Boundless B Podcast

By The Coalition for Hemophilia B

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Category: Medicine

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Episodes: 33

Description

Join us in this series as we bring stories, discussions, and insights from influential voices in the hemophilia community directly to your favorite listening device. Please tune in to explore, learn, and connect, finding companionship in shared experiences as we strengthen our community through the power of audio. Unlock the power of understanding hemophilia B. Your Journey, Your Strength.

Episode Date
Standing With Us: Senator Joe Addabbo on Advocacy, Step Therapy & the Power of One Story
May 28, 2026
Dental Care Without Fear: Oral Health and Hemophilia B
Apr 24, 2026
Changing the Language, Changing the Care: A New Era for Women with Bleeding Disorders
Mar 30, 2026
The Trail of AIDS: From Grief to Government Accountability (Part 2)
Mar 09, 2026
The Trail of AIDS: Dana Kuhn’s Story of Love, Loss, and the Fight for Blood Safety (Part 1)
Feb 16, 2026
Music Heals
Jan 31, 2026
We Are the World: Celebrating Unity Through Music
Jan 08, 2026
Holding Space: Grief, Resilience, and Mental Health in the Bleeding Disorders Community
Dec 19, 2025
Stronger Together: Building Community at Meetings on the Road with Dr. Whitley Grant-Goodman
Dec 18, 2025
Finding Peace During the Holidays: Regulating the Nervous System with Dr. Shaleen Kendrick
Nov 25, 2025
From Tornado to Triumph: Mandy Aberegg on Raising Resilient Kids with Hemophilia B
Nov 21, 2025
Breaking the Barrier: Mental Health and Substance Use Access in the Bleeding Disorders Community
Oct 27, 2025
2025 World Mental Health Day Ep 3: Sustaining Wellbeing & When to Seek Support
Oct 09, 2025
2025 World Mental Health Day Ep 2: Stronger Connections at Work & Beyond
Oct 09, 2025
2025 World Mental Health Day Ep 1: Pause & Reflect – Connecting with Yourself
Oct 09, 2025
Save One Life, Save the World: Impacting the Global Bleeding Disorders Community, One Life at a Time
Sep 26, 2025
Emergency Advocacy, System Change, and the Founding of Danny’s Dose with Darlene Shelton
Sep 12, 2025
Resilience and Radical Curiosity: How Families Can Grow Through Awe with Deborah Farmer Kris
Aug 18, 2025
35 Years of Community, Courage, and Care: Voices from the Hemophilia B Symposium
Jul 21, 2025
Healthcare Advocacy: Navigating Policy, Misinformation, and the Power of Storytelling with Alison Betty of alignco
Jun 25, 2025
The Power of Patient Stories with Erik Paulsen, Chairman at the Institute of Gene Therapies
May 21, 2025
2024 Volunteer of the Year Award Winners (Part 2)
Mar 31, 2025
2024 Volunteer of the Year Award Winners (Part 1)
Mar 20, 2025
From Silence to Strength: Women and Hemophilia B
Dec 19, 2024
The Gingerbread Tradition
Nov 28, 2024
The Road to Independence and Adulthood
Nov 18, 2024
A Mother’s Hemophilia B and Inhibitor Journey
Oct 31, 2024
The Healing Power of the Drum
Oct 13, 2024
Alternative Funding Programs
Sep 16, 2024
Women and Hemophilia B
Sep 06, 2024
Enhancing Mental Health in Hemophilia B
Aug 19, 2024
Story Time for Children - The Tree of Many Feelings
Aug 08, 2024
Showing Up: The Power of Accountability in the Hemophilia Community
Aug 01, 2024