Team Vasculitis: Thriving through Life with Chronic Illness

By Felicia Distad

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Category: Medicine

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Episodes: 227

Description

Life with any chronic illness is a lonely struggle. I don’t have to tell you that. That’s why I’m here. I want you to know that you are NOT alone. I want you to feel seen, heard, and supported. Here, we’re in it together. Here, you have someone who understands. Here, I remind you that you are part of a Team… and by supporting one another and collaborating together, we can do more than survive. We can thrive.

Episode Date
Ep 226 - Save Your Emotional Energy for the People Who Matter
Jan 02, 2024
Ep 225 - Gift Ideas for People with Chronic Illnesses
Dec 12, 2023
Ep 224 - Let's Talk about Azathioprine (Imuran)
Dec 05, 2023
Ep 223 - How to Survive the Holiday Season with a Chronic Illness
Nov 28, 2023
Ep 222 - How to Show Support for Someone with a Chronic Illness
Nov 07, 2023
Ep 221 - [Part 7] Raising Kids as a Mom with Granulomatosis with Polyangiitis (formerly Wegener's Vasculitis)
Oct 31, 2023
Ep 220 - [Part 6] Postpartum with Granulomatosis with Polyangiitis (formerly Wegener's Vasculitis)
Oct 24, 2023
Ep 219 - [Part 5] My Pregnancies with Granulomatosis with Polyangiitis (formerly Wegener's Vasculitis)
Oct 17, 2023
Ep 218 - [Part 4] The Challenges of Getting Pregnant with Granulomatosis with Polyangiitis (formerly Wegener's Vasculitis)
Oct 10, 2023
Ep 217 - [Part 3] Azathioprine Treatment with Granulomatosis with Polyangiitis (formerly Wegener's Vasculitis)
Oct 03, 2023
Ep 216 - [Part 2] Rituximab Treatment Journey with Granulomatosis with Polyangiitis (Wegener's Vasculitis)
Sep 26, 2023
Ep 215 - [Part 1] Onset and Diagnosis of ANCA Vasculitis - Granulomatosis with Polyangiitis (formerly Wegener's)
Sep 19, 2023
Ep 214 - How to Regulate Your Nervous System with a Chronic Illness
Sep 12, 2023
Ep 213 - The Habits I've Built to Support, Heal and Strengthen my Chronically Ill Body
Sep 05, 2023
Ep 212 - The Mental Toll of Isolation with Chronic Illness
Aug 29, 2023
Ep 211 - Should I Have Kids After Onset of my Chronic Illness - Pregnancy, Medications, Morals?
Aug 23, 2023
Ep 210 - Clinical Lab Results vs OPTIMAL Lab Results - What you Need to Understand
Aug 15, 2023
Ep 209 - Your Guide to Surviving Your First Year of Chronic Illness
Aug 08, 2023
Ep 208 - Negative Outcomes from Stress Don't Have to Control Your Life
Aug 01, 2023
Ep 207 - Chronic Illness Warriors: You Are Strong, Brave, Kind and True
Jul 25, 2023
Ep 206 - Chronic Illness Reminder: Social Media isn't Reality
Jul 18, 2023
Ep 205 - You Deserve a Medical Team that Believes You
Jul 11, 2023
Ep 204 - You have the Freedom to Choose Your Chronic Illness Care
Jul 04, 2023
Ep 203 - Your Chronic Illness Doesn't Make you a Bad Parent
Jun 27, 2023
Ep 202 - Get the Support you Need in Between Doctors Appointments
Jun 20, 2023
Ep 201 - The Importance of Boundaries
Jun 13, 2023
Ep 200 - Interview with Chantel Laughlin a Money and Mindset Coach
Jun 08, 2023
Ep 199 - Interview with Holly Bertone Mindset and Gratitude Coach
Jun 01, 2023
Ep 198 - You are Worth Loving, Chronic Illness and All
May 30, 2023
