Haemcast
By Haemnet
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Category: Medicine
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Episodes: 41
Description
Welcome to the Haemcast, where we talk about all things haemophilia and bleeding disorders. Join us as we speak with leading experts in the field to tackle and address the latest news, hot topics and research.
| Episode | Date |
|---|---|
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"I'm the worrier in our relationship" — Being the partner of a person with a bleeding disorder
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May 27, 2026 |
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"Everything's new with haemophilia" — Treatment choices and changes
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Apr 30, 2026 |
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Sticky blood, teddies and teens — Talking to children about their bleeding disorder
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Mar 31, 2026 |
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Veins, verse and voices: How poetry helped Local families with bleeding disorders be heard
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Mar 05, 2026 |
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Banana sap, mangos and factor IX — a Ugandan haemophilia B journey
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Oct 09, 2025 |
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Quality of life in the balance: Helen Tate on living with Factor V deficiency
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Aug 21, 2025 |
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Looking back on Terence's life: Haemophilia then and now, with Kate Khair
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Jul 30, 2025 |
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Reflections on a life with severe haemophilia. Part 6: Decision-making and teamwork
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Jul 02, 2025 |
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Reflections on a life with severe haemophilia. Part 5: Treatment impacts, life changes and hepatitis C
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Jun 12, 2025 |
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Reflections on a life with severe haemophilia. Part 4: The arrival of Factor VIII and an evolving career
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May 29, 2025 |
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Reflections on a life with severe haemophilia. Part 3: Work, study and challenging treatment decisions
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May 15, 2025 |
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Reflections on a life with severe haemophilia. Part 2: Education and dreams of the future
|
Apr 30, 2025 |
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Reflections on a life with severe haemophilia: In conversation with Terence O ’ Rourke
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Apr 17, 2025 |
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In conversation with Kate Khair: reflecting on a lifetime's achievement in haemophilia and bleeding disorders
|
Mar 20, 2024 |
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Pathway to Cures; the venture philanthropy fund focused on transformative treatments for inheritable blood disorders ft. Len Valentino and Teri Willey
|
Jan 09, 2024 |
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"Keep speaking their names. Keep remembering them." - Commemorating World AIDS Day 2023 ft. Mark Ward, LGBT Ambassador,The Haemophilia Society UK
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Dec 01, 2023 |
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Von Willebrand what?... Disease? Disorder? Dismissed? - featuring community advocates Sunny Maini & Hannah Yarnall, The UK Haemophilia Society
|
Aug 09, 2023 |
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Psychologist Sylvia von Mackensen shares how her leap from sick buildings led her to become the guru of quality of life in haemophilia
|
Jul 06, 2023 |
|
The Qualitative Revolution has Begun | Creative Qualitative Research feat. Dr Rich Gorman, Social Scientist at at Brighton and Sussex Medical School
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Apr 13, 2023 |
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What does ageing well with haemophilia look like? | featuring Dr William McKeown and Randall Curtis
|
Mar 21, 2023 |
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International Womens Day 2023 - The challenges faced by women in the bleeding disorders community ft. Dawn Rotellini, NHF
|
Mar 08, 2023 |
|
Shared decision making in an evolving treatment landscape for haemophilia and bleeding disorders ft. Dr Len Valentino, CEO National Hemophilia Foundation
|
Feb 20, 2023 |
|
Beyond approval | Considerations and Challenges in Access to Gene Therapy featuring Nicola Redfern
|
Nov 28, 2022 |
|
Gene Therapy, Liver Health and... cheese featuring Professor Graham Foster Professor of Hepatology at Queen Mary University of London and clinical lead for Hepatology at Barts Health
|
Oct 14, 2022 |
|
Tinkling the Ivories | Oral health in haemophilia and bleeding disorders ft. Alison Dougall, Professor/Consultant Dublin Dental University Hospital, Director of SCD doctorate programme Trinity College
|
Aug 22, 2022 |
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Same but different; the challenges faced by the Glanzmann's Thrombasthenia community feat. The Glanzmann's Research Foundation
|
Jul 21, 2022 |
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WHD African Update: Dr Kate Khair speaks to Agnes Kisakye of the Haemophilia Foundation of Uganda
|
Apr 17, 2022 |
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Using Storytelling to Educate and Empower the Hemophilia & Bleeding Disorders Community ft. Patrick James Lynch, Founder & CEO, Believe Ltd
|
Mar 21, 2022 |
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The 1 in a Million Bleeding Disorder: Glanzmann's Thrombasthenia w/ Dr Catherine Rea
|
Feb 28, 2022 |
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What is the Exigency Study? feat. Lead Investigator & Research Nurse Simon Fletcher, Oxford University Hospitals NHS Trust
|
Jan 28, 2022 |
|
Risk-benefit assessment for Gene Therapy in Haemophilia ft. Declan Noone, EHC President
|
Dec 20, 2021 |
|
Universal precautions; not gloves and aprons but health literacy and shared decision making ft. Jonathan Berry. NHS Improvement, Personalised Care Group
|
Oct 07, 2021 |
|
Some is good, more is better | physical activity in haemophilia feat. Melanie Bladen & Ruth Elise Matlary
|
Sep 06, 2021 |
|
Trauma and Pain Memories in Haemophilia
|
Jun 22, 2021 |
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The Birds and the Bleeds | Sex and sexual health in the bleeding disorders community
|
Jun 01, 2021 |
|
Celebrating International Nurses Day 2021 with the haemophilia nursing community
|
May 12, 2021 |
|
World Haemophilia Day | How the UK Community Adapted to Change
|
Apr 17, 2021 |
|
Women Bleed Too! - Dr Abdul-Kadir, Dr van Galen & Naja Skouw-Rasmussen on the WGBD Principles of Care and more
|
Apr 08, 2021 |
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Complexities and Conundrums in Consent w/ Dr Nicola Curry and Dr Keith Gomez
|
Mar 09, 2021 |
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We don't ask. They don't tell - Pain and haemophilia (Part 2)
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Feb 22, 2021 |
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We don't ask. They don't tell - Pain and haemophilia (Part 1)
|
Jan 19, 2021 |