Beyond the Diagnosis
By Histiocytosis Association
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Category: Health & Fitness
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Episodes: 92
Description
The Beyond the Diagnosis podcast was created by the Histiocytosis Association to give patients, families, caregivers and other members of the Histio Community the opportunity to have access to another educational resource to help them on their histio journey. The podcast provides an additional platform by which listeners can consume information while on the go or if unable to remain in front of a computer for an extended period of time.
| Episode | Date |
|---|---|
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Episode 091 - Artificial Intelligence & Rare Disease: How AI Could Change Diagnosis, Treatment & Advocacy w/ Dr. Richard Godby
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May 27, 2026 |
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Episode 090 - A Monkey, A Mission and a Legacy: Creating Grins One Monkey at a Time w/ Kristin Aaron
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Apr 22, 2026 |
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Episode 089 – Supporting the Next Generation – The Histiocytosis Association’s Student Scholarship Program
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Mar 27, 2026 |
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Episode 088 - From Patient to Advocate – A Youth Voice for Rare Disease Week 2026
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Feb 25, 2026 |
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Episode 087 - Cyclin D1 Overexpression in Erdheim-Chester Disease
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Jan 28, 2026 |
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Episode 086 - The 2025 Hopecast!
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Dec 31, 2025 |
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Episode 085 - A Season for Gratitude
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Nov 26, 2025 |
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Episode 084 - Meet the New Histiocyte Society President, Dr. Vasanta Nanduri
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Oct 22, 2025 |
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Episode 083 - Staff Highlight Series - Meet Our New Executive Director, Jen Silvers
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Sep 24, 2025 |
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Episode 082 - Continuing Medical Education and the Patient Voice
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Aug 27, 2025 |
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Episode 081 - Meet the Team: Behind the Scenes with Kathy, the Histiocyte Society Secretariat and More!
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Jul 23, 2025 |
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Episode 080 - Histio Patient and Family Summit - Your Guide to this Exciting Event
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Jun 25, 2025 |
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Episode 079 - From Endocrinopathy to Diagnosis of a Histiocytic Disorder
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May 28, 2025 |
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Episode 078 - From Misdiagnosis to Mission – One Patient’s Journey with Rare Disease
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Apr 23, 2025 |
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Episode 077 - MEK Inhibitors in ECD
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Mar 26, 2025 |
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Episode 076 - Meet the Team: Behind the Scenes with Erica, Our Database Guru
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Feb 26, 2025 |
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Episode 075 - 2024 HopeCast Part 3 - Research
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Jan 22, 2025 |
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Episode 074 - 2024 HopeCast Part 2 - Support
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Jan 15, 2025 |
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Episode 073 - 2024 HopeCast Part 1 - Awareness
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Dec 26, 2024 |
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Episode 072 - Highlights from the 40th Annual Meeting of the Histiocyte Society
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Nov 27, 2024 |
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Episode 071 - Meet the Team: Behind the Scenes with Danielle, Our Financial Officer Extraordinaire
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Oct 23, 2024 |
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Episode 070 - Navigating Social Security & Disability Benefits for Children: Compassionate Allowance Expansion for Histiocytosis
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Sep 25, 2024 |
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Episode 069 - Navigating Social Security & Disability Benefits for Adults: Compassionate Allowance Expansion for Histiocytosis
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Sep 18, 2024 |
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Episode 068 – Meet the Team: Behind the Scenes with Peter, Our Strategic Communications Maestro
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Aug 28, 2024 |
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Episode 067 - Fostering the Next Generation: Young Investigator Initiatives Within the Histiocyte Society
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Jul 24, 2024 |
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Episode 066 - Working Through Grief - Together
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Jun 26, 2024 |
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Episode 065 - AVP-Deficiency Explained: Understanding and Managing a Rare Condition
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May 22, 2024 |
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Episode 064 - Voices of Dedication: Honoring Our Histio Volunteers
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Apr 24, 2024 |
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Episode 063 - Heartbeats of Hope: The Histio Caregiver
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Mar 27, 2024 |
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Episode 062 - From Adversity to Opportunity
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Feb 28, 2024 |
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Episode 061 - The Fruits of Our Labor – Joining Together to Fund Research
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Jan 24, 2024 |
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Episode 060 – Navigating Histiocytosis from a Neuropsychological Perspective
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Dec 27, 2023 |
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Episode 059 - Hopecast 2023
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Dec 20, 2023 |
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Episode 058 - Global Genes Conference: Showing Up and Making an Impact
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Dec 13, 2023 |
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Episode 057 - The Changing Seasons
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Oct 25, 2023 |
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Episode 056 - Standing Up to ECD with Courage and Hope
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Sep 27, 2023 |
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Episode 055 - Advocacy and Awareness - 2 Pillars of Finding a Cure
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Aug 23, 2023 |
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Episode 054 - 3-Minute Thursday - Motivation vs Determination
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Jul 27, 2023 |
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Episode 053 - Surviving to Thriving - Going Truly Beyond the Diagnosis w/ Dr. Gaurav Goyal
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Jul 26, 2023 |
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Episode 052 - 3-Minute Thursday - The Gift of Being Present
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Jul 20, 2023 |
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Episode 051 - 3-Minute Thursday - Friendship in Difficult Times
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Jul 13, 2023 |
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Episode 050 - 3-Minute Thursday - Share Your Story
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Jul 06, 2023 |
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Episode 049 - 3-Minute Thursday - The Healing Power of Music
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Jun 29, 2023 |
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Episode 048 - Cultivating the Seeds of Research: Understanding the Scoring Process
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Jun 28, 2023 |
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Episode 047 - 3-Minute Thursday - Pushing Through Tough Times
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Jun 22, 2023 |
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Episode 046 - 3-Minute Thursday - Control
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Jun 15, 2023 |
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Episode 045 - 3-Minute Thursday - Don't Give Up!