Ep 197 - Vasculitis Insights: Giant Cell Arteritis (Temporal Arteritis)
May 23, 2023
Ep 196 - Vasculitis Insight: Behcet’s Disease
May 20, 2023
Ep 195 - Vasculitis Insights: Cutaneous Small-Vessel Vasculitis aka Leukocytoclastic vasculitis
May 19, 2023
Ep 194 - Vasculitis Insight: ANCA Vasculitis - Eosinophilic Granulomatosis with Polyangiitis
May 18, 2023
Ep 193 - Vasculitis Insights: Cryoglobulinemia
May 17, 2023
Ep 192 - The Importance of Building HEALTHY Relationships with your Chronically Ill Friends
May 16, 2023
Ep 191 - Navigating a Career and Motherhood with a Chronic Illness
May 16, 2023
Ep 190 - Reclaiming Your Health and Fitness with Kayla ProKop
May 16, 2023
Ep 189 - Vasculitis Insights: Cogan’s Syndrome
May 06, 2023
Ep 188 - Vasculitis Insights: Aortitis
May 05, 2023
Ep 187 - Vasculitis Interview with Takayasu's arteritis warrior Lucy De Matos
May 04, 2023
Ep 186 - Vasculitis Insights: Anti-GBM/Goodpasture's Syndrome
May 03, 2023
Ep 185 - Vasculitis Inights: Central Nervous System Vasculitis
May 02, 2023
Ep 184 - Vasculitis Insights: What is Vasculitis
May 01, 2023
Ep 183 - Cold Therapy and Chronic Illness
Apr 25, 2023
Ep 182 - 10 Ways to Manage Your Mental Health when You Have a Chronic Illness
Apr 18, 2023
Ep 181 - Why I became a Chronic Illness Advocate
Apr 11, 2023
Ep 180 - My Favorite Lies Doctors Tell
Apr 04, 2023
Ep 179 - They Won't Understand... and You Need to be Okay with That
Mar 28, 2023
Ep 178 - [Personal Story] There is Better Care out there if You Have a Chronic Illness or a Rare Disease
Mar 21, 2023
Ep 177 - How to Choose the Right Functional Medicine Practitioner when You're Chronically Ill so you Don't Waste Money!
Mar 14, 2023
Ep 176 - We Need to Be Honest with One Another
Mar 07, 2023
Ep 175 - What You Need to Know About Living with a Rare Disease
Feb 28, 2023
Ep 174 - Please Don't Assume I'm Miserable because I have a Chronic Illness
Feb 21, 2023
Ep 173 - Interview with Kay Prokop: Chronic Illness and Fitness
Feb 16, 2023
Ep 172 - Well Crap... I'm Having a Flare of my Chronic Illness
Feb 14, 2023
Ep 171 - Interview with Life + Love Coach Ariane Olshansky: Navigating Committed Relationships and Chronic Illness
Feb 09, 2023
Ep 170 - Rare Disease Awareness
Feb 07, 2023
Ep 169 - Interview with Dr. Michelle Arietta DC - Chiropractic Care and Chronic Illness
Feb 03, 2023
Ep 168 - [PEP TALK] Build a Life You Love with Your Chronic Illness
Jan 31, 2023
Ep 167 - A Love Letter to my Chronically Ill Friend
Jan 24, 2023
Ep 166 - Interview with Possible PAN Vasculitis Warrior Danielle Roszkowski-Rayo- A Story of Vaccine Injury
Jan 19, 2023
Ep 165 - Imagine Being Loved, Just as You Are - Chronic Illness or Not
Jan 17, 2023
Ep 164 -Life with Chronic illness Makes Things Different - NOT LESS
Jan 10, 2023
Ep 163 - Chronic Illness Broken Beauty Deserves Acceptance, Not Grace
Jan 03, 2023
TV - Ep 162 - What You Need to Know about the 23 and Me ANCA Vasculitis Rare Disease Study
Dec 27, 2022
Ep 161 - Why Functional Medicine is Vital for Chronic Illness
Dec 20, 2022
Ep 160 - What I've Learned from a Decade of Chronic Illness
Dec 16, 2022
Ep 159 - Stop Telling Yourself Lies Just Because You Have a Chronic Illness
Dec 07, 2022
Ep 158 - What is Team Vasculitis All About? Chronically Ill Friend, I'm Glad You Asked!
