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Living with ME/CFS and Long Covid and other Chronic Illness or Disability. Follow me while I explore the challenges, the suffering, the darkness and the light while living with a chronic illness or disability. Along the way I will share insights into how I survive, how I struggle, and how I STAY ALIVE. ❤️
| Episode | Date |
|---|---|
|
Impossible Decisions
|
Jun 08, 2026 |
|
Severe Brain Fog
|
May 28, 2026 |
|
The Experience of Living with ME/CFS - a poem
|
May 07, 2026 |
|
In The Hospital
|
Apr 09, 2026 |
|
2026 Update
|
Feb 16, 2026 |
|
Talking Again In 2025
|
Dec 18, 2025 |
|
One Thing ☝️
|
Nov 05, 2025 |
|
Remembering What Real Life Is Like
|
Aug 27, 2025 |
|
A Moment of Silence for Severe ME/CFS Patients
|
Aug 07, 2025 |
|
Living In Unknowns
|
Jul 30, 2025 |
|
Too Many Of Us Are Dying
|
Jul 22, 2025 |
|
Dear America,
|
Jul 07, 2025 |
|
4th of July Disgrace
|
Jul 04, 2025 |
|
Growing Up With ME/CFS
|
Jun 11, 2025 |
|
Dear Healthy People
|
Jun 05, 2025 |
|
This Ain't No F*ing Flu
|
May 28, 2025 |
|
Unseen Courage
|
May 12, 2025 |
|
This Is ME/CFS
|
May 09, 2025 |
|
Chocolate Fix!
|
Apr 17, 2025 |
|
Cutting 99.7% Out Of Your Life
|
Mar 27, 2025 |
|
My New Print Store!
|
Mar 10, 2025 |
|
The Forever Night Of ME/CFS
|
Mar 04, 2025 |
|
I Started Eating Food Again in 2024...What Will 2025 Bring?
|
Feb 17, 2025 |
|
The 2025 ME/CFS Valentine's Day Challenge!
|
Feb 14, 2025 |
|
Letter to my Fingernails from my Nervous System
|
Feb 10, 2025 |
|
The Blackhole of ME/CFS Medical Care
|
Jan 20, 2025 |
|
Ron Davis's message of hope for 2025 and plea for help
|
Jan 15, 2025 |
|
Chronically Sick Holidays
|
Dec 24, 2024 |
|
Make a Holiday Plan and Check it Twice!
|
Dec 20, 2024 |
|
Health Care Failings
|
Dec 15, 2024 |
|
Thanksgiving 2024
|
Nov 27, 2024 |
|
Feeling Embarrassed About Ourselves
|
Oct 29, 2024 |
|
My 41st Birthday Fundraiser for Ronald W. Davis PhD's ME/CFS Research!
|
Oct 24, 2024 |
|
ME/CFS Olympics
|
Oct 08, 2024 |
|
The Two Worlds Of Chronic Illness
|
Sep 19, 2024 |
|
Riding on Hope
|
Sep 10, 2024 |
|
Dear NHS, Don't Kill Karen Gordon
|
Aug 17, 2024 |
|
Drops From The Well of Suffering: Honoring Maeve Boothby O’Neill
|
Aug 08, 2024 |
|
Homelessness Is Not a Crime!
|
Jul 08, 2024 |
|
I Still Feel Free
|
May 12, 2024 |
|
ME/CFS Anthem
|
May 09, 2024 |
|
When Does Self Care Become Harmful?
|
Apr 23, 2024 |
|
We Are Not Defined by their Prejudice
|
Apr 04, 2024 |
|
ME/CFS / Long Covid is an Ever Changing Journey
|
Apr 04, 2024 |