pRETTy happy. | Hope and Rett syndrome
By Sarah and Sam
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Category: Parenting
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Subscribers: 1
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Episodes: 65
Description
Bringing families and friends together from the Rett syndrome community to discuss life, research, and just have fun. New episodes are released every other Monday morning ... or when life let's us have a break. lol
| Episode | Date |
|---|---|
|
57 | We're back!!!
|
Aug 12, 2024 |
|
A little update on us.
|
May 15, 2023 |
|
56 | Adapting toys is easy, Usree Bhattacharya talks linguistics, and more!
|
Apr 17, 2023 |
|
55 | Trofinetide (aka Daybue) is approved!, Comunication chat w/ Rett University's Susan Norwell, and more!
|
Apr 03, 2023 |
|
54 | Big funding for Rett research, Duds and Studs of Equipment, and more!
|
Mar 06, 2023 |
|
53 | Businesses started because of Rett, What is a Rett clinic w/ Tristen Dinkel, and more!
|
Feb 20, 2023 |
|
52 | Can Neurogene cure Rett?, Dionne Snyders shares struggles of starting a school (Part 2), and more!
|
Feb 06, 2023 |
|
51 | What we've missed these last 2 months, Build a school and they will come w/ Dionne Snyders (Part 1), and more!
|
Jan 23, 2023 |
|
50 | We are thankful for..., Looking back at our most memorable episodes, and more!
|
Nov 28, 2022 |
|
49 | More money invested into Rett syndrome research, Girl Power 2 Cure's Kevin Pierce talks Rett, and more!
|
Nov 14, 2022 |
|
We're taking a break... for 1 week...
|
Nov 07, 2022 |
|
48 | Girl w/ Rett joins college softball team, Meet Karley Boczek - mum to Charlotte, and more!
|
Oct 24, 2022 |
|
47 | A few favorite Rett syndrome awareness posts, Ethical communcation w/ Gerna Scholte (Part 3), and more!
|
Oct 10, 2022 |
|
46 | Trofinetide accepted for review, Augmentative and adaptive communication w/Gerna Scholte (Part 2), and more!
|
Sep 26, 2022 |
|
45 | Preparing for Rett Syndrome Awareness Month, Discussing effective communication w/ Gerna Scholte (Part 1), and more!
|
Sep 12, 2022 |
|
44 | Updates in the world of Rett, Our car & such, and more!
|
Aug 29, 2022 |
|
43 | Back to school, Chatting with Anna Dance-Heimburger about self-care, and more!
|
Aug 15, 2022 |
|
42 | Storing all those medical files you've got, cont. w/ Melissa & David Benay (Part 2), and more!
|
Aug 01, 2022 |
|
41 | Celebrating Disability Awareness Month, Chatting about playground inclusion w/ the Benay's (Part 1), and more!
|
Jul 18, 2022 |
|
40 | Communicating around the home, continuing our conversation with Tanya Keller - SLP (Part 2), and more!
|
Jun 20, 2022 |
|
39 | IEPs and me (actually, your kid), Meet Tanya Keller - SLP (Part 1), and more!
|
Jun 06, 2022 |
|
38 | Rett syndrome news, A travel-log of our trip to ASCEND Rett 2022, and more!
|
May 23, 2022 |
|
37 | Top Three from Tennessee, Meet Amelie White - mum to Poppy, and more!
|
May 09, 2022 |
|
36 | Upcoming events Sarah is excited about, Resources for those in the United States w/ Megan Case, and more!
|
Apr 25, 2022 |
|
35 | Rett syndrome research has some big movement, Meet Ashley & Matt Dahms - parents to Bennett, and more!
|
Apr 11, 2022 |
|
BONUS | TikTok brings the 'pop'!
|
Apr 11, 2022 |
|
34 | Now is your chance to be heard!, The Jiselle Lauren Foundation has had amazing year, and more!
|
Mar 28, 2022 |
|
33 | Recapping the Mardi Gras fundraiser, Meet parents of Emma - Megan and Drew Case, and more!
|
Mar 14, 2022 |
|
BONUS | A chat with Dr. Alan Percy
|
Mar 03, 2022 |
|
32 | Your top three apps are what?!, Skiing & Mardi party w/ Heidi Hedges-Greenhall, and more!
|
Feb 28, 2022 |
|
31 | Rare Disease Day is February 28th, The facts of occupational therapy w/ Courtney Odle, and more!
