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Episode | Date |
---|---|
The patient journey | Von Hippel-Lindau syndrome (VHL)
|
Jan 04, 2024 |
The patient journey | Leber hereditary optic neuropathy (LHON)
|
Sep 20, 2023 |
The patient journey | FOP (Fibrodysplasia Ossificans Progressiva ), Lexi's story
|
Aug 30, 2023 |
The patient journey | SATB2-associated syndrome (SAS)
|
Jun 16, 2023 |
The patient journey | Acanthamoeba keratitis
|
Nov 24, 2022 |
The patient journey | Dravet syndrome
|
Feb 28, 2022 |
Access for rare diseases - how to navigate conflict, compromise and collaboration
|
Jan 31, 2022 |
The patient journey | Pompe disease
|
Sep 15, 2021 |
The patient journey | Fibrodysplasia Ossificans Progressiva (FOP)
|
Aug 12, 2021 |
The patient journey | Migraine
|
May 18, 2021 |
The patient journey | ATTR (transthyretin) amyloidosis and wild type amyloidosis disease
|
May 18, 2021 |