Energy in Action by MitoAction
By MitoAction
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Category: Health & Fitness
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Episodes: 160
Description
Energy In Action by MitoAction will consist of conversations with patients, families, researchers and thought leaders in the mitochondrial disease communities. These podcasts will give you a glimpse into the lives of families affected by mitochondrial disease and the latest in clinical trials, diagnosis, research and the advancement of therapies.
If you would like to be a guest or suggest a topic, please email us at info@mitoaction.org.
| Episode | Date |
|---|---|
|
FAOD Families: Don’t Miss This Free Virtual Conference
|
Jul 01, 2026 |
|
The Fight That Changed Disability Rights Forever
|
Jun 16, 2026 |
|
How One FDA Meeting Gave the MELAS Community a Voice
|
Jun 03, 2026 |
|
Why Sleep Matters More Than You Think with Mitochondrial Disease
|
May 20, 2026 |
|
Free Housing for Hospital Visits? The Resource Every Family Should Know
|
May 06, 2026 |
|
Honoring Katie: The Rare Disease Friendships That Change Everything
|
Apr 15, 2026 |
|
Why Mito Care Is Finally Changing
|
Apr 01, 2026 |
|
How Mighty Matthew Keeps Moving Forward
|
Mar 18, 2026 |
|
Supporting Siblings in Rare Disease Families
|
Mar 04, 2026 |
|
Fighting for Approval and Winning
|
Feb 18, 2026 |
|
Hope for FAOD Patients Through Research
|
Feb 04, 2026 |
|
What PFDD Meetings Mean for the Mito Community
|
Jan 21, 2026 |
|
Creativity and Community: MitoArtisans in Action
|
Jan 07, 2026 |
|
Inside MitoAction: Support, Advocacy, and a Community That Cares
|
Dec 17, 2025 |
|
Mindset, Mito, and the Power of Positivity
|
Dec 03, 2025 |
|
Making Nutrition Work for You: Planning Meals with Mito in Mind
|
Nov 19, 2025 |
|
Parenting with Mito: Talking About the Tough Stuff
|
Nov 05, 2025 |
|
How Rory’s Family Built a Life That Works With LCHAD
|
Oct 15, 2025 |
|
After the Diagnosis: Genetic Counseling & the Mito Journey
|
Oct 01, 2025 |
|
Hearing Loss, Family, and Hope: A Student’s View on MIDD
|
Sep 17, 2025 |
|
Dogs for Mito Part 3: Life with a Therapy Dog
|
Aug 20, 2025 |
|
Married to Mito
|
Aug 06, 2025 |
|
Raregivers: Turning Caregiver Burnout into Breakthroughs
|
Jul 16, 2025 |
|
Navigating CPEO: Talia’s Search for Answers, Care, and Community
|
Jul 02, 2025 |
|
Nutrition Tips for Weak Muscles and Fatigue
|
Jun 18, 2025 |
|
How Tisento is Advancing Mitochondrial Research
|
Jun 04, 2025 |
|
The Fight for Educational Rights: What Mito Families Need to Know
|
May 21, 2025 |
|
How to Become Paired with A Service Dog with Rachel Friedman
|
May 07, 2025 |
|
Honoring Sandra Russell Through 15 Years of Derby Day
|
Apr 16, 2025 |
|
The Lifesaving Bonds Between Service Dogs and Their Mito Warriors
|
Apr 02, 2025 |
|
Faced with Medical Kidnapping: Skyler’s Story
|
Mar 19, 2025 |
|
Mitochondrial Shifts: A Conversation with Genetic Counselor Devin Shuman
|
Mar 05, 2025 |
|
The Superhero Project’s Mission to Empower Kids
|
Feb 19, 2025 |
|
From Diagnosis to Dalia’s Wish: A Loving Family's Journey with Mito
|
Feb 05, 2025 |
|
Raising Warriors: A Mother’s Journey with VLCAD
|
Jan 22, 2025 |
|
From Nurse to Advocate: Tania’s Mito Experience
|
Jan 08, 2025 |
|
Dateability: A Dating App for the Disability and Chronic Illness Community
|
Dec 18, 2024 |
|
A Family of Mito Warriors who PUBLISH!
