Trisomy Family Stories

By SOFT UK

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Category: Parenting

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Episodes: 87

Description

A collection of stories and experiences from families dealing with Trisomy 13 and 18.

Episode Date
In Conversation With The Feeding Trust
Aug 18, 2026
In Conversation With Claire: Sitting With Uncertainty
Apr 23, 2026
In Conversation With Ann-Marie
Mar 16, 2026
In Conversation With Enny
Mar 16, 2026
In Conversation With Niamh
Mar 02, 2026
In Conversation With Mama Bear Care
Mar 19, 2025
In Conversation With Footprints Baby Loss
Mar 19, 2025
Breaking the Silence with Rachel Kelly (TFMR)
Jan 30, 2025
Breaking the Silence with Rachel Kelly (TFMR)
Jan 30, 2025
The TRIS Project and Its Impact
Jan 28, 2025
Team SOFT UK: Meet the People Behind the Mission
Jan 28, 2025
The TRIS Project and Its Impact
Jan 28, 2025
Baby Nina’s Incredible Journey
Jan 28, 2025
Baby Nina’s Incredible Journey
Jan 28, 2025
Team SOFT UK: Meet the People Behind the Mission
Jan 28, 2025
Mark and Ruth Jenner’s Story of Love and Loss
Jan 28, 2025
Mark and Ruth Jenner’s Story of Love and Loss
Jan 28, 2025
13 Walks for Arthur: Vicky’s Story of Love, Loss, and Giving Back (TFMR)
Nov 06, 2024
In Conversation With Mary: The Frailty of a Butterfly (Bereavement)
Mar 13, 2024
Baby Loss Awareness Week 2023: In Conversation with Kate Sonley
Oct 13, 2023
From Past To Present: Reflecting on Demi's Trisomy 18 Journey (Bereavement)
Sep 12, 2023
Embracing the Extraordinary Journey: Positive about Down syndrome
Aug 10, 2023
Pregnancy after a trisomy 18 diagnosis (Living with trisomy)
Jul 06, 2023
Leaving the hospital with my Rainbow baby
Jun 29, 2023
A Sibling's Path: From Loss to Strength as a Rainbow Baby
Jun 21, 2023
Navigating the Complexities of Genetic Counseling: Insights from a Trainee Genetic Counselor
Jun 14, 2023
Making a Difference: The Power of Volunteering with SOFT UK
May 31, 2023
Improve, Inspire, Empower (Bereaved)
May 18, 2023
Improve, Inspire, Empower (Bereaved)
May 18, 2023
The origins and aims of #TFMRAwarenessday
May 04, 2023
Breaking the Silence: Deaf Awareness Week (living with trisomy)
May 03, 2023
In Our Own Little Bubble: Coping with TFMR - Marie's Story
May 02, 2023
In Conversation With Richard: A Siblings Journey
Apr 06, 2023
In Conversation With Sarah: A Mosaic Pregnancy and Journey (Living with trisomy)
Mar 20, 2023
Working With Eastenders
Mar 20, 2023
With The Benefits of Hindsight (Bereavement)
Mar 15, 2023
Introducing Sarah: SOFT UK Trisomy Advocate
Mar 14, 2023
SOFT UK: Royal Parks Half Marathon Discussion (Fundraising)
Mar 08, 2023
Can HIV Cause Trisomy 18 Edwards Syndrome
Mar 06, 2023
Fiona’s Story (Living with trisomy)
Mar 06, 2023
What is Rare Disease day?
Feb 27, 2023
Introduction to a Professional Advisor: Jenny Hudson
Dec 07, 2022
Introduction to a Professional Advisor: Jenny Hudson
Dec 07, 2022
In Conversation With Charlotte Pt 2: Rainbow Baby
Aug 04, 2022
In Conversation With Becky: After a Loss (Bereavement)
Jul 29, 2022
In Conversation With Charlotte (Bereavement)
Jul 21, 2022
In Conversation With Lauren: A Siblings Perspective
Jul 14, 2022
In Conversation With Becky: Thin Places (Bereavement)
Jul 11, 2022
In Conversation With Paul: A Dads Perspective (Dads/ TFMR)
Jul 04, 2022
In Conversation With Sandeep: A fathers perspective of Trisomy 13 (Bereavement)
Jun 16, 2022
A siblings perspective of Trisomy
Jun 03, 2022
Fundraising With The Flock: Flockmass
May 26, 2022
Trisomy Awareness Month: Empowering Hope (Living with trisomy)
Mar 31, 2022
Trisomy Awareness Month: Talking with Gareth, a trustee and fathers perspective (Bereavement)
Mar 23, 2022
Trisomy Awareness Month: Talking with Juliette, a trustee and volunteer perspective (Bereavement)
Mar 16, 2022
Trisomy Awareness Month: Interview with Jenny Robbins, a founder of SOFT UK
Mar 12, 2022
Trisomy Awareness Month: Verity's Village (Living with trisomy)
Mar 08, 2022
The Right Choice for You: Emma's Story (TFMR)
Mar 02, 2022
Bereavement: Other Peoples Reactions
Feb 22, 2022
Bereavement: The Impact on Relationships
Feb 15, 2022
Bereavement: Ways of coping
Feb 08, 2022
Bereavement: Chloe's Story
Feb 01, 2022
Bereavement: Loss During Lockdown
Jan 25, 2022
Bereavement: Hannah's Story
Jan 18, 2022
Against All Odds: Helen's Story (Expectant parent)
Dec 20, 2021
The Right Choice for You: Naomi's Story (TFMR)
Dec 17, 2021
The Right Choice for You: Rachel's Story (TFMR)
Dec 13, 2021
The Right Choice for You: Caroline's Story (TFMR)
Dec 10, 2021
Against All Odds: Chelsea's Fundraising
Dec 06, 2021
Against All Odds: Leo's Fundraising Walk Around the World
Nov 29, 2021
Against All Odds: Ben's Fundraising
Nov 22, 2021
Against All Odds: Jam Jam Can (Living with trisomy)
Nov 15, 2021
Against All Odds: Lucy's Fundraising
Nov 08, 2021
Against All Odds: Verity's Village (Living with trisomy)
Nov 01, 2021
Against All Odds: Leo's Story
Oct 25, 2021
Accessible Iris - Enabling Families To Go On Holiday (Living with trisomy)
Jul 06, 2021
Behind The Scenes With SOFT UK: Introduction
Jun 15, 2021
Shaun's Story: The importance of letting it out for Dads (Living with trisomy)
May 21, 2021
SOFT UK NHS Digital Project
May 12, 2021
SOFT UK Family Stories - Episode 7: Heidi (Living with trisomy)
Mar 27, 2021
SOFT UK Family Stories - Episode 6: Laura (Bereavement/ TFMR)
Mar 20, 2021
SOFT UK Family Stories - Episode 5: Larry (Dads/ (Living with trisomy)
Mar 13, 2021
SOFT UK Family Stories - Episode 4: Kate (Expectant parent)
Mar 06, 2021
SOFT UK Family Stories - Episode 3: Simone (Living with trisomy)
Mar 02, 2021
SOFT UK Family Stories - Episode 1: Juliette
Mar 02, 2021
SOFT UK Family Stories - Episode 2: Jemima (Living with trisomy)
Mar 02, 2021
SOFT UK Family Stories - Introduction
Feb 23, 2021