A Close Look at Sanfilippo
By Cure Sanfilippo Foundation
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Episodes: 12
Description
Questions/Comments: Email Contact@CureSanfilippoFoundation.orgFollow and/or support Cure Sanfilippo FoundationWebsite: www.CureSanfilippoFoundation.orgFacebook: https://www.facebook.com/CureSanfilippoFoundationTwitter: https://twitter.com/CureSanfilippoFInstagram: https://www.instagram.com/curesanfilippofnd/TikTok: https://www.tiktok.com/@curesanfilippo
| Episode | Date |
|---|---|
|
New Sanfilippo drug repurposing clinical trial; updates on other research + more
|
Nov 08, 2022 |
|
WORLD Symposium highlights Anakinra early results; upcoming gene therapy trial; + more
|
Mar 28, 2022 |
|
Kicking off 2022; upcoming key meeting with FDA; recent grants, WORLD conference, & more
|
Jan 26, 2022 |
|
Anakinra Trial update, Collaboration with UNC, other research updates, Help Simon, & more
|
Dec 20, 2021 |
|
BIG WEEK! World Sanfilippo Day & viral campaign, Trivia Gala, All Stripes & more
|
Nov 16, 2021 |
|
Sanfilippo & accelerated approval; newly-diagnosed guide; World Sanfilippo Awareness Day & more
|
Oct 28, 2021 |
|
Why a podcast?; Photobiomodulation research; the costs of pioneering research; + more
|
Oct 06, 2021 |
|
Patient Needs & Culture of the Laboratory; Kickoff 2021 StepUp fundraiser; families milestone & more
|
Sep 22, 2021 |
|
Get-to-know your child worksheet for school; Sanfilippo on TikTok; Inclusion + more
|
Sep 08, 2021 |
|
Free Educator Guide; Dopamine & Reducing Autism Behaviors + more
|
Aug 25, 2021 |
|
Chan Zuckerberg, Sanfilippo biomarkers & FDA; Anakinra trial update; + more
|
Aug 25, 2021 |
|
In Memory of Reagan; New testing created; $1M granted for 5 new projects + more
|
Aug 25, 2021 |