HAE Speaks
By US HAEA
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Episodes: 67
Description
HAE Speaks, a podcast series on important Hereditary Angioedema (HAE) topics. Listen to patients, caregivers, and medical professionals discuss strategies to manage stress, prepare for a visit with your HAE specialist, care for a loved one with HAE, what to expect when you are newly diagnosed, the road to treatment, and much more.
| Episode | Date |
|---|---|
|
Roundtable with the HAEA CEO – A Conversation with KalVista’s Chief Commercial Officer
|
May 13, 2026 |
|
Perspectives from a Mother and Daughter with HAE
|
May 08, 2026 |
|
Supporting Adult Scholars in the HAE Community: Tina's Story
|
Feb 26, 2026 |
|
Don't tough it out: Flip the Switch on HAE Attacks
|
Feb 13, 2026 |
|
Episode 60: End of Year Legislative Update
|
Dec 17, 2025 |
|
Episode 59: What’s next for Hereditary Angioedema - What You Need to Know
|
Dec 05, 2025 |
|
Episode 58: 10 Must-Ask Insurance Questions for HAE
|
Oct 09, 2025 |
|
Episode 56: Understanding Medicare Enrollment
|
Aug 21, 2025 |
|
Episode 55: CHAPTER-3 , Pharvaris Oral Prophylaxis Phase 3 Study
|
Jul 07, 2025 |
|
Episode 54: How to Ease Your Mind
|
Jun 18, 2025 |
|
Episode 53: Legislative Update from our Washington Office
|
Jun 11, 2025 |
|
Episode 52: End of Progression: Understanding the Full Spectrum of a Bradykinin-mediated Angioedema Attack
|
May 05, 2025 |
|
Episode 51: Legislative Series - Insights from Two Grassroots Leaders
|
Apr 03, 2025 |
|
Episode 50: Innovations in HAE with KalVista
|
Oct 31, 2024 |
|
Episode 49: Ahead of the Swell: Uncovering the Target That Could Stop Attacks
|
Aug 20, 2024 |
|
Episode 48: Spotlight on HAEA Grassroots Advocacy Network Regional Leaders
|
Aug 05, 2024 |
|
Episode 47: US HAEA National Summit Ask the Experts Q&A
|
May 29, 2024 |
|
Episode 46: My Cross-Country Trip Across the United States to Raise HAE Awareness
|
Apr 01, 2024 |
|
Episode 45: HAEA DIY Community Events - Red Lake Nation HAE Awareness Walk
|
Feb 05, 2024 |
|
HAE, the holidays and you. Navigating the holiday season with HAE
|
Dec 19, 2023 |
|
Episode 44: A word from the HAE Community
|
Nov 30, 2023 |
|
Episode 43: Kate is living Beyond HAE
|
Nov 01, 2023 |
|
Episode 42: Dusty & Mark’s HAE Journey
|
Oct 01, 2023 |
|
Episode 41: Back to School tips with Mandy
|
Sep 01, 2023 |
|
Episode 40: College preparedness & HAE
|
Aug 01, 2023 |
|
Episode 39: The importance of mindfulness
|
Jul 05, 2023 |
|
Episode 38: Hosting an HAE DIY event
|
Jun 01, 2023 |
|
Episode 37: Transitioning to Caregiver
|
May 15, 2023 |
|
Episode 36: Dr. Riedl discusses the HAEA shared decision making tool.
|
Apr 06, 2023 |
|
Episode 34: Lora's HAE Journey
|
Mar 13, 2023 |
|
Episode 32: Navigating college with HAE
|
Mar 09, 2023 |
|
Gene Therapy in HAE: A look into BioMarin’s Investigational Study
|
Feb 06, 2023 |
|
Episode 34: A Newly Diagnosed Perspective
|
Jan 31, 2023 |
|
Episode 32: HAEA year in review
|
Jan 09, 2023 |
|
Episode 31- Jess shares the importance of Advocating for HAE
|
Nov 01, 2022 |
|
Episode 30- Adina's HAE journey
|
Oct 06, 2022 |
|
Episode 29- Bobbi shares her journey with HAE
|
Sep 07, 2022 |
|
Orladeyo: Red shares his HAE journey
|
Aug 23, 2022 |
|
Episode 28- Troyce provides tips about going back to school
|
Aug 01, 2022 |
|
Episode 27- Abby shares her insights about the HAEA Brady Club
|
Jul 01, 2022 |
|
Episode 26- Missy & Sarah discuss the 2022 HAE IN-MOTION®
|
May 31, 2022 |
|
Episode 25- Lisa & Mike share information about HAE day :-) 2022
|
May 05, 2022 |
|
Episode 24- Aysha shares her HAE journey
|
Apr 01, 2022 |
|
Episode 23- Troyce provides tips about insurance in 2022
|
Feb 28, 2022 |
|
Episode 20- HAEA Year in Review
|
Jan 28, 2022 |
|
Episode 22- Bobbi shares her HAE journey
|
Jan 28, 2022 |
|
Episode 21- HAEA Meet and Greet Events
|
Jan 03, 2022 |
|
Episode 19- Jenny's HAE Journey
|
Oct 27, 2021 |
|
Episode 18- Christine and Mike: Capitol Hill Campaign
|
Oct 04, 2021 |
|
Episode 17- Antonio and Jack: HAEA DIY events
|
Aug 30, 2021 |
|
Episode 16: Sonia's HAE Journey
|
Jul 30, 2021 |
|
Episode 15: Lisa: HAE IN-MOTION®
|
Jun 30, 2021 |
|
Episode 14: Chaeli: HAE and Travel
|
May 28, 2021 |
|
Episode 13: Lisa: HAE events
|
May 04, 2021 |
|
Episode 12: Jess's HAE Journey
|
Apr 06, 2021 |
|
Episode 11: HAE and Education
|
Mar 01, 2021 |
|
Episode 10: Hannah's HAE Journey
|
Feb 01, 2021 |
|
Episode 9: HAE and pregnancy
|
Jan 04, 2021 |
|
Episode 8: 2020 Team HAEA
|
Nov 29, 2020 |
|
Episode 7: HAEA Support
|
Nov 02, 2020 |
|
Episode 6: Advocating for HAE
|
Sep 21, 2020 |
|
Episode 5: Road to Treatment
|
Aug 21, 2020 |
|
Episode 4: Life before and after an HAE diagnosis of a child.
|
Aug 03, 2020 |
|
Episode 3: Ongoing Research for New HAE treatments.
|
Jul 03, 2020 |
|
Episode 2: COVID interviews
|
Jun 02, 2020 |
|
Episode 1: Life as a Caregiver (Missy M.)
|
May 01, 2020 |
|
What is HAE?
|
May 01, 2020 |