Listen to a podcast, please open Podcast Republic app. Available on Google Play Store and Apple App Store.
| Episode | Date |
|---|---|
|
Standing With Us: Senator Joe Addabbo on Advocacy, Step Therapy & the Power of One Story
|
May 28, 2026 |
|
Dental Care Without Fear: Oral Health and Hemophilia B
|
Apr 24, 2026 |
|
Changing the Language, Changing the Care: A New Era for Women with Bleeding Disorders
|
Mar 30, 2026 |
|
The Trail of AIDS: From Grief to Government Accountability (Part 2)
|
Mar 09, 2026 |
|
The Trail of AIDS: Dana Kuhn’s Story of Love, Loss, and the Fight for Blood Safety (Part 1)
|
Feb 16, 2026 |
|
Music Heals
|
Jan 31, 2026 |
|
We Are the World: Celebrating Unity Through Music
|
Jan 08, 2026 |
|
Holding Space: Grief, Resilience, and Mental Health in the Bleeding Disorders Community
|
Dec 19, 2025 |
|
Stronger Together: Building Community at Meetings on the Road with Dr. Whitley Grant-Goodman
|
Dec 18, 2025 |
|
Finding Peace During the Holidays: Regulating the Nervous System with Dr. Shaleen Kendrick
|
Nov 25, 2025 |
|
From Tornado to Triumph: Mandy Aberegg on Raising Resilient Kids with Hemophilia B
|
Nov 21, 2025 |
|
Breaking the Barrier: Mental Health and Substance Use Access in the Bleeding Disorders Community
|
Oct 27, 2025 |
|
2025 World Mental Health Day Ep 3: Sustaining Wellbeing & When to Seek Support
|
Oct 09, 2025 |
|
2025 World Mental Health Day Ep 2: Stronger Connections at Work & Beyond
|
Oct 09, 2025 |
|
2025 World Mental Health Day Ep 1: Pause & Reflect – Connecting with Yourself
|
Oct 09, 2025 |
|
Save One Life, Save the World: Impacting the Global Bleeding Disorders Community, One Life at a Time
|
Sep 26, 2025 |
|
Emergency Advocacy, System Change, and the Founding of Danny’s Dose with Darlene Shelton
|
Sep 12, 2025 |
|
Resilience and Radical Curiosity: How Families Can Grow Through Awe with Deborah Farmer Kris
|
Aug 18, 2025 |
|
35 Years of Community, Courage, and Care: Voices from the Hemophilia B Symposium
|
Jul 21, 2025 |
|
Healthcare Advocacy: Navigating Policy, Misinformation, and the Power of Storytelling with Alison Betty of alignco
|
Jun 25, 2025 |
|
The Power of Patient Stories with Erik Paulsen, Chairman at the Institute of Gene Therapies
|
May 21, 2025 |
|
2024 Volunteer of the Year Award Winners (Part 2)
|
Mar 31, 2025 |
|
2024 Volunteer of the Year Award Winners (Part 1)
|
Mar 20, 2025 |
|
From Silence to Strength: Women and Hemophilia B
|
Dec 19, 2024 |
|
The Gingerbread Tradition
|
Nov 28, 2024 |
|
The Road to Independence and Adulthood
|
Nov 18, 2024 |
|
A Mother’s Hemophilia B and Inhibitor Journey
|
Oct 31, 2024 |
|
The Healing Power of the Drum
|
Oct 13, 2024 |
|
Alternative Funding Programs
|
Sep 16, 2024 |
|
Women and Hemophilia B
|
Sep 06, 2024 |
|
Enhancing Mental Health in Hemophilia B
|
Aug 19, 2024 |
|
Story Time for Children - The Tree of Many Feelings
|
Aug 08, 2024 |
|
Showing Up: The Power of Accountability in the Hemophilia Community
|
Aug 01, 2024 |