|
May 18, 2020 |
|
#BeyondHAE: Anxiety and HAE (Jack)
|
Apr 29, 2020 |
|
#BeyondHAE: How I Advocate for HAE (Stephen)
|
Mar 30, 2020 |
|
#BeyondHAE: My role as a caregiver to my little sister (Ava)
|
Feb 21, 2020 |
|
#BeyondHAE: Staying Active Helped Me Push Through Challenges (Luke)
|
Jan 30, 2020 |
|
#BeyondHAE: When There's a Will, There IS a Way (Maddie)
|
Dec 19, 2019 |
|
#BeyondHAE: Creating a Strong Support System (Noah)
|
Dec 11, 2019 |
|
#BeyondHAE: We're in Washington, DC for HAEA's Capitol Hill Day
|
Nov 01, 2019 |
|
#BeyondHAE: What is HAE
|
Nov 01, 2019 |