PNRI Science: Rare Disease, Real Progress

By PNRI

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Category: Natural Sciences

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Episodes: 12

Description

We're back with Season 2 of our podcast PNRI Science–this time recorded live at PNRI's 2025 Rare Disease Day symposium. It was a day full of energy, insight, and shared purpose, as scientists, clinicians, advocates, and industry leaders came together to accelerate rare disease research and treatment. Hosted by Jack Faris, CEO of the Pacific Northwest Research Institute, and his daughter, actor and producer Anna Faris, this season captures personal stories and fresh perspectives from across the rare disease landscape. You'll hear from rare disease families, early-career scientists, seasoned clinicians, and corporate partners, all reflecting on what drives their work—and what's possible when people from different sectors come together. Because in rare disease, a diagnosis isn't the end of the story. It's the start of something powerful. To learn more about PNRI's scientists and groundbreaking research, visit pnri.org. Follow @pnrigenetics on Instagram | X (Twitter) | LinkedIn | YouTube | Facebook.

Episode Date
Episode 4: Industry Partner Perspectives
May 27, 2025
Episode 3: Voices From the Bench and the Bedside
May 19, 2025
Episode 2: Driven by Diagnosis
May 12, 2025
Episode 1: Two Institutions, One Powerful Event
May 05, 2025
Introducing Season 2: Voices From Rare Disease Day 2025
May 04, 2025
Episode 6: Dr. Aimée Dudley: Patients + Researchers = Strength
Oct 08, 2024
Episode 5: Dr. Cláudia Carvalho: Science is a Social Experiment
Sep 24, 2024
Episode 4: Dr. Michael Metzger: Future of Healthcare from a Clam
Sep 10, 2024
Episode 3: Dr. Bill Hagopian and Michael Killian: Tracking Ghosts
Aug 27, 2024
Episode 2: Dr. Lisa Stubbs: Demystifying Nature vs. Nurture
Aug 13, 2024
Episode 1: Driven by the Question with Rick McLaughlin
Jul 30, 2024
PNRI Science: Mystery & Discovery
Jul 11, 2024