My journey with Parkinson's
By Sue Waight
Listen to a podcast, please open Podcast Republic app. Available on Google Play Store and Apple App Store.
Image by Sue Waight
Category: Health & Fitness
Open in Apple Podcasts
Open RSS feed
Open Website
Rate for this podcast
Subscribers: 0
Reviews: 0
Episodes: 196
Description
I have had a blog called 'Parkies and me - my journey with Parkinson's' for the past four years. Now that I have finished work and have more time, I wanted to add a Podcast to provide more information and interest for my followers. I also hope to get guests on my Podcast on specialist subjects that would be useful to know for both carers and those they support. Look out for interviews regarding important legal decisions that is well worth a look. If you are interested in my Blog, you can find it on www.parkiesandme.com as it follows my journey from diagnosis through my first four years .
| Episode | Date |
|---|---|
|
A letter to my newly diagnosed self
|
Jul 17, 2026 |
|
Sharing recipes for life
|
Jul 09, 2026 |
|
Life is like a game of bowls. You never know what you are going to get.
|
Jul 05, 2026 |
|
Learning my limits - Where am I at? What can I do?
|
Jul 01, 2026 |
|
Travelling with Parkinson's - Embrace, adapt and enjoy life
|
Jun 15, 2026 |
|
Some lessons I have learned about listening to my body
|
Jun 10, 2026 |
|
Banking, they are being such "$%#kers!"
|
Jun 09, 2026 |
|
The challenges of travelling - self evaluation
|
Jun 05, 2026 |
|
The Big UK Trip
|
May 12, 2026 |
|
Feeling vulnerable
|
Apr 22, 2026 |
|
World Parkinson's Day
|
Apr 17, 2026 |
|
Repurposing and finding purpose
|
Apr 15, 2026 |
|
Famous people with Parkinson's - A legend in your own lunchtime
|
Mar 31, 2026 |
|
Oh knickers!
|
Mar 27, 2026 |
|
In the knickers of time - a poem absolutely not about Parkinson's
|
Mar 25, 2026 |
|
Access issues for disabilities
|
Mar 08, 2026 |
|
Living with uncertainty
|
Mar 02, 2026 |
|
What is a friend?
|
Mar 01, 2026 |
|
The embarrassing stuff
|
Feb 23, 2026 |
|
Things are going really swimmingly
|
Feb 23, 2026 |
|
Impulsiveness and Internet shopping - a confession
|
Feb 18, 2026 |
|
It is better to know - Getting a diagnosis or not?
|
Feb 15, 2026 |
|
Generational shifts - Parent to Child - Child to Parent
|
Feb 14, 2026 |
|
So you've got Parkinson's - some thoughts and a poem
|
Feb 10, 2026 |
|
A Health Passport and other information
|
Feb 06, 2026 |
|
Do I want to know, or do I not?
|
Feb 05, 2026 |
|
There's a fine line!
|
Jan 31, 2026 |
|
Tough times and tough decisions
|
Jan 28, 2026 |
|
Things are going swimmingly?!!?
|
Jan 25, 2026 |
|
Feeling frustrated
|
Jan 16, 2026 |
|
Why are we afraid of tears?
|
Jan 14, 2026 |
|
Things that help
|
Jan 14, 2026 |
|
Feeling Parkies today
|
Jan 10, 2026 |
|
Feeling lucky to have Parkinson's
|
Jan 04, 2026 |
|
Presents vs Presence
|
Jan 03, 2026 |
|
Please help desk person - A poem
|
Dec 31, 2025 |
|
Seeking the positive
|
Dec 30, 2025 |
|
Changing attitudes and priorities
|
Dec 29, 2025 |
|
Is Christmas the same or is it different?
|
Dec 22, 2025 |
|
Forgetting
|
Dec 20, 2025 |
|
Moving on - A village or facility, when and why?
|
Dec 15, 2025 |
|
Ability vs Disability
|
Dec 10, 2025 |
|
"Am I being offensive?"
|
Dec 03, 2025 |
|
Priorities - what do you focus on?
|
Nov 23, 2025 |
|
"Is lefty doing their job?"
|
Nov 21, 2025 |
|
"Forgetting words - Is helping, helping or hindering?"
|
Nov 20, 2025 |
|
"Pride goes before a fall" - What does that even mean?
