GlycoCast, a journey of families, sugars and rare disorders

By Ivan Martinez Duncker

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Category: Medicine

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Episodes: 11

Description

Welcome to GlycoCast, the podcast where the sweet science of sugars meets the mysteries of medicine, and our shared humanity comes to life. We will focus on a journey of families, sugars and rare disorders called Congenital Disorders of Glycosylation. We'll bring you tales of struggle and perseverance, as we speak to families affected by CDGs, learn about their experiences, their challenges, and their achievements. We'll hear from the researchers on the front lines, unearthing the mysteries of CDGs, and the healthcare professionals who play a key role in managing these disorders.

Episode Date
Rebooting: Returning to the Mic after Baby #2 While Managing a Child with a Rare Disease
Oct 10, 2024
CDGCare: a story of family, advocacy and awareness
May 04, 2024
GMPPA-CDG: A Cure Odyssey
Apr 18, 2024
Aussie Louis and the Science of CDG Biomarkers
Dec 20, 2023
Trailer - Aussie Louis and the Science of CDG Biomarkers
Dec 04, 2023
Diagnostic challenges of rare disorders in Latin America
Nov 11, 2023
Fly-ing Insights: Unraveling Rare Disorders with Tiny Wings
Nov 10, 2023
Trailer - Fly-ing Insights: Unraveling Rare Disorders with Tiny Wings
Nov 04, 2023
The story of Alexa and PIGN-CDG
Sep 06, 2023
Trailer - The story of Alexa and PIGN-CDG
Aug 23, 2023
The story of Karen Morici a CDG mom
Jul 18, 2023