Sarc Fighter: Living with Sarcoidosis and other rare diseases
By John Carlin
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Category: Medicine
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Subscribers: 9
Reviews: 0
Episodes: 151
Description
Fighting sarcoidosis as well as other rare diseases.
| Episode | Date |
|---|---|
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Episode 143 | Why Sarc patients MUST exercise and the New FSR Patient Registry explained
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Jul 21, 2025 |
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Episode 142 | Dr. Courtney Montgomery is looking for the cause of Sarcoidosis.
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Jul 07, 2025 |
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Episode141| A tough patch for me and Royce Roberston rides for all of us.
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Jun 23, 2025 |
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Episode 140 | Getting your questions answered at the 2025 FSR Global Virtual Sarcoidosis Summit
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Jun 09, 2025 |
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Episode 139 | Dr. Sotonye Imadojemu talks about Sarcoidosis of the Skin.
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May 26, 2025 |
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Episode 138 | Katie Pantea had a hard time even remembering her neuro sarcoidosis
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May 15, 2025 |
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Episode 137 | Dr. Brandon Moss of the Cleveland Clinic talks neuro sarcoidosis
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Apr 28, 2025 |
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Episode 136 | A big Announcement for John and Sarah Bishop joins from halfway around the world to share her Sarcoidosis story.
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Apr 14, 2025 |
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Bonus Episode | Leaning in on equity in Clinical Trials
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Apr 07, 2025 |
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Episode 135 | April is Sarcoidosis Awareness Month!
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Mar 31, 2025 |
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Episode 134 | Dr. Ravi Karra of Duke University discusses his research on Cardiac Sarcoidosis and its causes.
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Mar 17, 2025 |
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Episode 133 | FSR funds new research and an email from New Zealand
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Mar 03, 2025 |
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Episode 132 | Dr. Arthur Yee on the history of sarcoidosis and a call out to rheumatologists everywhere
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Feb 17, 2025 |
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Episode 131| A well-designed and successfully conducted clinical trial with very clear negative results is the second-best outcome in drug development
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Jan 27, 2025 |
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Episode 130 | New Year, New Life.
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Jan 13, 2025 |
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Episode 129 | Karen Coleman is a dancer who had to slow her feet thanks to sarcoidosis
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Dec 30, 2024 |
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Episode 128 | A year of major accomplishments - and how you can help the Foundation for Sarcoidosis Research
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Dec 16, 2024 |
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Episode 127 | Mariza Löb Talks about her life with Cardiac Sarcoidosis
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Dec 02, 2024 |
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Episode 126 | When is Cardiac Sarcoisosis at its worst and FMLA clearance for clinical trials
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Nov 19, 2024 |
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Episode 125 | All about our session with the FDA as the Sarc community makes its case.
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Nov 04, 2024 |
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Episode 124 | FSR CEO Mary McGowan on how we are taking the sarcoidosis message to the FDA
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Oct 21, 2024 |
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Episode 123 | Stephanie Mizell is helping you beat Sarcoidosis while she struggles with her own sarc symptoms
|
Oct 07, 2024 |
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Episode 122 | Lindsay Lawrence was a surfer until sarcoidosis pulled her under
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Sep 23, 2024 |
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Episode 121 | Wade Tomlinson needed a lung transplant
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Sep 09, 2024 |
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Episode 120 | Dr. Kamal Bharucha is a researcher who found himself a heartbeat away from real trouble
|
Aug 26, 2024 |
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Episode 119 | Jessica Soules deals with Neurosarcoidosis
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Aug 12, 2024 |
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Episode 118 | Mark Steier -- Who wrote the Sarc Fighter theme song has an unpdate, and his wife Caeleigh goes long for FSR
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Jul 22, 2024 |
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Episode 117 | Renwick Brutus tried to write his own insurance policy. But sarcoidosis intervened.