Nov 29, 2022
Ep 157 - I want to be told Even with my Chronic Illness, I am ENOUGH!
Nov 22, 2022
Ep 156 - Your Symptoms May Not Be the Same if You're Chronically Ill
Nov 15, 2022
Ep 155 - Don't Worry. We know You're Not Faking Your Chronic Illness
Oct 25, 2022
Ep 154 - Chronic Illness is Misunderstood. Let's Change That.
Oct 11, 2022
Ep 153 - Big Changes when You're Chronically Ill
Sep 06, 2022
Ep 152 - EMPOWERED with Kara Kauffman a Manifestation Mentor + Life Coach
Aug 27, 2022
Ep 151 - Chronic Illness Flares Happen and They're NOT Your Fault
Aug 23, 2022
Ep 150 - EMPOWERED with Brooklyn Dykins Mindset + Mindfulness Coach
Aug 20, 2022
Ep 149 - Ashton Kutcher HAD Vasculitis?
Aug 16, 2022
Ep 148 - EMPOWERED with Sarah Hines a Self Empowerment Coach
Aug 13, 2022
Ep 147 - Is it Your Chronic Illness or Something Else?
Aug 09, 2022
Ep 146 - Of Course You've Changed Since You Became Chronically Ill
Aug 02, 2022
Ep - 145 The Mental Health Struggle when You're Chronically Ill is REAL!
Jul 26, 2022
Ep 144 - Your Chronic Illness Doesn't Mean You Deserve Less
Jul 19, 2022
Ep 143 - Acknowledging that onset of a chronic illness when you're young is different
Jul 12, 2022
Ep 142 - Chronic Illness Truth No One Tells You
Jul 05, 2022
Ep 141 - Vasculitis Interview with IGA Vasculitis Warrior Hannah Thais
Jun 30, 2022
Ep 140 - The Truth About Chronic Illness and Remission
Jun 28, 2022
Ep 139 - Get Support for Your Chronic Illness from... ANIMALS
Jun 21, 2022
Ep 138 - Chronic Illness Survival Tip: Don't Waste Energy
Jun 14, 2022
Ep 137 - You Deserve to go from Barely Surviving to THRIVING with Chronic Illness
Jun 07, 2022
Ep 136 - How Often Do You Wish You Were Healthy?
May 31, 2022
Ep 135 - Why You Need to Track Your Chronic Illness Symptoms
May 24, 2022
Ep 134 - Vasculitis Interview with Behcet's Disease Warrior August Rocha
May 19, 2022
Ep 133 - Let's Talk Chronic Illness and Mental Health
May 17, 2022
Ep 132 - What You Need to Know About Exercise and Vasculitis
May 10, 2022
Ep 131 - Stop Medical Gaslighting by Checking Your After Visit Summary and Notes
May 03, 2022
Ep 130 - How to Prepare for a Doctors Appointment when You're Chronically Ill
Apr 26, 2022
Ep 129 - Chronically Ill or not - Rest is Productive
Apr 19, 2022
Ep 128 - We Need to ELEVATE Patient Voices and the Vasculitis Foundation and the Medical Community Aren't Doing that. So WE NEED TO
Apr 12, 2022
Ep 127 - Moms Supporting Moms. Interview with Chronic Illness Advocate Melinda Martin from Hey Momme
Apr 07, 2022
Ep 126 - Anxiety Around the Unpredictability of Making Plans with Chronic Illness
Apr 05, 2022
Ep 125 - It's NOT Chronic Illness vs Cancer!
