Sarc Fighter: Living with Sarcoidosis and other rare diseases

By John Carlin

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Category: Medicine

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Subscribers: 9
Reviews: 0
Episodes: 100

Description

Fighting sarcoidosis as well as other rare diseases.

Episode Date
Episode 113 | Kinevant Sciences makes progress with its drug Namilumab
May 06, 2024
Episode 112 | aTyr is getting closer to a new drug to fight sarcoidosis.
Apr 22, 2024
Episode 111 | Mathew Hall hits the wall with sarcoidosis. And it's Sarcoidosis Awareness Month!
Apr 08, 2024
Episode 110 | Walgreens is helping to fight Sarcoidosis
Mar 25, 2024
Episode 109 | Sarcoidosis has not been kind to Laura Runge-Gordon
Mar 11, 2024
Episode 105 | Perry Montoya has traveled the world, but now he's on a new journey.
Feb 26, 2024
Episode 107 | Mark Simbrowsky has a racing heart. Even when he's sitting still.
Feb 26, 2024
Episode 106 | Rachelle DeMaria just wants to launch her life
Feb 12, 2024
Episode 104 | John Martin thought it was time to get his affairs in order.
Jan 15, 2024
Episode 103 | Closure. Why we need it and why sarcoidosis won’t give it to us.
Jan 01, 2024
Episode 102a | Sherron Fantauzzi Is fighting the good fight.
Dec 29, 2023
Episode 102 | Sherron Fantauzzi Is fighting the good fight.
Dec 11, 2023
Episode 101 | Andy Lacher has sarcoidosis in his lungs and his heart. Put he’s pushing on.
Nov 21, 2023
Episode 100 | John Mockovciak is a caregiver and philospher when it comes to Sarcoidosis
Nov 07, 2023
Episode 99 | How to meet NY Yankees great Bernie Williams, and FSR’s Manny Lozano on the power of the sarcoidosis community
Oct 23, 2023
Episode 98 | Dr. Nancy Lin is looking deep in our cells to find a way to diagnose Sarcoidosis
Oct 09, 2023
Episode 97 | Joel Rosen is fighting sarcoidosis and fighting for you at the same time.
Sep 25, 2023
Episode 96 | How effective is methotrexate? And Royce braves the miles and the weather for your cause!
Sep 12, 2023
Episode 95 | FSR awards Dr. Christen Vagts $150,000 for critical research, and John puts his sarcoidosis in perspective.
Aug 28, 2023
Episode 94 | Tony Haskel returns to the podcast after a rough few months. And do pulmonary Sarc patients get a fair shake at transplant time?
Aug 15, 2023
Episode 93 | John tests his Sarcoidosis on assignemt on the U.S.- Mexico border with the National Guard.
Jul 31, 2023
Episode 92 | Researcher Dr. Stephen Tilley on where we got sarcoidosis
Jul 17, 2023
Episode 91| Promise from a new drug - and diagnosing neurosarcoidosis is hard.
Jul 03, 2023
Episode 90 | Mathew Campbell ’s Sarc went from his lungs to his heart. And FSR Crystal Gala highlights
Jun 19, 2023
Episode 89 | What does your DNA have to do with Sarcoidosis? An FSR Town Hall.
Jun 05, 2023
Episode 88 | MaryKay Reidenbach has been fighting the fight for 28 years.
May 22, 2023
Episode 87 | Writer Rebeccca Stanfel on the Pain from Sarcoidosis and Legitimate Need for Opioids.
May 08, 2023
Episode 86 | Betsy Bennett beat breast cancer - but Sarcoidosis arrived shortly after.
Apr 24, 2023
Episode 85 | An FSR Town Hall - Getting closer to the first ever drug designed to fight Sarcoidosis
Apr 10, 2023
Episode 84 | A patient story to go along with Sarcoidosis Awareness month and how FSR is leading the fight.
Apr 03, 2023
Episode 83 | Tony Haskel thought his heart was healthy. Then came Sarcoidosis.
