Living with Long covid
By Julie
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Category: Medicine
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Subscribers: 10
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Episodes: 107
Description
This podcast aims to raise awareness of long covid, provide a platform of support, education and the lived experience.My name is Julie, I am a registered nurse in the UK. I became unwell with Covid in May 2020 while working on the front line, during the first wave of the pandemic. Subsequently I live with long covid and POTS ( postural orthostatic tachycardia syndrome). I would like to share my journey and lived experience, the symptoms and how each impacts daily life. I aim to not only consider the physical issues but also the impact this has had mentally and emotionally. It is reported over 2 million people in the UK and an estimated 65 million worldwide, live with long covid. This is huge, and affects every area of a persons life, their family, friendships and work life. Join me and some great guests and let’s Learn, advocate and continue this journey together.
| Episode | Date |
|---|---|
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Karen,Emma and Oonagh talk about their campaign group #ThereForME
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Mar 23, 2025 |
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Special episode; Kerry Davies joins me for a chat on International long covid awareness day
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Mar 15, 2025 |
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Patrick Ussher book release; Understanding ME/CFS & strategies for healing
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Mar 09, 2025 |
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Episode 2 with Robin McNelis; Clinical specialist cardiorespiratory physiotherapist, the principles of pacing and understanding energy use, PEM/PESE and the lactate threshold
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Dec 01, 2024 |
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Returning guests; Patrick Ussher and Peter Deen; The myth of primary polydipsia, challenging medical gaslighting with science
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Nov 17, 2024 |
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Patrick Ussher and Peter Deen; Streasure4Health and metabolic stress
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Nov 03, 2024 |
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Episode 1 with Robin McNelis; Clinical specialist cardiorespiratory physiotherapist, understanding pacing micro pacing and why it is Important
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Oct 20, 2024 |
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Part 3 with returning guest Rachel Jessey - Artificial light, sunrise, sunset, sleep and much more
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Sep 15, 2024 |
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Part 2 with returning guest Rachel Jessey - faecal implant, vitamins and the gut microbiome
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Aug 18, 2024 |
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Returning guest Rachel Jessey - lets talk about the gut!
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Jul 28, 2024 |
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Guests Gary and Karen, discuss their personal journey and setting up a local Long Covid support group
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Jul 14, 2024 |
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The pandemic, the government and the general election
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Jun 30, 2024 |
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Four years later!
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Jun 16, 2024 |
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Guest; A. K. Davidson - Poetry for life and other chronic conditions
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Jun 02, 2024 |
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Guests; Jess and Ally talk about the Turnto app for Cerebral Palsy and the upcoming app for - Long Covid and MECFS
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May 19, 2024 |
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Alexander Taylor - Creating a safe space
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Apr 28, 2024 |
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As requested....My experience on using a fitted Vagus nerve stimulator!
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Apr 14, 2024 |
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NHS court hearing update with Kevin Digby and Rachel Hext
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Mar 17, 2024 |
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Professor Louise Cummings and Kerry Davies; research, speech, language and cognitive communication disorders in Long Covid
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Feb 25, 2024 |
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Q&A with Kevin Digby GA Solicitors
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Feb 11, 2024 |
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Invisible? but you can see and hear me!
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Jan 28, 2024 |
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Starting a new year 2024; not everything is perfect or planned
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Jan 14, 2024 |
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Keeping healthy boundaries
|
Dec 24, 2023 |
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Jo Bullingham joins me from POTS UK
|
Dec 10, 2023 |
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The autonomic nervous system, gaslighting and feeling able to talk about anxiety and depression
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Nov 26, 2023 |
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Jo Thomas personalised coach talks about Long term conditions, fatigue and her own experience of POTS
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Nov 12, 2023 |
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Special guest Kerry Davies interviews me!
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Oct 29, 2023 |
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Taking a break
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Aug 13, 2023 |
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Robbie Williams....Why?
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Aug 06, 2023 |
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Guest Merel; choir master for the Long Covid kids choir
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Jul 30, 2023 |
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The bruising, the swelling, the rashes, the loss, the love, the hope!
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Jul 23, 2023 |
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Rachel Jessey - from Benourished talks on the gut microbiome, vagus nerve and more
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Jul 16, 2023 |
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Reema Ahmad: Discusses, Neuro linguistics programming (NLP), Trauma, culture and personal experience of having Long Covid in India
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Jul 09, 2023 |
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Gez Medinger; talks about his personal journey, The Long Covid handbook, Youtube videos and more.
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Jul 02, 2023 |
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Dr Sarah Glynne; Long Covid hormone imbalance, peri menopause, menopause and HRT
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Jun 25, 2023 |
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Making Peace with my Long Covid journey
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Jun 18, 2023 |
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My treatment, rehab, and symptom management journey
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Jun 11, 2023 |
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What is restorative rest?
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Jun 04, 2023 |
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Guest Shannon; Australia's vaccine mandate and living with vaccine injury
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May 28, 2023 |
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David Osborn: Covid airborne transmission alliance (CATA), PPE, RIDDOR and the covid inquiry
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May 21, 2023 |
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Oonagh Cousins; former professional athlete of the British rowing team on life with Long Covid
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May 14, 2023 |
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Cognitive dysfunction or brain fog? and is this mistaken for mental ill health?