|
Nov 14, 2025 |
|
"Cultural Confusion"
|
Nov 11, 2025 |
|
"Checking in. How am I doing?"
|
Nov 09, 2025 |
|
"By eck, By gum would you Adam and Eve it!"
|
Nov 07, 2025 |
|
The Evolution of Christmas or "Oh god, are we talking about that again?"
|
Nov 05, 2025 |
|
Moving to the beat of my own drum
|
Oct 27, 2025 |
|
Parkinson's is it hereditary and would you want to find out?
|
Oct 27, 2025 |
|
Am I too hard on myself?
|
Oct 24, 2025 |
|
Michael J Fox and giving Parkies a voice
|
Oct 22, 2025 |
|
Live for the moment, but plan for the future
|
Oct 18, 2025 |
|
What will they remember? The gift we give our grandchildren
|
Oct 18, 2025 |
|
Grandchildren are a gift
|
Oct 18, 2025 |
|
Love me for what I am
|
Oct 14, 2025 |
|
Competition, Complexity and Conceit
|
Oct 11, 2025 |
|
Life, Love and Loss
|
Oct 04, 2025 |
|
Finding new ways to be .... going with things not fighting against
|
Oct 02, 2025 |
|
Resilience - the good, bad and the ugly
|
Oct 01, 2025 |
|
Confidence and 'Imposter Syndrome'
|
Sep 30, 2025 |
|
"Billy no mates" or is it Betty?
|
Sep 27, 2025 |
|
Anxiety and Trusting myself
|
Sep 26, 2025 |
|
Getting the help I need for me
|
Sep 18, 2025 |
|
When we were young.
|
Sep 18, 2025 |
|
The evolution of Christmas or "Oh God are we talking about that already?"
|
Sep 15, 2025 |
|
"Beware the grey-haired granny"
|
Sep 14, 2025 |
|
Arthritis is a Bugger - a poem not about Parkinson's
|
Sep 12, 2025 |
|
"Just in case"
|
Sep 09, 2025 |
|
I can pick a Parkies - Can you?
|
Sep 08, 2025 |
|
When are we old or elderly?
|
Sep 05, 2025 |
|
Know me not for Parkinson's
|
Sep 02, 2025 |
|
Opposites really do attract
|
Sep 02, 2025 |
|
Beware of Disablers
|
Aug 21, 2025 |
|
It's not just "Shake and Shuffle"
|
Aug 16, 2025 |
|
Bowls goals in rehab
|
Aug 10, 2025 |
|
Sometimes I forget about that "Perfect Pest Parkies"
|
Aug 08, 2025 |
|
Being my own worst critic or "Patience is a virtue"
|
Aug 04, 2025 |
|
Health Funding Vs ACC funding NZ
|
Aug 02, 2025 |
|
Carrying on decluttering
|
Jul 28, 2025 |
|
Decluttering the heart and mind
|
Jul 28, 2025 |
|
Gently letting go of the past and moving forward - Episode 110
|
Jul 21, 2025 |
|
Just a taste about We are all unique
|
Jul 19, 2025 |
|
We are all unique - Episode 109
|
Jul 17, 2025 |
|
Shedding my Social Work skin - Episode 108
|
Jul 14, 2025 |
|
Being your own best advocate - Episode 107
|
Jul 10, 2025 |
|
These feet are made for walking - or not - Episode 106
|
Jul 09, 2025 |
|
Am I anxious? - Episode 105
|
Jul 04, 2025 |
|
Across the generations - Episode 104
|
Jul 02, 2025 |
|
Travelling and Parkinson's - Episode 103
|
Jun 30, 2025 |
|
Travelling and Parkinson's - Episode 102
|
Jun 30, 2025 |
|
Getting back to me - Episode 101
|
Jun 15, 2025 |
|
Don't stay with a bad partner - Episode 100
|
Jun 14, 2025 |
|
Memory - What do you notice? Episode 99
|
Jun 14, 2025 |
|
Continence - A wee problem and a poem
|
Jun 09, 2025 |
|
What is love? - Episode 97
|
Jun 08, 2025 |
|
An older person is a person too - Episode 96
|
Jun 01, 2025 |
|
Continence and other joys - Episode 95
|
Jun 01, 2025 |
|
Sometimes being negative can be positive - Episode 94
|
May 27, 2025 |
