PWS United
By PWSA | USA
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Category: Non-Profit
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Subscribers: 1
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Episodes: 38
Description
Welcome to PWS United, a podcast for the Prader-Willi Syndrome community, brought to you by PWSA | USA.
This podcast gives the latest news in research, advocacy, and family support by bringing together staff, volunteers, PWS treatment specialists, biotech and pharmaceutical representatives, caregivers, family members, and individuals with PWS. Our goal is to connect education, awareness, and resources with those living with PWS and their supporters.
Join us in our mission to enhance the quality of life and empower those affected by Prader-Willi syndrome.
| Episode | Date |
|---|---|
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Ep38 Pulse 121: Occupational Therapy Month, Conference Cap, Awareness Month Proclamation, Financial Security Webinar
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Apr 22, 2025 |
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Ep37 Ask Nurse Lynn: Growth Hormone, Skin-Picking, GLP-1s
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Apr 15, 2025 |
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Ep36 Pulse 120: Annual Report, VYKAT XR Webinar, Awareness Proclamation Toolkit, Sibling Guide
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Apr 08, 2025 |
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Ep35: PWS and Sibling Support
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Apr 01, 2025 |
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Ep34 Pulse 119: Awareness, Staying Cool at Conference, Sibling Stories, Clinical Trial with Tirzepatide
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Mar 25, 2025 |
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Ep33: Special Education and the Department of Ed.
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Mar 18, 2025 |
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Ep32Pulse 118: Harmony Webinar, Hot Stove Dinner, State Advocacy, TREND GI Report, Community Publications
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Mar 11, 2025 |
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Ep31 PWS Awareness Starts Here: Fundraising with Hope United & United We Brunch
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Mar 04, 2025 |
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Ep30 Pulse 117: Commitment to Advocacy, Rare Disease Week, 50th Gala Tickets, Calls to Action
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Feb 25, 2025 |
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Ep 29: Pioneers in PWS - Residential Care and the Professional Providers Advisory Board
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Feb 18, 2025 |
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Ep28 Pulse 116: Growth Hormone Pioneer, Advocacy Wins, TREND Report on Behavior, Job Announcement
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Feb 11, 2025 |
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Ep27: Advocacy with Terry Wilcox from Patients Rising
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Feb 04, 2025 |
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Ep26: Clinical Trial Perspectives Part 1
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Jan 28, 2025 |
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Ep25 Pulse 115: Countdown to Conference, Hot Stove Dinner, Changes at FDA, Volunteer Spotlight, Sertraline
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Jan 21, 2025 |
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Ep24 TREND & PWS Connect
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Jan 14, 2025 |
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Ep 23 Pulse 114: Celebrating 50 Years of Hope, Advocacy Class, PWSA Egypt, Journeys Project on Discord, Community Stories
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Jan 07, 2025 |
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Ep22 Pulse 113: Marathon Runner, Inclusive Advocacy, Art Share Extension, PWS in Adulthood, The Holidays
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Dec 24, 2024 |
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Ep21 Meet the PWSA | USA Staff
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Dec 17, 2024 |
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Ep20 Pulse 112: Angel Drive, Georgia Advocacy, Growth Hormone, Clinical Trial Journey
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Dec 10, 2024 |
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Ep19 Caring for the Caregiver
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Dec 03, 2024 |
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Ep18 National Adoption Month, Adopting a Loved One with PWS
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Nov 26, 2024 |
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Ep17 Pulse 111: 15Q Day, Hope in Action, Trend Pain Report, Hyperphagia Study
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Nov 19, 2024 |
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Ep16 Self-Care, Self-Advocacy, and Gratitude
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Nov 12, 2024 |
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Ep15 Pulse 110: Angel Drive Kick-Off, NORD Summit, Family Caregiver Month, Clinical Trial Journey
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Nov 07, 2024 |
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Ep14: Adults with PWS Advisory Board
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Oct 29, 2024 |
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Ep13 Pulse109: Physical Therapy Month, Dominique Valenti, FDA Meeting, PWS Book Review
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Oct 22, 2024 |
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Ep12 PWS Parent Clint Hurdle Shares Advice for Dads, Personal Stories
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Oct 15, 2024 |
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Pulse 108: Prepare for Holidays, New Staff, Operation Holiday Cheer, & More
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Oct 08, 2024 |
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Ep10 Clinical Trials
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Oct 01, 2024 |
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Pulse 107: Service Dogs, Podcast Update, Narcolepsy Spotlight, & More
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Sep 24, 2024 |
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Ep8 Direct Support Professionals Week Panel Discussion
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Sep 17, 2024 |
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Ep7 Edition 106: PWSA | USA Pulse
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Sep 10, 2024 |
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Ep6 What's the Big Deal About Exercise?
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Sep 03, 2024 |
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Back to School: PWSA | USA Special Edition Pulse
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Aug 30, 2024 |
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Advocating for Change: A Conversation with Dorothea Lantz
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Aug 30, 2024 |
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Edition 104: PWSA | USA Pulse
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Aug 30, 2024 |
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PWS BIPOC Affinity Group
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Aug 30, 2024 |
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PWS Connect Teaser
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Aug 23, 2024 |