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Jul 08, 2024 |
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Episode 116 | Xentria has a drug - XTMAB-16 that shows promise in fighting Sarcoidosis
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Jun 24, 2024 |
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Episode 115 | Sarc Fighter Andrea Maione has both sarcoidosis and long COVID. It's no party.
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Jun 04, 2024 |
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Episode 114 | Influencer Jonathan Carlin uses YouTube and other social media for an FSR Fundraiser
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May 21, 2024 |
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Episode 113 | Kinevant Sciences makes progress with its drug Namilumab
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May 06, 2024 |
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Episode 112 | aTyr is getting closer to a new drug to fight sarcoidosis.
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Apr 22, 2024 |
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Episode 111 | Mathew Hall hits the wall with sarcoidosis. And it's Sarcoidosis Awareness Month!
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Apr 08, 2024 |
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Episode 110 | Walgreens is helping to fight Sarcoidosis
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Mar 25, 2024 |
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Episode 109 | Sarcoidosis has not been kind to Laura Runge-Gordon
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Mar 11, 2024 |
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Episode 105 | Perry Montoya has traveled the world, but now he's on a new journey.
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Feb 26, 2024 |
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Episode 107 | Mark Simbrowsky has a racing heart. Even when he's sitting still.
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Feb 26, 2024 |
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Episode 106 | Rachelle DeMaria just wants to launch her life
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Feb 12, 2024 |
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Episode 104 | John Martin thought it was time to get his affairs in order.
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Jan 15, 2024 |
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Episode 103 | Closure. Why we need it and why sarcoidosis won’t give it to us.
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Jan 01, 2024 |
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Episode 102a | Sherron Fantauzzi Is fighting the good fight.
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Dec 29, 2023 |
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Episode 102 | Sherron Fantauzzi Is fighting the good fight.
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Dec 11, 2023 |
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Episode 101 | Andy Lacher has sarcoidosis in his lungs and his heart. Put he’s pushing on.
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Nov 21, 2023 |
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Episode 100 | John Mockovciak is a caregiver and philospher when it comes to Sarcoidosis
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Nov 07, 2023 |
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Episode 99 | How to meet NY Yankees great Bernie Williams, and FSR’s Manny Lozano on the power of the sarcoidosis community
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Oct 23, 2023 |
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Episode 98 | Dr. Nancy Lin is looking deep in our cells to find a way to diagnose Sarcoidosis
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Oct 09, 2023 |
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Episode 97 | Joel Rosen is fighting sarcoidosis and fighting for you at the same time.
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Sep 25, 2023 |
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Episode 96 | How effective is methotrexate? And Royce braves the miles and the weather for your cause!
|
Sep 12, 2023 |
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Episode 95 | FSR awards Dr. Christen Vagts $150,000 for critical research, and John puts his sarcoidosis in perspective.
|
Aug 28, 2023 |
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Episode 94 | Tony Haskel returns to the podcast after a rough few months. And do pulmonary Sarc patients get a fair shake at transplant time?
|
Aug 15, 2023 |
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Episode 93 | John tests his Sarcoidosis on assignemt on the U.S.- Mexico border with the National Guard.
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Jul 31, 2023 |
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Episode 92 | Researcher Dr. Stephen Tilley on where we got sarcoidosis
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Jul 17, 2023 |
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Episode 91| Promise from a new drug - and diagnosing neurosarcoidosis is hard.
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Jul 03, 2023 |
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Episode 90 | Mathew Campbell ’s Sarc went from his lungs to his heart. And FSR Crystal Gala highlights
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Jun 19, 2023 |
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Episode 89 | What does your DNA have to do with Sarcoidosis? An FSR Town Hall.
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Jun 05, 2023 |
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Episode 88 | MaryKay Reidenbach has been fighting the fight for 28 years.
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May 22, 2023 |
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Episode 87 | Writer Rebeccca Stanfel on the Pain from Sarcoidosis and Legitimate Need for Opioids.
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May 08, 2023 |
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Episode 86 | Betsy Bennett beat breast cancer - but Sarcoidosis arrived shortly after.