|
Dec 04, 2024 |
|
Our Space: Building Community for Young Adults with Mitochondrial Disease
|
Nov 20, 2024 |
|
April - Mito and Social Media Extraordinaire
|
Nov 06, 2024 |
|
Sharickah - Mito Mom Warrior
|
Oct 23, 2024 |
|
Daily Living Aids
|
Oct 02, 2024 |
|
Rare Disease In the Room
|
Sep 18, 2024 |
|
Rare Sisters
|
Sep 04, 2024 |
|
Nutritionally Aware - Boosting Energy with the Foods You Eat
|
Aug 21, 2024 |
|
Being A Mother and Physician and Struggling with Mito
|
Aug 07, 2024 |
|
The Life and Legacy of Liel
|
Jul 17, 2024 |
|
Dr. Vockley's Journey in Mitochondrial Disease Care
|
Jul 03, 2024 |
|
Cegat Genetic Opportunities
|
Jun 19, 2024 |
|
Chemistry RX
|
Jun 05, 2024 |
|
Mito Artisans
|
May 15, 2024 |
|
Breathtaking
|
May 01, 2024 |
|
At College with Mitochondrial Disease
|
Apr 17, 2024 |
|
Mo's Personal Journey
|
Apr 03, 2024 |
|
Angel Flight New England
|
Mar 27, 2024 |
|
Medical Marijuana for Mitochindrial Disease
|
Mar 06, 2024 |
|
Courageous Parents Network
|
Feb 21, 2024 |
|
Marcy Young - Living with CPEO
|
Feb 17, 2024 |
|
Self Care for YOU
|
Feb 07, 2024 |
|
Advocate for YOU
|
Jan 17, 2024 |
|
The Passionate Life of Josie
|
Jan 10, 2024 |
|
LHON Collective
|
Dec 13, 2023 |
|
Mito Quilts of Hope
|
Nov 29, 2023 |
|
Introducing Positively Walking with Mito Podcast
|
Nov 15, 2023 |
|
Champs Foundation
|
Oct 11, 2023 |
|
Employed with Mito Disease
|
Oct 04, 2023 |
|
Mito Awareness Week and Parent Stories from the FAOD Community - Live from the IMC
|
Sep 20, 2023 |
|
Barth Syndrome - When the Lack of Fair, Equitable and Appropriate Regulatory Review Process Jeopardizes Ultra-Rare Drug Development
|
Sep 13, 2023 |
|
Navigating School for Our Kiddos
|
Sep 06, 2023 |
|
Patient Stories from the FAOD Community - Live from the IMC
|
Aug 17, 2023 |
|
Hailee The Mito Warrior
|
Aug 09, 2023 |
|
Jeremiah Gracen TK2D Warrior
|
Aug 02, 2023 |
|
Akron Children’s Hospital Mito Clinic Research Update
|
Jul 22, 2023 |
|
Grandparents As Rare - Go Find Your Bike
|
Jul 19, 2023 |
|
Exercise for Mitochondrial Patients
|
Jul 12, 2023 |
|
Shades of Grief with Dr. Kendall
|
Jul 10, 2023 |
|
Travel Tips from the PAR Community with Lisa Weinberger
|
Jun 22, 2023 |
|
Fighting Chronic Pain with the Neubie
|
Jun 14, 2023 |
|
Minds in Motion
|
Jun 07, 2023 |
|
Akron Children’s Hospital - Meet the Mito Clinic Team
|
May 18, 2023 |
|
A Painful Identity
|
May 17, 2023 |
|
Jireh Somera - Fabry Fighter
|
Apr 26, 2023 |
|
Monica and John Cline - Forever Gift of Compassion - Live Like JoJo
|
Apr 19, 2023 |
|
Rare Revolution
|
Mar 15, 2023 |
|
Dr. Neena Nizar - Share Your #RareDiseaseTruth & Give Love A Chance
|
Feb 15, 2023 |
|
Dalia’s Wish Makes Dreams Come True for the Del Forno Family
|
Feb 08, 2023 |
|
Exploring Palliative Care
|
Jan 18, 2023 |
|
Challenging the Status Quo - Robin Powers
|
Dec 21, 2022 |
|
The Navigation Project
|
Dec 07, 2022 |
|
Good Grief and the Holidays
|
Nov 23, 2022 |
|
Meeting My MELAS Mito Friend - Elizabeth Wood
|
Nov 16, 2022 |
|
Episode 069 - Give Kids the World with Justin Kiser
|
Nov 02, 2022 |
|
Special Episode - Live from the 2022 Global Genes Rare Patient Advocacy Summit with Tim McLerran, Head of Product, Medical Intelligence One, Inc
|
Oct 19, 2022 |
|
What Is It Like Being a Research Patient with UDN - Ted Will Tell You
|
Oct 12, 2022 |
|
Alex the Great and LCHAD
|
Oct 05, 2022 |
|
Tara Zier - Stiff Person Syndrome Research Foundation and Finding Your Purpose
|
Sep 21, 2022 |
|
Lovevery - Purposeful Play Customized for all Abilities
|
Sep 14, 2022 |
|
Meet Devin the Genetic Counselor and Mito Patient
|
Sep 07, 2022 |
|
Mary Morlino - Parenting with Sarcoidosis and Discussing the Global Genes 2022 RARE Patient Advocacy Summit
|
Aug 17, 2022 |
|
Jacob and CPEO Plus
|
Aug 10, 2022 |
|
Meet the Bartles
|
Aug 03, 2022 |
|
Owning My Story
|
