The Spoonie Struggle

By Jessica Temple

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Category: Medicine

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Subscribers: 4
Reviews: 0
Episodes: 49

Description

The Spoonie Struggle is about the raw, honest look at living life with chronic illnesses and chronic pain conditions. Spoonies of all types are welcome to join us, but we will have a heavier focus on the lesser common, lesser understood, and difficult to diagnose conditions, such as Ehlers Danlos, Marfan's, Ankylosing spondylitis, Sjogren's syndrome, lupus, multiple sclerosis, sickle cell anemia, and endometriosis. In this show, we will discuss our own experiences of each aspect of life with our chronic health conditions, speak with other spoonies about their experiences, discuss coping, advocating, and self-care related to chronic illness, provide helpful and well-vetted resources, and interview professionals who are experts in the field to gain further insight into our conditions and learn about ways to educate family, friends, and doctors, advocate for ourselves, cope with our conditions, and hopefully, thrive! This is a great way to join a like-minded community and to meet people who are in the same boat as you. And, to realize that you are not alone. This is a nonjudgmental space to help each other through our chronic illness journey, to be an actual self again, and to make thriving in life an actual possibility.

Episode Date
Spoonie Dating and Divorce
Dec 22, 2021
Spoonie Self-Care
Dec 15, 2021
Distress Management Skills For Beating Pain and Burnout
Dec 08, 2021
Beating Pain and Spoonie Burnout Through Mindfulness
Dec 01, 2021
The Spoonie Burnout
Nov 24, 2021
Advocacy In The Medical World
Nov 17, 2021
Spoonie Self-Advocacy
Nov 10, 2021
Spoonie Parenting of Special Needs Kids
Nov 03, 2021
Using Massage and Movement for Pain Management With Guest Sam Visnic
Oct 29, 2021
Darren Radke's Experience Living With Lupus and Antiphospholipid Syndrome
Oct 20, 2021
The Ins and Outs of Antiphospholipid Syndrome With Guest Dr. Jill Schofield
Oct 13, 2021
Neuropsychological Symptoms of Conditions Associated With Ehlers Danlos Syndrome With Guest Dr. Veronica Burton
Oct 06, 2021
Updates, Crises, and Overwhelm
Oct 06, 2021
Treatment and Management of Ehlers Danlos With Guest Dr. Alissa Zingman
Sep 29, 2021
Kim "Kid" Curry's Story of Living With Multiple Sclerosis
Sep 22, 2021
Boronia Fallshaw's Story of Living With Vulvodynia
Sep 15, 2021
Health Coaching For Teens With Guest Denise Archilla, MSW
Sep 08, 2021
Paul Forchione's Story of Living With Cerebral Palsy
Sep 01, 2021
Hannah Budde's Story of Hypermobile Ehlers Danlos Syndrome and Mild TBI
Aug 25, 2021
Dafne Wiswell's Story of Raising Children With Type 1 Diabetes and Ankylosing Spondylitis
Aug 18, 2021
Raising a Child With Marfan Syndrome With Guest Allison Pullins
Aug 04, 2021
David Einsohn's Story With Ankylosing Spondylitis
Jul 28, 2021
Making Physical Therapy Work For Ehlers Danlos Syndrome with Guest Dr. Logan Swisher
Jul 21, 2021
Amanda Semenoff's Story of Living With Crohn's Disease
Jul 14, 2021
Alex Haut's Story with Ehlers Danlos Syndrome
Jul 07, 2021
Let's Talk About Crohn's Disease
Jul 05, 2021
An Insider's Look At MAST Cell Activation Syndrome With Guest Dr. Jill Schofield
Jun 30, 2021
Let's Talk About Complex Regional Pain Syndrome
Jun 28, 2021
Managing Chronic Pain With Dr. Linda Bluestein
Jun 23, 2021
Let's Talk About Trigeminal Neuralgia
Jun 21, 2021
Monica Michelle's Story With EDS, CRPS, MCAS, and POTS
Jun 16, 2021
Let's Talk About Postural Orthostatic Tachycardia Syndrome
Jun 14, 2021
Dawn Veselka's Story of Raising a Child With Mixed Connective Tissue Disease
Jun 09, 2021
Let's Talk About Marfan Syndrome
Jun 07, 2021
Lara Bloom's, of the Ehlers Danlos Society, Story With Ehlers Danlos and Associated Syndromes
Jun 02, 2021
Let's Talk About Sickle Cell Disease
May 31, 2021
Smooth Sailing Spoonie ER Visits With Guest Dr. Harvey Castro
May 26, 2021
Let's Talk About Endometriosis
May 24, 2021
Shayla Symone's Story With Ehlers Danlos Syndrome and Racial Discrimination
May 19, 2021
Let's Talk About Ankylosing Spondylitis
May 17, 2021
Disability Law With Guest Andrew Kantor
May 12, 2021
Let's Talk About Multiple Sclerosis
May 10, 2021
Chase Joseph's Story With RSD, EDS, Tics, Dysautonomia, and Autism
May 05, 2021
Let's Talk About Lupus
May 03, 2021
Let's Talk About Sjogren's Syndrome
Apr 28, 2021
Let's Talk Ehlers Danlos Syndrome
Apr 26, 2021
Jessica Temple's Story with Ehlers Danlos Syndrome
Apr 14, 2021
The Spoonie Struggle
Apr 03, 2021
The Spoonie Struggle Trailer
Apr 03, 2021