Mar 29, 2022
Ep 124 - Your Loved One is Dealing with Your Chronic Illness Too
Mar 22, 2022
Ep 123 - Chronic Illness and Nutrition: Interview with Dietician from GutPersonal Jillian Smith
Mar 17, 2022
Ep 122 - You Might Not Have a Choice About Your Illness. But You Do Have a Choice in How to Live with It!
Mar 15, 2022
Ep 121 - Chronic Illness and the Struggle with Ableism in the Workforce
Mar 08, 2022
Ep 120 - Chronic Illness and Supplements: Discussion with Brdigitte Carroll from Gut Personal
Mar 03, 2022
Ep 119 - American College of Rheumatology Granulomatosis with Polyangiitis and Microscopic Polyangiitis Relapse Therapy Vasculitis Recommendation Break Down
Mar 01, 2022
Ep 118 - Vasculitis Interview with Behcet's Disease Warrior with Cat Ray
Feb 24, 2022
Ep 117 - American College of Rheumatology Granulomatosis with Polyangiitis and Microscopic Polyangiitis REMISSION Therapy Vasculitis Recommendation Break Down
Feb 22, 2022
Ep 116 - Vasculitis Interview with Granulomatosis with Polyangiitis Warrior Mandy Livingston
Feb 17, 2022
EP 115 - American College of Rheumatology Granulomatosis with Polyangiitis and Microscopic Polyangiitis Induction Therapy Vasculitis Recommendation Break Down
Feb 15, 2022
Ep - 114 - Vasculitis Interview with Granulomatosis with Polyangiitis Warrior Ellie
Feb 10, 2022
Ep 113 - Chronic Illness Anxiety with Test Results + Doctors Appointments
Feb 08, 2022
Ep 112 - Vasculitis Interview with Granulomatosis with Polyangiitis Warrior Bri Doyle
Feb 03, 2022
Ep 111 - Vasculitis, Chronic Illness... Whatever. We're all in this TOGETHER and We're all on the Same Team
Feb 01, 2022
Ep 110 - Saying Goodbye to Fight Like a Mama and Hello to Team Vasculitis
Jan 25, 2022
Ep 109 - Drowning in Chronic Illness
Jan 18, 2022
Ep 108 - Interview with My Little Seedlings Owner Alexis Distad
Jan 13, 2022
Ep 107 - Chronically Ill Friend, Listen Up! You Need to Know This!
Jan 11, 2022
Ep 106 - My Struggles with the Vasculitis Foundation
Jan 04, 2022
Ep 105 - The Importance of Community when You're Chronically Ill
Dec 28, 2021
Ep 104- From this Vasculitis Warrior to You... Have Hope!
Dec 21, 2021
Ep 103 - The Ways You're Told You're Doing Something Wrong as Someone with Chronic Illness
Dec 14, 2021
Ep 102 - Wegener's Vasculitis Series with Gerry Ugalde
Dec 09, 2021
Ep 101 - With Chronic Illness, It's Not Vanity. It's Body Dysmorphia.
Dec 07, 2021
Ep 100 - Becoming Stronger With Help
Nov 30, 2021
Ep 99 - Messy and Mindful Moment: Consistency Wins Every Time
Nov 29, 2021
Ep 98 - Thankful, Grateful, Blessed... Finding the Positive in Chronic Illness
Nov 25, 2021
Ep 97 - What I Wish I Knew About Nutrition When I Was First Diagnosed
Nov 23, 2021
EP 96 - Messy and Mindful Moment: Judgement Free Zone
Nov 22, 2021
Ep 95 - Struggling with Gratitude because of Chronic Illness
Nov 16, 2021
Ep 94 - Messy and Mindful Moment: Social Media is NOT a Real Place
Nov 15, 2021
Ep 93 - Wegener's Vasculitis Series with Dena Williams
Nov 11, 2021
Ep 92 - You Aren't Sick Because You're Overweight!
Nov 09, 2021
Ep 91 - Messy and Mindful Moment: Find Passion
Nov 08, 2021
EP 90 - Struggles the Chronic Community Faces when Travelling
Nov 02, 2021
Ep 89 - Messy and Mindful Moment: Say NO to More Things!