Mar 27, 2023
Episode 82 | Sam Wassel’s unexplained abdominal pain was sarcoidosis - plus Cycle4Sarc goes public
Mar 13, 2023
Bonus Episode | FSR Town Hall - Uncovering the Future of Sarcoidosis Treatment and Clinical Trials
Mar 06, 2023
Episode 81 | Wade Tomlinson tries to walk away from sarcoidosis.
Feb 20, 2023
Episode 80 | John riffs on sarcoidosis clinical trial opportunities and ... Disney
Feb 06, 2023
Episode 79a | Royce Robertson is Fighting Sarcoidosis from the seat of his bike!
Jan 23, 2023
Episode 79 | Sarc Fighter Royce Robertson bares his sole while looking for a way to help fight Sarcoidosis
Jan 16, 2023
Episode 78 | Dr. John Belperio at UCLA has done a deep dive into the state of Sarcoidosis.
Jan 02, 2023
Episode 77 | Covid Vaccines and Sarcoidosis: Surprising new research from the University of Illinois Chicago
Dec 19, 2022
Episode 76 | Leeanne West is a scientist who discovered Sarcoidosis in her own life.
Dec 05, 2022
Episode 75 | FSR Leaders Dr. Louise Perkins and CEO Mary McGowan on all the current progress.
Nov 21, 2022
Episode 74 | A Doctor and Two Sarc Fighters Urge Black Americans to Join Clinical Trials
Nov 07, 2022
Episode 73 | FSR is looking for a few good volunteers. Maybe you.
Oct 24, 2022
Episode 72 | Sarc Fighter Regina Gordon shares her battle.
Oct 19, 2022
Episode 71 | Andrew Brandt is fighting back - for all of us.
Sep 26, 2022
Episode 70 | Laura Ward thought she had cancer... but it was sarcoidosis.
Sep 12, 2022
Episode 69 | Kinevant Sciences is researching namilumab – a potential new drug for sarcoidosis
Aug 29, 2022
Episode 68 | Profound thoughts from a dying man.
Aug 15, 2022
Episode 67 | Kristi Hedge begins her sarcoidosis journey.
Aug 01, 2022
Episode 66 | Unveiling Possibilities - All about the upcoming Sarcoidosis Summit from the Foundation for Sarcoidosis Research
Jul 18, 2022
Episode 65 | aTyr Pharma is getting closer to a potential breakthrough in treating Sarcoidosis
Jul 11, 2022
Episode 64 | The Leadership Team at the Foundation for Sarcoidosis Research with an exciting announcement!
Jun 27, 2022
Episode 63 | The birds and finding contentedness
Jun 06, 2022
Episode 62 | Garrie Farrow had troubles wearing her cute shoes. The problem was in her lungs.
May 23, 2022
Episode 61 | Expectations and Happiness with Sarcoidosis
May 09, 2022
Episode 60 | Jack Boepple’s cardiac sarcoidosis hit him like a linebacker. And he would know.
Apr 25, 2022
Episode 59 | Angelica wants to know how her grandmother died.
Apr 11, 2022
Episode 58 | Time to get ready for Sarcoidosis Awareness Month!
Mar 28, 2022
Episode 57 | Sarc Patient Robin Goble has lost her balance, but she’s fighting to keep her life upright.
Mar 14, 2022
Episode 56 | Dr. Shu-Yi Liao wants to know how sarcoidosis moves in the body.
Feb 28, 2022
Episode 55 | Erica Courtenay-Mann Has Sarcoidosis on her Vocal Cords. But she is speaking out!
Feb 14, 2022
Bonus Episode | Universal Barriers in Dealing with a Chronic Disease: A Sarcoidosis Perspective
Feb 07, 2022
Episode 52 | Dr Divya Patel and Novartis are looking for a few good Sarc patients
Jan 31, 2022
Episode 54 | Calvin Harris’ lungs are clogged with Sarcoidosis -- but he wants to run a marathon.
Jan 17, 2022
Episode 53 | Reasons for hope in the fight against Sarcoidosis in 2022
Jan 03, 2022
Episode 51 | Amy Whaley fights on through a life that was different than she imagined.
