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Welcome to the March Forward podcast, a space dedicated to the rare disease community. We understand the unique challenges you face, from the 'diagnostic odyssey' to navigating complex treatments and the emotional toll of caregiving. Our podcast aims to provide clear, trustworthy, and in-depth information, fostering hope and support as we explore the latest advancements in rare disease research and care.
| Episode | Date |
|---|---|
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What Really Happens When You Join a Clinical Trial? 5 Patient Stories
|
Jan 05, 2026 |
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The Warning Signs of Caregiver Burnout.
|
Dec 29, 2025 |
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Can Holistic Medicine Help Your Rare Disease? What You Need to Know.
|
Dec 22, 2025 |
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Is a Clinical Trial the Right Path for My Rare Disease?
|
Dec 15, 2025 |
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Can Personalized Medicine Finally Help Rare Disease Patients?
|
Dec 09, 2025 |
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Can AI Accelerate Drug Repurposing for Rare Diseases?
|
Dec 01, 2025 |
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How Can We Cope with the Mental Toll of Rare and Chronic Illness?
|
Nov 24, 2025 |
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How SHEPHERD AI Can Help with Quicker Rare Disease Diagnoses
|
Nov 17, 2025 |
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C2S-Scale: Yale & Google's AI That Reads Cells. Will It Work for Rare Diseases?
|
Nov 10, 2025 |
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What's inflammation got to do with your rare disease?
|
Nov 03, 2025 |
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The First Therapy to Unlock Trapped Immune Cells in WHIM Syndrome
|
Oct 27, 2025 |
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Fidanacogene Elaparvovec for Hemophilia B
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Oct 20, 2025 |
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Afamitresgene Autoleucel (Tecelra) for Synovial Sarcoma
|
Oct 13, 2025 |
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Can In-Body Gene Editing Help Cure Rare Genetic Diseases?
|
Oct 05, 2025 |
|
Enzyme Replacement Therapy for Lysosomal Storage Diseases
|
Sep 29, 2025 |