Nov 01, 2021
Ep 88 - Romantic Love and Chronic Illness
Oct 26, 2021
Ep 87 - Messy and Mindful Moment: Being Brave Enough to Be Authentically You
Oct 25, 2021
Ep 86 - Wegener's Vasculitis Series with Holly
Oct 21, 2021
Ep 85 - Having a Chronic Illness Doesn't Affect Your Worth
Oct 19, 2021
Ep 84 - Messy and Mindful Moment: Dealing with Overwhelm IN THE MOMENT
Oct 18, 2021
Ep 83 - Surviving Threenagers!!!!
Oct 12, 2021
Ep 82 - Messy and Mindful Moment: It's Okay to Sit in the Suck
Oct 11, 2021
Ep 81 - Chronically Low Ferritin, but NOT Anemic? ME TOO!
Oct 05, 2021
Ep 80 - Messy and Mindful Moment: Clear is Kind
Oct 04, 2021
Ep 79 - Parents with Chronic Conditions You AREN'T Failing
Sep 28, 2021
Ep 78 - Messy and Mindful Moment: Staying Motivated When You Lose Motivation
Sep 27, 2021
Ep 77 - Here's to All the Ladies Getting Through the Chaos
Sep 21, 2021
Ep 76 - Messy and Mindful Moment: Re-Prioritizing for Success
Sep 20, 2021
Ep 75 - Chronic Illness and Travel
Sep 14, 2021
Ep 74 - Messy and Mindful Moment: Burnout
Sep 13, 2021
Ep 73 - Shout Out to YOU for Getting it Done!
Sep 07, 2021
Ep 72 - Messy and Mindful Moment: Practice Makes You More Comfortable
Sep 06, 2021
Ep 71 - Let's Talk About Sex... Being Touched Out and Resenting Your Partner
Aug 31, 2021
Ep 69 - Messy and Mindful Moment: Boundaries
Aug 30, 2021
Ep 69 - Wegener's Vasculitis Series with Emily Kyne
Aug 26, 2021
Ep 68 - Let's Talk About Sex... and Hormones
Aug 24, 2021
Ep 67 - Messy and Mindful Moment: Joy in Chaos
Aug 23, 2021
Ep 66 - Don't Waste Time Waiting
Aug 17, 2021
Ep 65 - Mom Boss Series with Trauma Coach Jessica V
Aug 12, 2021
Ep 64 - Raising Kids to Have a Healthy Relationship with Food
Aug 10, 2021
Ep 63 - When the Ceiling Falls In... Literally
Aug 03, 2021
Ep 62 - Dead Parent's Club
Jul 27, 2021
Ep 61 - Chronic Illness: Wegener's Vasculitis Series with Cassie May
Jul 22, 2021
Ep 60 - Abelism in Health Care
Jul 20, 2021
Ep 59 - Raising Positive and Grateful Kids
Jul 13, 2021
Ep 58 - Wegener's Vasculitis Series with Sara McDermott
Jul 08, 2021
Ep 57 - Don't Be the Person Afraid to Have the Hard Conversations
Jul 06, 2021
Ep 56 - The Power of Vulnerability
Jun 29, 2021
Ep 55 - Chronic Illness: Lupus with Courtney Smith
Jun 24, 2021
Ep 54 - Self Confidence and You
Jun 22, 2021
Ep 53 - Summer Survival Tips for Moms
Jun 15, 2021
Ep 52 - Mom Boss Series with Alisha Mendez
Jun 10, 2021
Ep 51 - The Power of Decluttering
Jun 08, 2021
Ep 50 - Just Do the Thing
Jun 01, 2021
Ep 49 - It's Okay to Outgrow Friends
May 25, 2021
Ep 48 - How We Keep Our Love Alive
May 18, 2021
Ep 47 - Chronic Illness: HSP Vasculitis with Kelly Wasko
May 13, 2021
Ep 46 - The Power of Women Working Together
May 11, 2021
Ep 45 - Can Women "Have it All"?
