Being Rare Podcast
By Sarita Edwards
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Subscribers: 1
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Episodes: 103
Description
Hosted by Sarita Edwards, the Being Rare Podcast is an online community of rare disease conversations. We’ll have intimate and sometimes difficult conversations about issues in the rare disease space. Popular for our 1 minute episodes, Being Rare offers insight, perspective, and positive reinforcement. Being Rare is not just a podcast; it’s a talk radio style platform that aims to make the extraordinary world of rare diseases accessible, relatable, and impactful. Stay connected - email us podcast@theewefoundation.org. Follow us on social media @beingrarepodcast! Support this podcast: https://podcasters.spotify.com/pod/show/beingrare/support
| Episode | Date |
|---|---|
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Ep 101. What's happening in May? Myositis Moonwalk, Mother's Day, Mental Health, One Minute Mondays
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May 04, 2024 |
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Ep 100. Protecting Our Futures: Black Maternal Health and Child Abuse Neglect & Prevention
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Apr 19, 2024 |
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Ep 99. Funding Challenges for Small Nonprofits, Research, Scholarships, Inclusion, and More!
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Apr 06, 2024 |
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Ep 98. What Are You Telling Families Who Get A Trisomy 18 Diagnosis?
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Mar 22, 2024 |
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Ep 97. March is Trisomy Awareness Month & Women's History Month
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Mar 08, 2024 |
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Ep 96. How We Chose to Navigate the Holidays and the Final "Happy New Year" of 2024!
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Jan 30, 2024 |
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Ep 95. We Haven't Spoken Since Last Year, Happy New Year!
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Jan 11, 2024 |
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Ep 94. Navigating the Holidays with Rare Disease #podcast #holidays #raredisease #selfcare
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Dec 04, 2023 |
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Ep 93. Overwhelmed by Grief #podcast #grief #raredisease #trisomy18
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Nov 04, 2023 |
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Ep 92. Know Your Family History: A Conversation About Health Legacy #podcast #family #health #legacy
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Oct 27, 2023 |
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Ep 91. Let's talk about Newborn Screening in Alabama
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Sep 29, 2023 |
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Ep 90. Who's responsible for providing parents newborn screening information? #podcast
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Sep 14, 2023 |
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Ep 89. 9/11 #podcast #911 #beingrare
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Sep 11, 2023 |
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Ep 88. A Poor Newborn Screening Experience
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Sep 07, 2023 |
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Ep 87. Our Newborn Was Refused Newborn Screening
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Sep 01, 2023 |
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Ep 86. One Minute Monday - Peer Support #podcast #oneminute #peersupport #supportgroup
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Aug 28, 2023 |
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Ep 85. A Church Experience
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Aug 24, 2023 |
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Ep 84. The Small Group - #Inclusion #podcast #raredisease #church #smallgroup
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Aug 21, 2023 |
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Ep 83. Summer Road Trip
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Aug 16, 2023 |
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Ep 82. One Minute Monday - Preparation #podcast #selfcare #mentalhealth #beingrare
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Aug 14, 2023 |
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Ep 81. Ten Minutes of Sarita - Full episode
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Aug 09, 2023 |
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Ep 81 #sizzle - Prioritizing Self Care #podcast #beingrare #selfcare #mentalhealth
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Aug 08, 2023 |
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Ep 80. One Minute Monday - Priorities
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Aug 07, 2023 |
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Ep 79. Welcome to Season 3 of the Being Rare Podcast!
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Jul 03, 2023 |
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Ep 78. One Minute Monday: Isolation - When You Don't Feel Welcomed
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Apr 03, 2023 |
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Ep 77. Trisomy Awareness Month! A conversation with E.WE Foundation partners
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Mar 28, 2023 |
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Ep 76. One Minute Monday: Bullying - When Your Kid Is The Joke Of Conversation
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Mar 20, 2023 |
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Ep 75. One Minute Monday: Words - When Someone Uses The Word Retarded
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Mar 13, 2023 |
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Ep 74. One Minute Monday: Community - When Community Becomes Family
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Mar 06, 2023 |
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Ep 73. A Being Rare Podcast - Rare Disease Day Exclusive #podcast #beingrare #raredisease
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Feb 28, 2023 |
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Ep 72. One Minute Monday: Friendship - Hiring Your Child A Friend
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Feb 27, 2023 |
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Ep 71. One Minute Monday - Feeling Judged
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Feb 21, 2023 |
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Ep 70. One Minute Monday: Collaboration - When You're Not Wanted
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Feb 07, 2023 |
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Ep 69. Self Care - The Importance of Prioritizing Yourself #selfcare #raredisease
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Feb 01, 2023 |
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Ep 68. One Minute Monday: School Support - Helping Students Be Their Best
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Jan 30, 2023 |
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Ep 67. One Minute Monday: Selfishness - When Accessibility is Inaccessible
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Jan 23, 2023 |
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Ep 66. One Minute Monday - Self Care and What It Means For You
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Jan 09, 2023 |
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Ep 65. One Minute Monday - Happy New Year : Being Your Best You
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Jan 03, 2023 |
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Ep 64. One Minute Monday - Being Thankful
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Nov 21, 2022 |
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Ep 63. Know Your Family History Part 2 with Kareem Edwards and Heather Gjesvold
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Nov 18, 2022 |
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Ep 62. Know Your Family History Part 1 with Maria Della Rocca and Molly Martzke
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Nov 18, 2022 |
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Ep 61. One Minute Monday - Being Supportive: No One Likes Feeling Judged
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Oct 24, 2022 |
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Ep 60. Newborn Screening Awareness: Understanding Baby's First Test
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Sep 27, 2022 |
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Ep 59. One Minute Monday : Thoughtful Curiosity - Embracing What Makes Us Different
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Sep 19, 2022 |
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Ep 58. One Minute Monday - Intentions: Learning To Mind Our Business
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Sep 05, 2022 |
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Ep 57. One Minute Monday: Germs - Keep Your Germs To Yourself
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Aug 29, 2022 |
