The Fine, But Not Fine Podcast

By Fine, But Not Fine

Listen to a podcast, please open Podcast Republic app. Available on Google Play Store and Apple App Store.


Category: Society & Culture

Open in Apple Podcasts


Open RSS feed


Open Website


Rate for this podcast
    

Subscribers: 0
Reviews: 0
Episodes: 8

Description

Fine, But Not Fine is a podcast for anyone navigating the messy, frustrating, and often invisible challenges of rare diseases, chronic illness, and the healthcare system. Hosted by Kelly Paul, who has lived with Mycosis Fungoides (a rare form of Cutaneous T-Cell Lymphoma) since 2015, this podcast dives into the real-life struggles of managing an incurable condition while still trying to live a full, meaningful life. Resources: Cutaneous Lymphoma Foundation (https://www.clfoundation.org), International Society for Cutaneous Lymphoma (https://cutaneouslymphoma.org), Lymphoma Research Foundation (lymphoma.org), National Organization for Rare Diseases (rarediseases.org).

Episode Date
Coping With "You Should Try This" Advice - Eps. 8
Apr 01, 2025
Prior Authorization: The Health Insurer Bureaucracy Blocking Your Care - Eps. 7
Mar 19, 2025
My Experience with Narrowband UVB (NBUVB) Light Therapy - Eps. 6
Mar 12, 2025
Rare Disease and Body Image - Eps. 5
Mar 05, 2025
Finding the Right Doctor - Ep. 4
Feb 26, 2025
Should You Disclose Your Rare Disease at Work - Ep. 3
Feb 19, 2025
What is Mycosis Fungoides? - Ep. 2
Feb 13, 2025
Fine, But Not Fine - Introduction, Ep. 1
Feb 13, 2025