Confessions of a Rare Disease Mama

By Jillian Arnold

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Image by Jillian Arnold

Category: Parenting

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Episodes: 44

Description

Join me every week as I navigate the ups and downs, and everything in between of the crazy stressful, but always beautiful life of being a rare disease parent.


Episode Date
Talking about all the things with The Rare Life's Madeline Cheney
Mar 26, 2024
Turning grief and trauma into growth and healing with Past Life Regression Therapist, Alena Gourley
Dec 26, 2023
Catchup/ dealing with the holiday blues
Dec 02, 2023
How to fundraise like a BOSS with special guest and fellow rare mama, Brittany Markham
Oct 31, 2023
Life Update
Oct 23, 2023
When the "FOMO" starts creeping in as a medical parent
Oct 06, 2023
Is my child's diagnosis a "karmic wake up call" from the universe?
Sep 03, 2023
Coffee & catchup
Aug 15, 2023
My top travel tips for road tripping with your medically complex child
Jul 14, 2023
Ain't no shame in my anti-depressant game
Jun 30, 2023
A Father's Perspective with Rare Disease Dad & Director of Community Engagement for Global Genes, Mr. Daniel DeFabio
Jun 12, 2023
Top lessons I have learned in my first four years of being a rare disease parent
May 30, 2023
How to best support the caregiver parent in your life
May 16, 2023
Where I have been the past two months
May 03, 2023
How to find and manage the right care team for your medically complex child
Feb 14, 2023
Career transitions and life as a rare disease mom to twins with Angel Aid Cares Operations Manager, Megan Loden
Jan 31, 2023
The word(s) I will live by in 2023
Jan 17, 2023
Cheers to a new year! Our top moments of 2022
Jan 03, 2023
Walking through that pesky tunnel of grief
Dec 23, 2022
How to fit in some fun during the busy month of December
Dec 13, 2022
Family planning after a diagnosis with special guest and fellow rare mama, Taylor Sabky
Dec 06, 2022
A COVID-style Thanksgiving
Nov 29, 2022
Learning when to let go of control (or as my Grandma always said, "que sera sera!")
Nov 22, 2022
Stepping out of survival mode and putting your best self forward with special guest: podcast host and life coach, Lauren Lowery
Nov 15, 2022
'Tis the season for colds and flus
Nov 08, 2022
Our BIG news
Oct 25, 2022
Making the leap into a healthier lifestyle with Nutrition Coach and Personal Trainer, Sabrina Miller
Oct 18, 2022
Celebrating every inch-stone!
Oct 11, 2022
One family, two different rare diagnosis' with special guest (and a TRUE rare disease warrior mom) Nadia Slatch
Oct 04, 2022
Stream of consciousness/ Roman turns FOUR
Sep 27, 2022
Reminiscing about our big Florida trip with special guest: my husband, (and car-packer extraordinaire) Don Arnold
Sep 20, 2022
Life update/stream of consciousness and how I'm learning to let grief & joy co-exist
Sep 13, 2022
Best in class caregiving with mejo app founder Ryan Sheedy
Sep 06, 2022
*BONUS EPISODE* How to deal with ignorant comments
Aug 03, 2022
We made it to the double digits! Life update + Special Announcement
Jul 22, 2022
Life Update/Stream of consciousness
Jul 12, 2022
The 5 minute journaling techniques I use to help declutter my brain
Jul 05, 2022
How to (kindly) cut ties with a therapist or doctor who is no longer serving your child in the way they need
Jun 28, 2022
How to make connections and utilize all your resources as a rare disease parent
Jun 20, 2022
Father's Day Episode with extra special guest: my husband (AKA: Dadvocate-EXTRAORDINAIRE)
Jun 14, 2022
How to continue to nurture your relationship with your spouse as a special needs parent
Jun 06, 2022
Trusting your "parental instincts"
May 30, 2022
The post-holiday funk
May 30, 2022
Our diagnosis journey
May 19, 2022