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May 07, 2023 |
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Losing my NHS Job!
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Apr 30, 2023 |
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Guest Harry Leeming; the Visible App, long covid, chronic conditions and much more
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Apr 23, 2023 |
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Guest Respiratory Consultant Dr Asad Khan talks about Long Covid, treatments and his personal journey
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Apr 16, 2023 |
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Seeing light in the darkness
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Apr 09, 2023 |
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Guest Emily Bland; Clinical Physiologist and fatigue specialist
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Apr 02, 2023 |
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Coping with crashes
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Mar 26, 2023 |
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Post exertional malaise (PEM)/ Post exertional symptom exacerbation (PESE) Why is it so confusing?
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Mar 19, 2023 |
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How are you?
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Mar 12, 2023 |
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Planning and preparing to return to work
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Mar 05, 2023 |
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Long Covid Advocate Emma Benyon, shares her journey, symptoms, gaslighting and living life with Long Covid
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Feb 26, 2023 |
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In sickness and in health
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Feb 19, 2023 |
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Podcast guest and fellow nurse Kerry on advocacy, symptoms and living with Long Covid
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Feb 12, 2023 |
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Guest Heidi Baseler neuroscientist talks about the brain, micro-clots, research and Long Covid
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Feb 05, 2023 |
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Special episode: Ahead of tonights Panorama programme: Forgotten Heroes of the covid frontline, I talk with Rachel who features in the show
|
Jan 30, 2023 |
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Long Covid; hormones, peri-menopause, menopause, POTS, What is what??
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Jan 29, 2023 |
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The Journey so far!
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Jan 22, 2023 |
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Getting to know me!
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Jan 15, 2023 |
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My return to work part two - increasing my hours!
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Jan 08, 2023 |
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Chiara Berardelli - singer song writer and former GP, talks about life living with Long Covid
|
Jan 01, 2023 |
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Have yourself a merry little Christmas
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Dec 25, 2022 |
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Communication- I have a voice!
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Dec 18, 2022 |
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Dr Wes Ely- Long Covid validation
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Dec 11, 2022 |
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My return to work and the planning phase
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Dec 04, 2022 |
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Fatigued to fantastic with Dr Jacob Teitelbaum
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Nov 27, 2022 |
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Suicide and my son - special guest Alexander Taylor
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Nov 20, 2022 |
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Update from my first ever podcast guest, and fellow long hauler, Ian
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Nov 13, 2022 |
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UWS Pacing trials with Nilihan Sanal Hayes
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Nov 06, 2022 |
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Symptoms and the seasons
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Oct 30, 2022 |
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Hope, Long Covid research, Long Covid kids and more with Dr Binita Kane
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Oct 23, 2022 |
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I am not Long Covid!
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Oct 16, 2022 |
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Life has to be more than work!
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Oct 09, 2022 |
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Holiday challenges and wins with long term conditions
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Oct 02, 2022 |
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Travel tips for chronic illness & disability- with guest Cass
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Sep 25, 2022 |
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Looks can be deceiving!
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Sep 18, 2022 |
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The self that was, and the self that is! with Dr Anna Robson
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Sep 11, 2022 |
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Guilty if I do, and guilty if I don't!
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Sep 04, 2022 |
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Fatigue Vs Tired
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Aug 28, 2022 |
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Disability is not a dirty word!
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Aug 21, 2022 |
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Can Long Covid go into remission? What about ME/CFS?
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Aug 07, 2022 |
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A day in the life! the Long Covid journey
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Jul 21, 2022 |
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What is the difference between symptom management and treatment?
|
Jul 21, 2022 |
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The experience of a fellow long hauler, and my first podcast guest
|
Jul 05, 2022 |
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What is POTS?
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Jul 05, 2022 |
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Long term illness and toxic positivity
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Jun 22, 2022 |
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The Long Covid emotional rollercoaster
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Jun 22, 2022 |
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The true importance of self care; its much more then a facial
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Jun 21, 2022 |
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The trials and tribulations of going out!
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Jun 08, 2022 |
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No sleep or too much sleep
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Jun 08, 2022 |
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What made Twitter angry? "its all in your head" take 2
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May 27, 2022 |
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Does Anti-inflammatory make a difference
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May 27, 2022 |
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Can I still do my job?
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May 17, 2022 |
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Reducing Sugar...but I love cake
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May 12, 2022 |
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"Its all in your head"
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May 05, 2022 |
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The 4th P and Me
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Apr 30, 2022 |
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To exercise or not, that is the question?
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Apr 20, 2022 |
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Unable to protect my family
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Apr 12, 2022 |
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What would you like to drink?
|
Apr 05, 2022 |
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How do you Pace?
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Mar 15, 2022 |
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Combatting Constipation
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Mar 15, 2022 |
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How do you say goodbye?
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Mar 08, 2022 |
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When anxiety joins in!
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Mar 03, 2022 |
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You don't look ill
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Feb 27, 2022 |
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The impact of brain fog
|
Feb 20, 2022 |
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Long Covid Relapse
|
Feb 17, 2022 |
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Let's talk voice issues
|
Feb 13, 2022 |