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Apr 24, 2023 |
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Episode 85 | An FSR Town Hall - Getting closer to the first ever drug designed to fight Sarcoidosis
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Apr 10, 2023 |
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Episode 84 | A patient story to go along with Sarcoidosis Awareness month and how FSR is leading the fight.
|
Apr 03, 2023 |
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Episode 83 | Tony Haskel thought his heart was healthy. Then came Sarcoidosis.
|
Mar 27, 2023 |
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Episode 82 | Sam Wassel’s unexplained abdominal pain was sarcoidosis - plus Cycle4Sarc goes public
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Mar 13, 2023 |
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Bonus Episode | FSR Town Hall - Uncovering the Future of Sarcoidosis Treatment and Clinical Trials
|
Mar 06, 2023 |
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Episode 81 | Wade Tomlinson tries to walk away from sarcoidosis.
|
Feb 20, 2023 |
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Episode 80 | John riffs on sarcoidosis clinical trial opportunities and ... Disney
|
Feb 06, 2023 |
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Episode 79a | Royce Robertson is Fighting Sarcoidosis from the seat of his bike!
|
Jan 23, 2023 |
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Episode 79 | Sarc Fighter Royce Robertson bares his sole while looking for a way to help fight Sarcoidosis
|
Jan 16, 2023 |
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Episode 78 | Dr. John Belperio at UCLA has done a deep dive into the state of Sarcoidosis.
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Jan 02, 2023 |
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Episode 77 | Covid Vaccines and Sarcoidosis: Surprising new research from the University of Illinois Chicago
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Dec 19, 2022 |
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Episode 76 | Leeanne West is a scientist who discovered Sarcoidosis in her own life.
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Dec 05, 2022 |
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Episode 75 | FSR Leaders Dr. Louise Perkins and CEO Mary McGowan on all the current progress.
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Nov 21, 2022 |
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Episode 74 | A Doctor and Two Sarc Fighters Urge Black Americans to Join Clinical Trials
|
Nov 07, 2022 |
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Episode 73 | FSR is looking for a few good volunteers. Maybe you.
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Oct 24, 2022 |
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Episode 72 | Sarc Fighter Regina Gordon shares her battle.
|
Oct 19, 2022 |
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Episode 71 | Andrew Brandt is fighting back - for all of us.
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Sep 26, 2022 |
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Episode 70 | Laura Ward thought she had cancer... but it was sarcoidosis.
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Sep 12, 2022 |
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Episode 69 | Kinevant Sciences is researching namilumab – a potential new drug for sarcoidosis
|
Aug 29, 2022 |
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Episode 68 | Profound thoughts from a dying man.
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Aug 15, 2022 |
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Episode 67 | Kristi Hedge begins her sarcoidosis journey.
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Aug 01, 2022 |
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Episode 66 | Unveiling Possibilities - All about the upcoming Sarcoidosis Summit from the Foundation for Sarcoidosis Research
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Jul 18, 2022 |
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Episode 65 | aTyr Pharma is getting closer to a potential breakthrough in treating Sarcoidosis
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Jul 11, 2022 |
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Episode 64 | The Leadership Team at the Foundation for Sarcoidosis Research with an exciting announcement!
|
Jun 27, 2022 |
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Episode 63 | The birds and finding contentedness
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Jun 06, 2022 |
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Episode 62 | Garrie Farrow had troubles wearing her cute shoes. The problem was in her lungs.
|
May 23, 2022 |
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Episode 61 | Expectations and Happiness with Sarcoidosis
|
May 09, 2022 |
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Episode 60 | Jack Boepple’s cardiac sarcoidosis hit him like a linebacker. And he would know.
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Apr 25, 2022 |
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Episode 59 | Angelica wants to know how her grandmother died.
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Apr 11, 2022 |
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Episode 58 | Time to get ready for Sarcoidosis Awareness Month!
