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Episode | Date |
---|---|
Rebooting: Returning to the Mic after Baby #2 While Managing a Child with a Rare Disease
|
Oct 10, 2024 |
CDGCare: a story of family, advocacy and awareness
|
May 04, 2024 |
GMPPA-CDG: A Cure Odyssey
|
Apr 18, 2024 |
Aussie Louis and the Science of CDG Biomarkers
|
Dec 20, 2023 |
Trailer - Aussie Louis and the Science of CDG Biomarkers
|
Dec 04, 2023 |
Diagnostic challenges of rare disorders in Latin America
|
Nov 11, 2023 |
Fly-ing Insights: Unraveling Rare Disorders with Tiny Wings
|
Nov 10, 2023 |
Trailer - Fly-ing Insights: Unraveling Rare Disorders with Tiny Wings
|
Nov 04, 2023 |
The story of Alexa and PIGN-CDG
|
Sep 06, 2023 |
Trailer - The story of Alexa and PIGN-CDG
|
Aug 23, 2023 |
The story of Karen Morici a CDG mom
|
Jul 18, 2023 |