Dec 20, 2021
Episode 50 | Warren Robinson‘s father died suddenly. And the family struggled to find out why.
Dec 06, 2021
Episode 49 | Adam Bernardi has sarc in all the wrong places.
Nov 22, 2021
Episode 48 | Dr. Jinny Tavee is a neurosarcoidosis specialist with a unique approach to fighting the disease
Nov 08, 2021
Episode 47 | Women of Color Fight Back!
Oct 25, 2021
Episode 46 | Lisa Pflug is early in her journey with neurosarcoidosis, but already suffering the effects.
Oct 11, 2021
Episode 45 | Fantastic results from trial of new sarcoidosis drug from aTyr Pharma
Sep 27, 2021
Episode 44 | Brandi Cleaver faces down what may be a terminal case of sarcoidosis.
Sep 13, 2021
Episode 43 | Joe McCorry has been fighting Sarcoidosis for a long, long time.
Aug 30, 2021
Episode 42 | Juliet Coffer can barely walk without losing her breath. But she was determined to step up to fight sarcoidosis.
Aug 16, 2021
Episode 41| Dr. Matt Baker is researching a promising new drug to fight sarc at Stanford University.
Aug 02, 2021
Episode 40 | Writer Rebecca Stanfel is bringing the sarcoidosis message to the masses. And, man, does she know the story.
Jul 19, 2021
Episode 39 | Dr. William Damsky may be on the verge of a sarcoidosis breakthrough.
Jul 05, 2021
Episode 38 | Sarcoidosis is world wide. How they fight it in the UK
Jun 21, 2021
Episode 37 | Sarc Fighter Charlton Harris is having a hard time breathing. A REALLY hard time.
Jun 07, 2021
Bonus Episode | Sarcoidosis and COVID-19 Presented by the Foundation for Sarcoidosis Research
May 31, 2021
Episode 36 | Sarc Fighter Janet Mockovciak is giving it her all.
May 24, 2021
Episode 35 | Nadia Silvera may need a double lung transplant. Thanks sarcoidosis.
May 10, 2021
Bonus Episode | Sarcoidosis Town Hall: Is Prednisone "Poison?" presented by the Foundation for Sarcoidosis Research
May 03, 2021
Episode 34 Lindsey Norenberg on how to eat to beat inflammation.
Apr 26, 2021
Episode 33 | John Riffs on an encounter with a Doc who is not Sarc Aware!
Apr 12, 2021
Episode 32 | April is Sarcoidosis Awareness month! Tricha Shivas tells us how to fight back!
Apr 05, 2021
Episode 31 | Susan Bassi's Life slowed to a crawl when Sarcoidosis made its appearance.
Mar 29, 2021
Episode 30 Kevin McDevitt's sarcoidosis spread from his finger ... to his heart!
Mar 15, 2021
Episode 29 Susie Torres fights for diagnosis as she battles Sarc and other illnessess. And - I explore the anti-inflammatory Elimination Diet
Mar 01, 2021
Episode 28 Sarc Fighter Andrena Johnson is making a Sacroidosis Documentary
Feb 15, 2021
Episode 27 Diet and CBD - Can they be effective? Ryan Norenberg offers proof.
Feb 01, 2021
Episode 26 Amy Cobb is a Nurse Practitioner treating COVID Patients - And Fighting Sarcoidosis in Her Own Body.
Jan 18, 2021
Episode 25 Tracy Bawtinheimer was a world traveling executive until...
Jan 04, 2021
Episode 24 Sarc Fighter Frank Rivera fights long Covid-19
Dec 28, 2020
Episode 23 Even doctors can get sarcoidosis. Taufiq Ahmad shares the story of his decline.
Dec 07, 2020
Episode 22 Meet Mary McGowan the new CEO of the Foundation for Sarcoidosis Research
Nov 16, 2020
Episode 21 Why Sarc is more prevalent in women with Ozioma Chioma PhD
Nov 09, 2020
Episode 20 Mark Landiak was hiking the Grand Canyon, when ...
Oct 26, 2020
Episode 19 Desiree was a cover girl for health ... until.
Oct 12, 2020