|
Feb 14, 2022 |
|
30 | Our recent trip to the Rett clinic, Fundraising through art w/ Nishaya Sharma and her parents, and more!
|
Jan 31, 2022 |
|
29 | Eye-gaze technology research proves what we know, A grandparent's perspective w/ Carrie Jolley, and more!
|
Jan 17, 2022 |
|
28 | Testing for Rett syndrome, Meet Rosie & Magdalena Sniadewicz, and more!
|
Jan 03, 2022 |
|
27 | Our favorite Christmas memories, What is guardianship w/ Rhianna Sanford, and more!
|
Dec 20, 2021 |
|
26 | Hope for a cure, Rett syndrome organizations around the world, and more!
|
Dec 06, 2021 |
|
Happy [late] Thanksgiving!
|
Nov 29, 2021 |
|
25 | People trigger me!, An incredible fundraiser w/ Mandy Fordyce, and more!
|
Nov 15, 2021 |
|
24 | Opportunities, cont. w/ Colleen English (Part 2), and more!
|
Nov 01, 2021 |
|
23 | Sooo much equipment, Meet Colleen English (Part 1), and more!
|
Oct 18, 2021 |
|
BONUS | It's the pRETTy happy. Dad Chat! w/ guest host, Lonnie Morrison
|
Oct 11, 2021 |
|
22 | It's Rett Syndrome Awareness Month, Speech & Parenting w/ Mara Contes, and more!
|
Oct 04, 2021 |
|
21 | We've been camping, Meet Korrie and Brooke Sanders, and more!
|
Sep 20, 2021 |
|
20 | Dads & Father Figures ... come share your stories!, Sarah & Lonnie Morrison have a special announcement, and more!
|
Sep 06, 2021 |
|
See you in a few weeks!
|
Jul 26, 2021 |
|
19 | Zoey has been riding horses, Sarah & Sam talk IEP madness, and more!
|
Jul 12, 2021 |
|
18 | Growing our Rett syndrome community, Elizabeth w/ @graceforrett shares stories, and more!
|
Jun 28, 2021 |
|
17 | Understanding parenting stress and trauma, Getting your first accessible vehicle w/ Tracey Hoyng, and more!
|
Jun 14, 2021 |
|
16 | Sam shares about his emotional growth, Meet Courtney Coleman of Frankie Says Fight Rett, and more!
|
May 31, 2021 |
|
15 | Exciting news from RettSyndrome.org, Samantha Brant shares about connecting with others, and more!
|
May 17, 2021 |
|
14 | Trying hippotherapy w/ Zoey, Kourtney Barnum talks communication, and more!
|
May 03, 2021 |
|
13 | Traveling hacks, Doin' Disney parks with a disability (feat. Lindsay Emery), and more!
|
Apr 19, 2021 |
|
12 | AmazonSmile makes us smile, Meet Finley, Caley, & Bryan Engnell, and more!
|
Apr 05, 2021 |
|
11 | New gene therapies to fight Rett syndrome, Homeschooling Sierra w/ Elaine Moffatt, & more!
|
Mar 22, 2021 |
|
10 | Cure for Rett may be near, Kim Keane w/ Kindermusik, and more!
|
Mar 08, 2021 |
|
9 | Automate your life with Amazon & Google, Jill & Bailey Pratt w/ The Jiselle Lauren Foundation, and more!
|
Feb 22, 2021 |
|
8 | Special needs travelers, Rocky Mountain Rett Association, and more!
|
Feb 08, 2021 |
|
7 | Sharing your story, Meet Lori, Jim, & Hallie Schroath, and more!
|
Jan 25, 2021 |
|
6 | Dealing w/ the diagnosis, Meet Jovie & Tracey Hoyng, and more!
|
Jan 11, 2021 |
|
5 | Zoey's 2021 Adventures, Kelly Melkus on special education, and more!
|
Dec 28, 2020 |
|
4 | Holiday hacks, Magnolia's Hope w/ the Teslers, and more!
|
Dec 14, 2020 |
|
3 | Smartify your home, Visiting a Rett clinic w/ Olivia & Naomi, & more!
|
Nov 30, 2020 |
|
2 | Holding Space, Meeting Kennedy & Misty Startup, & more!
|
Nov 16, 2020 |
|
1 | Our Story
|
Nov 02, 2020 |
|
Trailer
|
Oct 31, 2020 |