All Things Amyloid

By Mackenzie's Mission

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Category: Medicine

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Episodes: 49

Description

Hi everyone!  My name is Mackenzie and I was diagnosed with AL amyloidosis at age 23. We don’t know the cause of this disease, but we do know that it can lead to serious and potentially life-threatening issues. This disease has changed me and my life in so many ways, and as a result, I founded Mackenzie’s Mission to join the fight against this disease.


Part of our effort is to raise awareness which, we believe, will accelerate diagnosis, enable earlier treatment, and improve patient lives. We do this in several ways, including our “All Things Amyloid” podcast. In our episodes, we will speak with patients and caregivers about their journey on a wide array of topics. We will also hear from amyloidosis experts about the medical side of this disease. 


There is more hope for patients than ever before, and raising awareness around the globe is critical to improving patient lives. If you want to learn more about the work we’re doing at Mackenzie’s Mission, please visit mm713.org. Thanks for listening!


Episode Date
AL Amyloidosis: The Past, Present, and Future
Aug 19, 2026
Genetic Counseling 101
Aug 05, 2026
What ‘clues’ can PM&R providers watch for to suspect Amyloidosis?
Jul 22, 2026
I Just Had CAR-T – What Was It Like?
Jul 08, 2026
Why Is Amyloidosis So Often Misdiagnosed?
Jun 24, 2026
When to Consider Discontinuing Maintenance Therapy?
Jun 10, 2026
Physical Therapists - Be On The Lookout!
May 27, 2026
Amyloidosis For Patients with Dr. Kevin Alexander
May 13, 2026
Why is Amyloidosis Bad for Your Kidneys?
Apr 29, 2026
An AL Patient Going Through Peritoneal Dialysis
Apr 15, 2026
Keys to Making a Strong Patient-Provider Relationship
Apr 01, 2026
Amyloidosis Destroyed My Heart; Organ Transplantation Gave Me Life
Mar 18, 2026
If I Could Redo My Diagnostic Journey What Would I Do Differently?
Mar 04, 2026
The Hidden Thread: Rethinking Amyloid Diseases as One System
Feb 18, 2026
Empowering Patients via the Amyloidosis Support Groups
Feb 04, 2026
How a Diagnosis of Amyloidosis Has Impacted Our Family
Jan 21, 2026
Working with Capitol Hill for Change - You CAN Make a Difference!
Jan 07, 2026
Finding My Voice
Dec 10, 2025
The Power of Advocacy
Nov 26, 2025
What is the Relationship Between AL Amyloidosis and Multiple Myeloma?
Nov 12, 2025
Relapsing - What’s Next?
Oct 29, 2025
Isabelle: The Patient and the Advocate
Oct 15, 2025
The Systemic Amyloidoses vs Parkinson’s vs. Alzheimer’s
Oct 01, 2025
When the Caregiver Becomes the Patient
Sep 17, 2025
To HCPs: Strengthening the Doctor-Patient Relationship With the Black Patient Community
Sep 03, 2025
Cardiac Amyloidosis - AL and ATTR: Two Different Conditions
Aug 20, 2025
An AL Patient’s Journey Through Kidney Transplant and Organ Donation Advocacy
Aug 06, 2025
Finding My Community of Amyloidosis Patients
Jul 23, 2025
ATTR Amyloidosis Treatments: Stabilizers and Silencers
Jul 09, 2025
Amyloidosis is No Longer a Death Sentence - There is HOPE
Jun 25, 2025
Preparing Future Generations for an Inherited Disease ("green book")
Jun 11, 2025
Amyloidosis Genetic Counseling - What You Need to Know
May 28, 2025
When the Doctor Becomes an Amyloidosis Patient
May 14, 2025
Ideas on How to Stay Current on Research and Treatments
Apr 30, 2025
The Future for Patients with ATTR Cardiac Amyloidosis is Brighter
Apr 16, 2025
Going on Offense in the Fight to Make a Difference
Apr 02, 2025
Contemplating a Kidney Transplant
Mar 19, 2025
Closing the Medical Education Gap
Mar 05, 2025
Finding a “New Normal” Life
Feb 19, 2025
A Diagnostic journey - Uncovering A Family’s Disease
Feb 05, 2025
Nurses are Valued Members of Our Care Team
Jan 22, 2025
Shining Your Light Through Chronic Illness
Jan 08, 2025
Assembling a Support Team
Dec 26, 2024
Building an index of suspicion for cardiac amyloidosis
Dec 11, 2024
Seeking a Second Opinion
Nov 27, 2024
I Knew Something Was Wrong
Nov 13, 2024
Overview of Amyloidosis for Patients
Oct 30, 2024
Overview of Amyloidosis for Clinicians
Oct 30, 2024
Welcome to the All Things Amyloid Podcast
Oct 29, 2024