Jul 20, 2022 |
|
Life with Leigh's
|
Jul 13, 2022 |
|
TJ Strong
|
Jul 06, 2022 |
|
Chris Freeman - Chronic Pain Dad
|
Jun 22, 2022 |
|
Top 10 Tips for Empowerment & Being Your Own Advocate
|
May 25, 2022 |
|
Dr. Stephanie Mihalas - Find Your Balance, Find Your Center
|
May 18, 2022 |
|
Advocate Like a Father
|
May 11, 2022 |
|
Finding Help with the Cost of Medications
|
May 06, 2022 |
|
Lisa Weinberger - Be Your Own Advocate, Listen To Your Body, Take Control of Your Health, & Ask Questions
|
Apr 20, 2022 |
|
You Never Give Up Hope in Life
|
Apr 08, 2022 |
|
Living Rare - An Adult's Perspective
|
Mar 23, 2022 |
|
Parenting & Living Life With Chronic Pain - Ross McCreery
|
Mar 16, 2022 |
|
The Strength of a Mom
|
Mar 04, 2022 |
|
Parents as Rare - Family Coping, Communication, & Mental Health Resources - Dr. Jennifer Young, Postdoctoral Scholar, Biomedical Ethics - Stanford University
|
Feb 16, 2022 |
|
Live Life, Dream Big, Be Positive
|
Feb 09, 2022 |
|
Removing Barriers in Ultra-Rare
|
Feb 02, 2022 |
|
Parents as Rare - Cowden Syndrome and Male Mental Health - David Ross
|
Jan 19, 2022 |
|
Empowering Parents Nationwide
|
Jan 12, 2022 |
|
EveryLife Foundation Newborn Screening
|
Jan 05, 2022 |
|
Silver Linings with Sarah Kate
|
Dec 22, 2021 |
|
Chronically Simple and Simply Unbreakable - Kristy Dickinson
|
Dec 15, 2021 |
|
Patient Led Trials
|
Dec 08, 2021 |
|
The Patient Teacher Program
|
Dec 01, 2021 |
|
Parents As Rare - Parenting with VCP Disease - Nathan Peck
|
Nov 17, 2021 |
|
The MitoSantas Program
|
Nov 10, 2021 |
|
Meet the Mito Girl
|
Nov 03, 2021 |
|
Parents as Rare - Emma and Spencer - The Heart of Parents As Rare
|
Oct 20, 2021 |
|
RNE Annual Conference
|
Oct 13, 2021 |
|
Making Mito Wishes Come True - A Partnership with Give Kids the World Village
|
Oct 06, 2021 |
|
Trailer - Parents As Rare
|
Sep 29, 2021 |
|
AllStripes and Cyclerion - Community Collaboration to Push Clinical Trials Forward
|
Sep 22, 2021 |
|
Fight - Research - Hope - Cure
|
Sep 16, 2021 |
|
Another Helping
|
Sep 08, 2021 |
|
Giving You the Power to Take Control of Your Healthcare Journey While Moving Mito Research
|
Jul 02, 2021 |
|
Having a Voice That Deserves To Be Heard
|
May 26, 2021 |
|
Patients as Partners in Ultragenyx LC-FAOD Research
|
May 12, 2021 |
|
One Step Closer
|
May 07, 2021 |
|
Chronically-Inspired
|
Apr 28, 2021 |
|
Caregiver Toolboxes...A Lifeline and Support
|
Apr 22, 2021 |
|
A Mom and Daughter's Journey With Mito
|
Apr 12, 2021 |
|
Lifeline: It's More Than What You Think
|
Apr 03, 2021 |
|
It's Probably Genetic
|
Mar 27, 2021 |
|
Adventure Awaits...A Teen's Inspiring Journey with Mito!
|
Mar 19, 2021 |
|
The Effects of Having a Diagnosis of TK2
|
Mar 12, 2021 |
|
Making Your Voice Heard Through Song
|
Mar 04, 2021 |
|
Clinical Trials and COVID-19
|
Feb 24, 2021 |
|
Service Dogs...A Man's Best Friend
|
Feb 18, 2021 |
|
Owning My Story...The DadVocate
|
Feb 14, 2021 |
|
No One Fights Alone....A Family's Journey with Mito!
|
Feb 14, 2021 |
|
If You Keep the Patient First, You'll Never Go Wrong
|
Jan 27, 2021 |
|
Life with Frankie...A Mom's Journey with Mito
|
Jan 20, 2021 |
|
The Positive Power of Peach…A Young Adults Inspiring Journey.
|
Jan 06, 2021 |
|
COVID Preparedness and Building Your Flu Box…Tips to Help You Stay Safe
|
Jan 06, 2021 |
|
MitoSantas – Bringing Smiles to the Faces of Children Affected by Mitochondrial Disease
|
Jan 06, 2021 |
|
The Light at the End of the Tunnel…A Mom’s Journey with MERRF Syndrome
|
Jan 06, 2021 |
|
Raising Christopher – A Mom’s Journey with LCHAD
|
Jan 06, 2021 |
|
Finding My Path – A Young Adult’s Journey To Live Beyond His Diagnosis.
|
Jan 05, 2021 |
|
Trying Not To Run Out Of Gas - A Young Adult's Journey with LCHAD and How She Continues to March Forward.
|
Jan 05, 2021 |
|
Energy in Action Launch
|
Jan 05, 2021 |