May 04, 2021
Ep 44 - Acceptance Not Grace
Apr 27, 2021
Ep 43 - I Need a Pump Up. Maybe You Do too!
Apr 20, 2021
Ep 42 - Mom Boss Series with Monika Larson
Apr 15, 2021
Ep 41 - Health in Your 30s - What You Need to Know
Apr 13, 2021
Ep 40 - When Doctors Don't Have Answers
Apr 06, 2021
Ep 39 - Stay at Home Moms are Ambitious, Hard Working and Worthy
Mar 30, 2021
Ep 38 - Friendship in Your 30s
Mar 23, 2021
Ep 37 - Chronic Illness Series: ALS with Allie Schmidt
Mar 18, 2021
Ep 36 - 1% is All it Takes
Mar 16, 2021
Ep 35 - Feeling that Extreme Mom Burn Out
Mar 09, 2021
Ep 34 - No One Deserves Access to You
Mar 02, 2021
Ep 33 - Chronic Illness: Wegener's Vasculitis Series with Jane L. Edwards
Feb 25, 2021
Ep 32 - My Journey with Wegener's Part 2
Feb 23, 2021
Ep 31 - Chronic Illness: Wegener's Vasculitis Series with Nicole Boynton
Feb 18, 2021
Ep 30 - Chronic Illness: You're Still You... But Not
Feb 16, 2021
LET THEM PLAY CA
Feb 14, 2021
Ep 29 - Chronic Illness: Wegener's Vasculitis Series with Nikki Bagley
Feb 11, 2021
Ep 28 - Chronic Illness: Understanding Your Chronically Ill Loved One
Feb 09, 2021
Ep 27 - Chronic Illness: Wegener's Vasculitis Series with Art Diaz
Feb 04, 2021
Ep 26 - Chronic Illness: Feeling Dismissed and Unheard
Feb 02, 2021
Ep 25 - The Science Behind Practicing Gratitude
Jan 26, 2021
Ep 24 - Who You Are Right Now Matters Too! With Becky from Relatable Much
Jan 21, 2021
Ep 23 - Let it Go... Mom Guilt That Is
Jan 19, 2021
Ep 22 - As Moms, We ALL Feel Like We're Failing
Jan 12, 2021
Ep 21 - Real Talk: Child Abduction and Human Trafficking
Jan 05, 2021
Ep 20 - Getting Ready for the New Year
Dec 29, 2020
Ep 19 - Tiny Humans and Their Big Feelings
Dec 22, 2020
Ep 18 - Body Positivity and Self Love with Jeni Ness
Dec 17, 2020
Ep 17 - Grieving and the Holiday Season
Dec 15, 2020
Ep 16 - How to Avoid Holiday Weight Gain
Dec 08, 2020
Ep 15 - Tips for Managing Holiday Anxiety
Dec 01, 2020
Ep 14 - Boundaries with your Loved Ones
Nov 24, 2020
Ep 13 - How to Use Your Enneagram to Support Fulfillment
Nov 19, 2020
Ep 12 - The Jump from One Kid to Two
Nov 17, 2020
Ep 11 - Fibroids are Literally Life Draining
Nov 10, 2020
Ep 10 - Love Wins Today and Everyday
Nov 03, 2020
Ep 09 - When You Mess Up With Your Kids
Oct 27, 2020
Ep 08 - Fertility Journey - Getting Pregnant is More Difficult than you Think
Oct 20, 2020
Ep 07 - Changing a Relationship's Rules
Oct 13, 2020
Ep 06 - Overcoming the Disconnect of 2020
Oct 06, 2020
Ep 05 - What Are Your Daughter's Names
Sep 29, 2020
Ep 04 - My Journey with Wegener's Vasculitis Part 1
Sep 22, 2020
Ep 03 - Inspired Women Inspire Women
Sep 15, 2020
Ep 02 - Choose Kindness
Sep 08, 2020
Ep 01 - Let's Talk About All the Things
Sep 03, 2020