|
Years in your life or life in your years? - Episode 93
|
May 24, 2025 |
|
Diet for health or Diet for weight loss? - Episode 92
|
May 21, 2025 |
|
Is it fate or is it destiny - Episode 91
|
May 18, 2025 |
|
Some Travel Tips to make life easier - Episode 90
|
May 09, 2025 |
|
A weighty problem (what will they think of me?) - Episode 89
|
May 03, 2025 |
|
Complex Comorbidities Continue - Episode 88
|
Apr 28, 2025 |
|
Speech Language Therapy and Parkinson's - An interview - Episode 87
|
Apr 24, 2025 |
|
Waiting at the 'After Hours' a Podcast and a poem - Episode 86
|
Apr 19, 2025 |
|
Comorbidities confusing cause - Episode 85
|
Apr 10, 2025 |
|
Perfection is over-rated and Should and Shouldisms - Episode 84
|
Apr 08, 2025 |
|
Where is the little boy - a poem Episode 83
|
Apr 06, 2025 |
|
Tell your story before it's too late - Episode 82
|
Apr 06, 2025 |
|
Hang on to hope - Never say never - Episode 81
|
Mar 31, 2025 |
|
Don't wait for a special occasion - Episode 80
|
Mar 29, 2025 |
|
I am the old woman - A poem - Episode 79
|
Mar 28, 2025 |
|
My teenage crushes - reminiscing Episode 78
|
Mar 26, 2025 |
|
Parkinson's Brave - A poem - Episode 77
|
Mar 25, 2025 |
|
Being Brave Again - Episode 76
|
Mar 25, 2025 |
|
Keeping up with language and meaning - Episode 75
|
Mar 22, 2025 |
|
Don't wrap me in cotton wool - Episode 74
|
Mar 22, 2025 |
|
Boom and Bust - Episode 73
|
Mar 22, 2025 |
|
To medicate or not to medicate that is the question - Episode 72
|
Mar 18, 2025 |
|
Lets talk about memory, dementia and ski holidays - Episode 71
|
Mar 16, 2025 |
|
A quote from the podcast on Elder Abuse - Episode 70
|
Mar 14, 2025 |
|
Some thoughts on ageing - Episode 69
|
Mar 13, 2025 |
|
An interview with Greta Bond, Age Concern re Elder Abuse - Episode 68
|
Mar 12, 2025 |
|
Greta Bond CEO, Age Concern Canterbury - Interview Episode 67
|
Mar 12, 2025 |
|
A health stocktake - Episode 66
|
Mar 08, 2025 |
|
I've been watching you... A poem - Episode 65
|
Mar 08, 2025 |
|
Seeing your GP, Specialist or Physio/Allied Health - Episode 64
|
Mar 05, 2025 |
|
Interview with Linda - MS & Parkinson's - Episode 63
|
Mar 05, 2025 |
|
When is old, old? - Episode 62
|
Mar 04, 2025 |
|
Farewell to my shiny red e-bike - Episode 61
|
Mar 03, 2025 |
|
Trying to be a patient patient - Episode 60
|
Mar 01, 2025 |
|
We can pat ourselves on the back - Episode 59
|
Feb 26, 2025 |
|
My caring husband - not my carer - An interview Episode 58
|
Feb 23, 2025 |
|
Podcasts - anyone keen on being interviewed? Episode 57
|
Feb 22, 2025 |
|
Progression and impressions and looking to a brighter future - Episode 56
|
Feb 20, 2025 |
|
This might help you, I know it helped me! Episode 55
|
Feb 20, 2025 |
|
Some future proofing thoughts - Episode 54
|
Feb 18, 2025 |
|
We are not 'us' at the moment - Episode 53
|
Feb 15, 2025 |
|
Accepting our limits as we age - Episode 52
|
Feb 14, 2025 |
|
Social Work ears - Episode 51
|
Feb 12, 2025 |
|
Just a small prick - Episode 50
|
Feb 12, 2025 |
|
Memories are marvellous - Episode 49
|
Feb 10, 2025 |
|
Shop to shop hopping - A poem - Episode 48
|
Feb 10, 2025 |
|
Pride goeth before a fall - Episode 47