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Ep 56. One Minute Monday: Transitions - When Something Difficult Turns Out Good
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Aug 22, 2022 |
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Ep 55. One Minute Monday: Take A Break - You Deserve It
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Aug 16, 2022 |
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Ep 54. One Minute Mondays: Distractions - When "Your" Distractions Cause Someone Else Harm
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Jun 28, 2022 |
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Ep 53. One Minute Monday: Patience - When Traditional Timelines Don't Accurately Measure Development
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Jun 20, 2022 |
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Ep 52. One Minute Monday: Being Delayed - Delay Is Not Denied
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Jun 14, 2022 |
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Ep 51. One Minute Monday: Poop - Finding Joy in Poopisodes
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Jun 06, 2022 |
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Ep 50. One Minute Mondays: Perception - Perceiving That Your Kid Is A Burden [to Others]
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May 23, 2022 |
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Ep 49. Moms & Mental Health: The Importance of Self Care
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May 22, 2022 |
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Ep 48. One Minute Mondays: Shared Spaces - There's Enough Room For Us All
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May 16, 2022 |
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Ep 47. One Minute Monday: Trust - Learning How to Trust Those Responsible For Your Nonverbal Child
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May 09, 2022 |
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Ep 46. A Special Mother's Day Edition of the Being Rare Podcast
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May 08, 2022 |
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Ep 45. New Beginnings - Welcome to Season 2 of the Being Rare Podcast!
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May 02, 2022 |
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Ep 44. Child Abuse & Neglect Prevention
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Apr 27, 2022 |
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Ep 43. One Minute Mondays - Pressure
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Apr 11, 2022 |
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Ep 42. One Minute Mondays - Celebrations
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Mar 28, 2022 |
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Ep 41. Understanding Financial Advocacy
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Mar 24, 2022 |
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Ep 40. Trisomy Awareness Month with WACE AM 730 Inspirational Radio
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Mar 11, 2022 |
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Ep 39. One Minute Monday - Emotions
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Mar 08, 2022 |
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Ep 38. One Minute Mondays - Community
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Feb 28, 2022 |
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Ep 37. Rare Disease Day with Sarah Tompkins, Ms. Wheelchair Washington USA 2022
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Feb 28, 2022 |
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Ep 36. Understanding Parent Leadership: What Is Parent Leadership and Why Is It Important?
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Feb 26, 2022 |
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Ep 35. One Minute Monday - Being Fulfilled
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Feb 21, 2022 |
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Ep 34. One Minute Monday - Feeling Rushed
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Feb 14, 2022 |
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Ep 33. One Minute Mondays - Compromise
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Feb 08, 2022 |
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Ep 32. One Minute Mondays - Balance
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Feb 01, 2022 |
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Ep 31. One Minute Mondays - Unexpected
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Jan 04, 2022 |
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Ep 30. One Minute Mondays - Resolutions
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Dec 28, 2021 |
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Ep 29. One Minute Mondays - Gratitude
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Dec 21, 2021 |
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Ep 28. Saying No - Repod
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Dec 14, 2021 |
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Ep 27. One Minute Mondays - Emotions
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Dec 07, 2021 |
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Ep 26. The Choice - Repod
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Nov 30, 2021 |
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Ep 25. One Minute Mondays - Being Thankful
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Nov 23, 2021 |
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Ep 24. One Minute Mondays - Patience
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Nov 15, 2021 |
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Ep 23. One Minute Mondays - Being Guarded
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Nov 08, 2021 |
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Ep 22. One Minute Mondays - Differences
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Nov 01, 2021 |
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Ep 21. One Minute Monday - Opportunities
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Sep 14, 2021 |
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Ep 20. One Minute Tuesday - Rest
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Sep 07, 2021 |
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Ep 19. One Minute Mondays - Inclusion
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Aug 30, 2021 |
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Ep 18. One Minute Monday - Support
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Jul 13, 2021 |
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Ep 17. Supportive Adult Series: Extended Bedside Manner
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Jul 08, 2021 |
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Ep 16. One Minute Monday - Amazement
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Jul 06, 2021 |
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Ep 15. One Minute Mondays - Being Relatable
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Jun 29, 2021 |
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Ep 14. Father's Day Takeover - Part Two
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Jun 24, 2021 |
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Ep13. Father's Day Takeover - Part One
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Jun 22, 2021 |
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Ep 12. One Minute Tuesday - Saying No
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Jun 22, 2021 |
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Ep 11. One Minute Tuesday - Expectations
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Jun 15, 2021 |
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Ep 10. One Minute Monday - Resentment
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Jun 08, 2021 |
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Ep 9. A Journey of Faith
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Jun 01, 2021 |
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Ep 8. One Minute Mondays - Balance
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May 31, 2021 |
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Ep 7. Sharing Your Story
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May 31, 2021 |
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Ep 6. One Minute Tuesday
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May 25, 2021 |
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Ep 5. Surviving Loss
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May 18, 2021 |
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Ep 4. One Minute Mondays - The Choice
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May 17, 2021 |
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Ep 3. One Minute Mondays - FEAR
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May 11, 2021 |
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Ep 2. Special Episode - Sick Days
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May 06, 2021 |
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Ep 1. One Minute Monday - ACCESSIBILITY
|
May 03, 2021 |
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Being Rare Podcast (Trailer)
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May 02, 2021 |