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Hi everyone! My name is Mackenzie and I was diagnosed with AL amyloidosis at age 23. We don’t know the cause of this disease, but we do know that it can lead to serious and potentially life-threatening issues. This disease has changed me and my life in so many ways, and as a result, I founded Mackenzie’s Mission to join the fight against this disease.
Part of our effort is to raise awareness which, we believe, will accelerate diagnosis, enable earlier treatment, and improve patient lives. We do this in several ways, including our “All Things Amyloid” podcast. In our episodes, we will speak with patients and caregivers about their journey on a wide array of topics. We will also hear from amyloidosis experts about the medical side of this disease.
There is more hope for patients than ever before, and raising awareness around the globe is critical to improving patient lives. If you want to learn more about the work we’re doing at Mackenzie’s Mission, please visit mm713.org. Thanks for listening!
| Episode | Date |
|---|---|
|
AL Amyloidosis: The Past, Present, and Future
|
Aug 19, 2026 |
|
Genetic Counseling 101
|
Aug 05, 2026 |
|
What ‘clues’ can PM&R providers watch for to suspect Amyloidosis?
|
Jul 22, 2026 |
|
I Just Had CAR-T – What Was It Like?
|
Jul 08, 2026 |
|
Why Is Amyloidosis So Often Misdiagnosed?
|
Jun 24, 2026 |
|
When to Consider Discontinuing Maintenance Therapy?
|
Jun 10, 2026 |
|
Physical Therapists - Be On The Lookout!
|
May 27, 2026 |
|
Amyloidosis For Patients with Dr. Kevin Alexander
|
May 13, 2026 |
|
Why is Amyloidosis Bad for Your Kidneys?
|
Apr 29, 2026 |
|
An AL Patient Going Through Peritoneal Dialysis
|
Apr 15, 2026 |
|
Keys to Making a Strong Patient-Provider Relationship
|
Apr 01, 2026 |
|
Amyloidosis Destroyed My Heart; Organ Transplantation Gave Me Life
|
Mar 18, 2026 |
|
If I Could Redo My Diagnostic Journey What Would I Do Differently?
|
Mar 04, 2026 |
|
The Hidden Thread: Rethinking Amyloid Diseases as One System
|
Feb 18, 2026 |
|
Empowering Patients via the Amyloidosis Support Groups
|
Feb 04, 2026 |
|
How a Diagnosis of Amyloidosis Has Impacted Our Family
|
Jan 21, 2026 |
|
Working with Capitol Hill for Change - You CAN Make a Difference!
|
Jan 07, 2026 |
|
Finding My Voice
|
Dec 10, 2025 |
|
The Power of Advocacy
|
Nov 26, 2025 |
|
What is the Relationship Between AL Amyloidosis and Multiple Myeloma?
|
Nov 12, 2025 |
|
Relapsing - What’s Next?
|
Oct 29, 2025 |
|
Isabelle: The Patient and the Advocate
|
Oct 15, 2025 |
|
The Systemic Amyloidoses vs Parkinson’s vs. Alzheimer’s
|
Oct 01, 2025 |
|
When the Caregiver Becomes the Patient
|
Sep 17, 2025 |
|
To HCPs: Strengthening the Doctor-Patient Relationship With the Black Patient Community
|
Sep 03, 2025 |
|
Cardiac Amyloidosis - AL and ATTR: Two Different Conditions
|
Aug 20, 2025 |
|
An AL Patient’s Journey Through Kidney Transplant and Organ Donation Advocacy
|
Aug 06, 2025 |
|
Finding My Community of Amyloidosis Patients
|
Jul 23, 2025 |
|
ATTR Amyloidosis Treatments: Stabilizers and Silencers
|
Jul 09, 2025 |
|
Amyloidosis is No Longer a Death Sentence - There is HOPE
|
Jun 25, 2025 |
|
Preparing Future Generations for an Inherited Disease ("green book")
|
Jun 11, 2025 |
|
Amyloidosis Genetic Counseling - What You Need to Know
|
May 28, 2025 |
|
When the Doctor Becomes an Amyloidosis Patient
|
May 14, 2025 |
|
Ideas on How to Stay Current on Research and Treatments
|
Apr 30, 2025 |
|
The Future for Patients with ATTR Cardiac Amyloidosis is Brighter
|
Apr 16, 2025 |
|
Going on Offense in the Fight to Make a Difference
|
Apr 02, 2025 |
|
Contemplating a Kidney Transplant
|
Mar 19, 2025 |
|
Closing the Medical Education Gap
|
Mar 05, 2025 |
|
Finding a “New Normal” Life
|
Feb 19, 2025 |
|
A Diagnostic journey - Uncovering A Family’s Disease
|
Feb 05, 2025 |
|
Nurses are Valued Members of Our Care Team
|
Jan 22, 2025 |
|
Shining Your Light Through Chronic Illness
|
Jan 08, 2025 |
|
Assembling a Support Team
|
Dec 26, 2024 |
|
Building an index of suspicion for cardiac amyloidosis
|
Dec 11, 2024 |
|
Seeking a Second Opinion
|
Nov 27, 2024 |
|
I Knew Something Was Wrong
|
Nov 13, 2024 |
|
Overview of Amyloidosis for Patients
|
Oct 30, 2024 |
|
Overview of Amyloidosis for Clinicians
|
Oct 30, 2024 |
|
Welcome to the All Things Amyloid Podcast
|
Oct 29, 2024 |