|
Feb 01, 2025 |
|
The Bloodsucker's Curse - Episode 46
|
Jan 31, 2025 |
|
Hospital, Health and Harrahs -Episode 45
|
Jan 30, 2025 |
|
The evolution of underwear (A poem) - Episode 44
|
Jan 30, 2025 |
|
Shopportunity - Episode 43
|
Jan 28, 2025 |
|
Putting my house in order - Episode 42
|
Jan 27, 2025 |
|
Anything goes - A poem podcast - Episode 41
|
Jan 27, 2025 |
|
Property Administrator or Property Manager - Whats the difference? - Episode 40
|
Jan 25, 2025 |
|
When EPOA goes wrong - Episode 39
|
Jan 25, 2025 |
|
Be a legend in your own lunchtime - Episode 38
|
Jan 25, 2025 |
|
I'm a hugger - Is this a Parkies thing? - Episode 37
|
Jan 21, 2025 |
|
I love my husband - A poem not about Parkinson's! - Episode 36
|
Jan 20, 2025 |
|
For Parkinson's - A hidden issue - Episode 35
|
Jan 19, 2025 |
|
There are no experts in Parkinson's - Oh yes there are - Episode 34
|
Jan 18, 2025 |
|
Acts of service - love in a fruitcake - Episode 33
|
Jan 16, 2025 |
|
Tears for Breakfast - Episode 32
|
Jan 15, 2025 |
|
Why I think I'm qualified to talk about Parkinson's - Episode 31
|
Jan 13, 2025 |
|
Maybe I've been a bit harsh - Episode 31
|
Jan 12, 2025 |
|
Parkinson's peculiarities or Morphine madness - Episode 30
|
Jan 11, 2025 |
|
Culling my Facebook friends - nothing beats a real hug - Episode 29
|
Jan 08, 2025 |
|
A bucket of joy - not a bucket list - Episode 28
|
Jan 06, 2025 |
|
The weird things you need to know about me - Episode 27
|
Jan 05, 2025 |
|
I pity those who support me - Episode 26
|
Jan 03, 2025 |
|
Two poems - 'Where is the little boy?' and 'Have you seen your mother naked?' - Episode 25
|
Jan 02, 2025 |
|
Pods and Blogs and Odds and Sods - Episode 24
|
Jan 01, 2025 |
|
Legal Stuff - Enduring Powers of Attorney - Episode 23
|
Dec 31, 2024 |
|
Legal Stuff - Wills - Episode 22
|
Dec 31, 2024 |
|
To my love - Episode 21 - a poem
|
Dec 29, 2024 |
|
Now I'm retired - a poem - Episode 20
|
Dec 29, 2024 |
|
The next generation - Episode 19
|
Dec 29, 2024 |
|
Perfect imperfection and Parkies - Episode 18
|
Dec 27, 2024 |
|
Who am I? - Episode 17
|
Dec 26, 2024 |
|
Pills, pills, pills - A poem - Episode 16
|
Dec 26, 2024 |
|
What do we leave our children? Memories, Money and Mayhem - Episode 15
|
Dec 25, 2024 |
|
Christmas 2024 - Episode 14
|
Dec 21, 2024 |
|
I have a confession to make - Episode 13
|
Dec 19, 2024 |
|
Going down memory lane - Episode 12
|
Dec 19, 2024 |
|
'Ode to shopping for shoes and finding a mate - a poem' - Episode 11
|
Dec 18, 2024 |
|
'What's precious?' - Episode 10
|
Dec 18, 2024 |
|
My 4th Anniversary with Parkinson's - Episode 9
|
Dec 15, 2024 |
|
Christmas, 'Loved Ones' and Parkies Anniversaries - Chapter 8
|
Dec 13, 2024 |
|
Party Priorities - Men vs Women Episode 7
|
Dec 12, 2024 |
|
Ducking and Diving and Downright hiding - Episode 6
|
Dec 12, 2024 |
|
Sometimes it's hard to socialise - Episode 5
|
Dec 10, 2024 |
|
Where am I now - four years on from diagnosis? - Episode 1
|
Dec 08, 2024 |
|
Making memories - Episode 3 Podcast
|
Dec 08, 2024 |
|
Discussing the future - Episode 4
|
Dec 08, 2024 |
|
My road to diagnosis and who did you tell? - Episode 2
|
Dec 08, 2024 |