Rarely Heard: Hunter Syndrome
By Takeda Pharmaceuticals
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Category: Medicine
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Episodes: 10
Description
Rarely Heard is about Hunter syndrome, a rare and life-changing genetic condition and is intended for families, patients, and anyone interested in learning about the disease.This podcast is initiated and funded by Takeda Pharmaceuticals and is intended for an international audience outside the USA and UK. The information shared is for educational purposes and does not constitute clinical recommendations for diagnosing or managing disease. The speakers received honoraria from Takeda for their participation. The views expressed reflect the experience and opinion of the speaker. VV-MEDMAT-45197
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| Episode | Date |
|---|---|
|
Episode 1: The early signs of Hunter syndrome
|
Nov 10, 2021 |
|
Episode 2: Managing the symptoms of Hunter syndrome
|
Nov 08, 2021 |
|
Episode 3: Improving emotional well-being for families
|
Nov 07, 2021 |
|
Episode 4: A doctor’s perspective: The spectrum of patients with Hunter syndrome
|
Nov 06, 2021 |
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Episode 5: A doctor’s perspective: Multidisciplinary care for Hunter syndrome
|
Nov 05, 2021 |
|
Episode 6: Understanding how patient organizations can support families
|
Nov 04, 2021 |
|
Episode 7: A parent’s perspective: Living with Hunter syndrome
|
Oct 22, 2021 |
|
Episode 8: A parent’s perspective: The impact of neuronopathic symptoms
|
Oct 21, 2021 |
|
Episode 9: Hunter syndrome: A practical summary
|
Oct 19, 2021 |
|
Episode 0: Trailer
|
Oct 19, 2021 |