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Mar 28, 2022 |
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Episode 57 | Sarc Patient Robin Goble has lost her balance, but she’s fighting to keep her life upright.
|
Mar 14, 2022 |
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Episode 56 | Dr. Shu-Yi Liao wants to know how sarcoidosis moves in the body.
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Feb 28, 2022 |
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Episode 55 | Erica Courtenay-Mann Has Sarcoidosis on her Vocal Cords. But she is speaking out!
|
Feb 14, 2022 |
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Bonus Episode | Universal Barriers in Dealing with a Chronic Disease: A Sarcoidosis Perspective
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Feb 07, 2022 |
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Episode 52 | Dr Divya Patel and Novartis are looking for a few good Sarc patients
|
Jan 31, 2022 |
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Episode 54 | Calvin Harris’ lungs are clogged with Sarcoidosis -- but he wants to run a marathon.
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Jan 17, 2022 |
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Episode 53 | Reasons for hope in the fight against Sarcoidosis in 2022
|
Jan 03, 2022 |
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Episode 51 | Amy Whaley fights on through a life that was different than she imagined.
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Dec 20, 2021 |
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Episode 50 | Warren Robinson‘s father died suddenly. And the family struggled to find out why.
|
Dec 06, 2021 |
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Episode 49 | Adam Bernardi has sarc in all the wrong places.
|
Nov 22, 2021 |
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Episode 48 | Dr. Jinny Tavee is a neurosarcoidosis specialist with a unique approach to fighting the disease
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Nov 08, 2021 |
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Episode 47 | Women of Color Fight Back!
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Oct 25, 2021 |
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Episode 46 | Lisa Pflug is early in her journey with neurosarcoidosis, but already suffering the effects.
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Oct 11, 2021 |
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Episode 45 | Fantastic results from trial of new sarcoidosis drug from aTyr Pharma
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Sep 27, 2021 |
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Episode 44 | Brandi Cleaver faces down what may be a terminal case of sarcoidosis.
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Sep 13, 2021 |
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Episode 43 | Joe McCorry has been fighting Sarcoidosis for a long, long time.
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Aug 30, 2021 |
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Episode 42 | Juliet Coffer can barely walk without losing her breath. But she was determined to step up to fight sarcoidosis.
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Aug 16, 2021 |
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Episode 41| Dr. Matt Baker is researching a promising new drug to fight sarc at Stanford University.
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Aug 02, 2021 |
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Episode 40 | Writer Rebecca Stanfel is bringing the sarcoidosis message to the masses. And, man, does she know the story.
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Jul 19, 2021 |
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Episode 39 | Dr. William Damsky may be on the verge of a sarcoidosis breakthrough.
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Jul 05, 2021 |
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Episode 38 | Sarcoidosis is world wide. How they fight it in the UK
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Jun 21, 2021 |
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Episode 37 | Sarc Fighter Charlton Harris is having a hard time breathing. A REALLY hard time.
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Jun 07, 2021 |
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Bonus Episode | Sarcoidosis and COVID-19 Presented by the Foundation for Sarcoidosis Research
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May 31, 2021 |
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Episode 36 | Sarc Fighter Janet Mockovciak is giving it her all.
|
May 24, 2021 |
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Episode 35 | Nadia Silvera may need a double lung transplant. Thanks sarcoidosis.
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May 10, 2021 |
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Bonus Episode | Sarcoidosis Town Hall: Is Prednisone "Poison?" presented by the Foundation for Sarcoidosis Research
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May 03, 2021 |
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Episode 34 Lindsey Norenberg on how to eat to beat inflammation.
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Apr 26, 2021 |
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Episode 33 | John Riffs on an encounter with a Doc who is not Sarc Aware!
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Apr 12, 2021 |
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Episode 32 | April is Sarcoidosis Awareness month! Tricha Shivas tells us how to fight back!
|
Apr 05, 2021 |
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Episode 31 | Susan Bassi's Life slowed to a crawl when Sarcoidosis made its appearance.