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Jun 08, 2023 |
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Episode 044 - 3-Minute Thursday - Say Something Nice
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Jun 01, 2023 |
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Episode 043 - 3-Minute Thursday - Pets as Therapy
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May 25, 2023 |
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Episode 042 - Mother Knows Best: An LCH Parent’s Journey w/ Mia Graviano
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May 24, 2023 |
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Episode 041 - 3-Minute Thursday - Confidence in Patient Autonomy
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May 18, 2023 |
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Episode 040 - 3-Minute Thursday - National Nurses Week!
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May 11, 2023 |
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Episode 039 - 3-Minute Thursday - Your Knowledge is Your Force
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May 04, 2023 |
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Episode 038 - 3-Minute Thursday - Self-Empathy
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Apr 27, 2023 |
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Episode 037 - Findings from a Rare Cancer Caregiver Study
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Apr 26, 2023 |
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Episode 036 - 3-Minute Thursday - Pharmacogenetics
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Apr 20, 2023 |
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Episode 035 - 3-Minute Thursday - Choices!
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Apr 13, 2023 |
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Episode 034 - 3-Minute Thursday - Positive Thinking
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Apr 06, 2023 |
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Episode 033 - 3-Minute Thursday - Self-Care is NOT Selfish
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Mar 30, 2023 |
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Episode 032 - 3-Minute Thursday - Laughter as Medicine
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Mar 23, 2023 |
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Episode 031 - The Best of Beyond the Diagnosis - 2nd Anniversary Countdown Special
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Mar 22, 2023 |
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Episode 030 - 3-Minute Thursday - Gratitude
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Mar 16, 2023 |
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Episode 029 - 3-Minute Thursday - Ethnicity and Matching
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Mar 09, 2023 |
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Episode 028 - 3-Minute Thursday - Introduction to 3-Minute Thursdays
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Mar 02, 2023 |
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Episode 027 - Part 1 of 3 - Seeds of Funding - The Foundation of the Research Grants Program w/ Allie McFadden
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Feb 22, 2023 |
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Episode 026 - Education in the Histiocyte Society: What, Why and How w/ Dr. Michael Henry
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Jan 25, 2023 |
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Episode 025 - The 2022 HopeCast and Year End Update
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Dec 28, 2022 |
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Episode 024 - Family Group Collaborations - Working Together At Home and Abroad
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Nov 23, 2022 |
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Episode 023 - Focus on the Future w/ New Histiocyte Society President, Kim Nichols
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Oct 26, 2022 |
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Episode 022 - Exciting Updates from Our 2021 Grant Recipients
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Sep 28, 2022 |
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Episode 021 - Rolling and Running Into September
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Aug 24, 2022 |
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Episode 020 - Work Beyond the Diagnosis: A Conversation with Cancer and Careers
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Jul 27, 2022 |
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Episode 019 - BONUS: A 2022 Mid-Year Update from the Histiocytosis Association
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Jul 15, 2022 |
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Episode 018 - Beauty From Ashes - Channeling Grief to Make a Difference w/ Histio Spouse Michelle Phay
|
Jun 22, 2022 |
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Episode 017 - History Firsthand - An Account of the Origins of the Histiocytosis Association w/ Jeff Toughill
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May 25, 2022 |
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Episode 016 - Introducing the Histiocytosis Association's Ambassador Program
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Apr 27, 2022 |
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Episode 015 - Erdheim-Chester Disease – Information, Resources and Hope from the Experts
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Mar 23, 2022 |
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Episode 014 - The Histiocytosis Association Scholarship Program
|
Mar 09, 2022 |
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Episode 013 - Hiking Our Way to a Cure
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Feb 23, 2022 |
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Episode 012 - Rare Disease Day 2022
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Jan 25, 2022 |
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Episode 011 - A Look into the North American Consortium for Histiocytosis
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Dec 21, 2021 |
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Episode 010 - A Year End Update from the Histiocytosis Association
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Nov 23, 2021 |
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Episode 009 - Emotional Wellness Month and the Benefits of Yoga
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Oct 26, 2021 |
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Episode 008 - The Ins and Outs of Clinical Trials and Our Research Grant Program
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Sep 22, 2021 |
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Episode 007 - Why Raising Awareness is Critical and the Impact it Can Have
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Aug 24, 2021 |
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Episode 006 - LCH to Bullying, How One Patient is Using Her Experiences to Make a Difference
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Jul 27, 2021 |
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Episode 005 - Managing Stress in Difficult Times
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Jun 22, 2021 |
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Episode 004 - EveryLife Foundation, the STAT Act and Rare Disease Week
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May 17, 2021 |
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Episode 003 - The Histiocyte Society – Hope for the Future
|
Apr 27, 2021 |
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Episode 002 - A Glimpse Into the Histiocytosis Association
|
Mar 23, 2021 |
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Episode 001 - Introduction to Beyond the Diagnosis
|
Mar 18, 2021 |
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Beyond the Diagnosis (Trailer)
|
Mar 17, 2021 |