It Happened To Me: A Rare Disease and Medical Challenges Podcast

By Cathy Gildenhorn, Beth Glassman, and Kira Dineen (DNA Today)

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Category: Science

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Subscribers: 2
Reviews: 0
Episodes: 35

Description

The mission of our podcast is to support you, our listeners and to create community, as you confront the toughest challenges in life. All of us will experience health hardships. The real question is how we adapt. That is the focus of It Happened To Me, which wants to help you overcome limitations and live a full and satisfying life. Drawing on their own health challenges, hosts Cathy Gildenhorn and Beth Glassman interview guests who share stories and research to help you succeed in the face of difficult health obstacles. It happened to me…I’m not alone and neither are you. We encourage you to learn more at ItHappenedToMePod.com. Please use the contact form on our website to submit your guest suggestions, comments, questions, ideas, and feedback for the show, you can also email us directly at ItHappenedToMePod@gmail.com. It Happened To Me is created and hosted by Cathy Gildenhorn and Beth Glassman. Steve Holsonback is our media engineer and co-producer. DNA Today’s Kira Dineen is our ...

Episode Date
#34 Bloom Syndrome with The Yasbins
Apr 15, 2024
#33 Tay-Sachs and Grief with Myra Sack
Apr 01, 2024
#32 Tay-Sachs and Carrier Screening with Dr. Matthew Goldstein
Mar 18, 2024
#31 Blood Transfusion Therapy with Lori Harada & Carly Newton
Mar 04, 2024
#30 Rare Disease Advocacy with Wes Michael
Feb 19, 2024
#29 Exploring the Potential of Artificial Corneas with Dr. Esen Akpek
Feb 05, 2024
#28 Dry Eye with Dr. Esen Akpek
Jan 15, 2024
#27 Prevention of Blindness Society
Jan 01, 2024
#26 Wolfram Syndrome Expertise from Dr. Fumihiko Urano
Dec 18, 2023
#25 Pancreatic Cancer with Patient Advocate Leslie Waldman
Dec 04, 2023
#24 Neuro-Ophthalmic Disorders with Dr. Andrew Carey
Nov 20, 2023
#23 Autoimmune Conditions with Dr. Colby Kash
Nov 06, 2023
#22 Papillary Thyroid Cancer with Carly Flumer
Oct 16, 2023
#21 Wolfram Syndrome with Parent Pat Gibilisco
Oct 02, 2023
#20 Familial Dysautonomia Foundation
Sep 18, 2023
#19 Pierre Robin Syndrome with Corinne Merlino
Sep 04, 2023
#18 Hattersley-Urano Wolfram Syndrome with Parent Tamara Blum
Aug 21, 2023
#17 Mental Health Help with Social Worker Tamara Blum
Aug 07, 2023
#16 ALS with Brooke Eby
Jul 17, 2023
#15 Bullous Pemphigoid with argenx
Jul 03, 2023
#14 Multifocal Motor Neuropathy with argenx
Jun 19, 2023
#13 Medical Challenges Toolkit with Kimberly Callinan
Jun 05, 2023
#12 Bardet Biedl Syndrome with The Alms (Part 2)
May 15, 2023
#11 Bardet Biedl Syndrome with The Alms (Part 1)
May 01, 2023
#10 Low Vision with Dr. Judith Goldstein
Apr 17, 2023
#9 Wolfram Syndrome with Stephanie Gebel Snow
Apr 03, 2023
#8 Oculoplastic Surgery with Dr. Shannath Merbs
Mar 20, 2023
#7 Prenatal and Cancer Genetic Testing with Karen Grinzaid
Mar 06, 2023
#6 Glaucoma with Dr. Mona Kaleem
Feb 20, 2023
#5 Wolfram Syndrome with Dr. Sarah Gladstone
Feb 06, 2023
#4 Genetic Counseling for Rare Diseases with Kira Dineen
Jan 23, 2023
#3 Wolfram Syndrome with Cathy Gildenhorn
Jan 09, 2023
#2 Glaucoma and Low Vision with Beth Glassman
Jan 09, 2023
#1 Inspiration to Launch “It Happened To Me”
Jan 09, 2023
Trailer: It Happened To Me
Dec 31, 2022