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Mar 29, 2021 |
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Episode 30 Kevin McDevitt's sarcoidosis spread from his finger ... to his heart!
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Mar 15, 2021 |
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Episode 29 Susie Torres fights for diagnosis as she battles Sarc and other illnessess. And - I explore the anti-inflammatory Elimination Diet
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Mar 01, 2021 |
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Episode 28 Sarc Fighter Andrena Johnson is making a Sacroidosis Documentary
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Feb 15, 2021 |
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Episode 27 Diet and CBD - Can they be effective? Ryan Norenberg offers proof.
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Feb 01, 2021 |
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Episode 26 Amy Cobb is a Nurse Practitioner treating COVID Patients - And Fighting Sarcoidosis in Her Own Body.
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Jan 18, 2021 |
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Episode 25 Tracy Bawtinheimer was a world traveling executive until...
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Jan 04, 2021 |
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Episode 24 Sarc Fighter Frank Rivera fights long Covid-19
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Dec 28, 2020 |
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Episode 23 Even doctors can get sarcoidosis. Taufiq Ahmad shares the story of his decline.
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Dec 07, 2020 |
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Episode 22 Meet Mary McGowan the new CEO of the Foundation for Sarcoidosis Research
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Nov 16, 2020 |
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Episode 21 Why Sarc is more prevalent in women with Ozioma Chioma PhD
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Nov 09, 2020 |
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Episode 20 Mark Landiak was hiking the Grand Canyon, when ...
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Oct 26, 2020 |
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Episode 19 Desiree was a cover girl for health ... until.
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Oct 12, 2020 |
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Episode 18 Want to Feel Better? Mindy Buchanan talks today about the November FSR Summit and how it will help.
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Sep 28, 2020 |
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Episode 17 aTyr Pharma CEO Sanjay Shukla talks about how a new drug could be the answer for many sarc fighters!
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Sep 15, 2020 |
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Episode 16 Mary Morlino Fights Back After Sarc Knocks Her Down!
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Aug 31, 2020 |
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Episode 15 Reg Alexander Needed a New Heart
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Aug 17, 2020 |
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Episode 14 Barbara Mouradian Fights a two front battle with Sarc and still swims with sharks!
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Aug 03, 2020 |
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Episode 13 Angela Frelander talks about how you can help fight Sarcoidosis
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Jul 20, 2020 |
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Episode 12: Mark Steier sings the song of Sarcoidosis and tells his own sarc story.
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Jul 06, 2020 |
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Episode 11 Andrea and Reading Wilson -- Founders of the Foundation for Sarcoidosis Research
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Jun 22, 2020 |
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Episode 10 Kerry Wong Talks about how sarc stole her life
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Jun 08, 2020 |
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Bonus Podcast: Roundtable discussion on Sarcoidosis Associated Pulmonary Hypertension from Madrid, Spain
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May 12, 2020 |
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Episode 9 COVID-19 & Sarcoidosis: What are the real risks? First data with Dr. Robert Baughman
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May 05, 2020 |
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Episode 8 Patient Bob Gross tells his sarcoidosis story and more on sarc & COVID-19
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Apr 28, 2020 |
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Episode 7 My Methotrexate issues and Cheryl Bradford tells her sarcoidosis story
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Apr 20, 2020 |
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Episode 6 The Threat from COVID-19 with Jim Kuhn and Mindy Buchanan
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Apr 13, 2020 |
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Episode 5 Chasta Posey tells her Sarcoidosis story from blindness to finding a path to positivity
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Apr 06, 2020 |
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Episode 4 Maggie Hudson of FSR on how we are fighting sarcoidosis
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Mar 23, 2020 |
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Episode 3 Patient Frank Rivera bares his soul.
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Mar 09, 2020 |
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Episode 2 All About Sarcoidois with Dr. Simon Hart
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Feb 21, 2020 |
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Episode 1 My Sarcoidosis Story
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Feb 08, 2020 |
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Sarc Fighter Trailer
|
Jan 19, 2020 |