Listen to a podcast, please open Podcast Republic app. Available on Google Play Store and Apple App Store.
Join me every week as I navigate the ups and downs, and everything in between of the crazy stressful, but always beautiful life of being a rare disease parent.
Episode | Date |
---|---|
Talking about all the things with The Rare Life's Madeline Cheney
|
Mar 26, 2024 |
Turning grief and trauma into growth and healing with Past Life Regression Therapist, Alena Gourley
|
Dec 26, 2023 |
Catchup/ dealing with the holiday blues
|
Dec 02, 2023 |
How to fundraise like a BOSS with special guest and fellow rare mama, Brittany Markham
|
Oct 31, 2023 |
Life Update
|
Oct 23, 2023 |
When the "FOMO" starts creeping in as a medical parent
|
Oct 06, 2023 |
Is my child's diagnosis a "karmic wake up call" from the universe?
|
Sep 03, 2023 |
Coffee & catchup
|
Aug 15, 2023 |
My top travel tips for road tripping with your medically complex child
|
Jul 14, 2023 |
Ain't no shame in my anti-depressant game
|
Jun 30, 2023 |
A Father's Perspective with Rare Disease Dad & Director of Community Engagement for Global Genes, Mr. Daniel DeFabio
|
Jun 12, 2023 |
Top lessons I have learned in my first four years of being a rare disease parent
|
May 30, 2023 |
How to best support the caregiver parent in your life
|
May 16, 2023 |
Where I have been the past two months
|
May 03, 2023 |
How to find and manage the right care team for your medically complex child
|
Feb 14, 2023 |
Career transitions and life as a rare disease mom to twins with Angel Aid Cares Operations Manager, Megan Loden
|
Jan 31, 2023 |
The word(s) I will live by in 2023
|
Jan 17, 2023 |
Cheers to a new year! Our top moments of 2022
|
Jan 03, 2023 |
Walking through that pesky tunnel of grief
|
Dec 23, 2022 |
How to fit in some fun during the busy month of December
|
Dec 13, 2022 |
Family planning after a diagnosis with special guest and fellow rare mama, Taylor Sabky
|
Dec 06, 2022 |
A COVID-style Thanksgiving
|
Nov 29, 2022 |
Learning when to let go of control (or as my Grandma always said, "que sera sera!")
|
Nov 22, 2022 |
Stepping out of survival mode and putting your best self forward with special guest: podcast host and life coach, Lauren Lowery
|
Nov 15, 2022 |
'Tis the season for colds and flus
|
Nov 08, 2022 |
Our BIG news
|
Oct 25, 2022 |
Making the leap into a healthier lifestyle with Nutrition Coach and Personal Trainer, Sabrina Miller
|
Oct 18, 2022 |
Celebrating every inch-stone!
|
Oct 11, 2022 |
One family, two different rare diagnosis' with special guest (and a TRUE rare disease warrior mom) Nadia Slatch
|
Oct 04, 2022 |
Stream of consciousness/ Roman turns FOUR
|
Sep 27, 2022 |
Reminiscing about our big Florida trip with special guest: my husband, (and car-packer extraordinaire) Don Arnold
|
Sep 20, 2022 |
Life update/stream of consciousness and how I'm learning to let grief & joy co-exist
|
Sep 13, 2022 |
Best in class caregiving with mejo app founder Ryan Sheedy
|
Sep 06, 2022 |
*BONUS EPISODE* How to deal with ignorant comments
|
Aug 03, 2022 |
We made it to the double digits! Life update + Special Announcement
|
Jul 22, 2022 |
Life Update/Stream of consciousness
|
Jul 12, 2022 |
The 5 minute journaling techniques I use to help declutter my brain
|
Jul 05, 2022 |
How to (kindly) cut ties with a therapist or doctor who is no longer serving your child in the way they need
|
Jun 28, 2022 |
How to make connections and utilize all your resources as a rare disease parent
|
Jun 20, 2022 |
Father's Day Episode with extra special guest: my husband (AKA: Dadvocate-EXTRAORDINAIRE)
|
Jun 14, 2022 |
How to continue to nurture your relationship with your spouse as a special needs parent
|
Jun 06, 2022 |
Trusting your "parental instincts"
|
May 30, 2022 |
The post-holiday funk
|
May 30, 2022 |
Our diagnosis journey
|
May 19, 2022 |