Hope in Focus Podcast

By Hope in Focus

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Category: Education

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Episodes: 11

Description

The Hope in Focus Podcast, hosted by Ben Shaberman, brings monthly stories and insights to the Leber congenital amaurosis (LCA) and inherited retinal disease (IRD) community. Together, we discuss personal stories, research and scientific updates—including gene therapy and drug development—tools and resources that support accessibility and independence, and insights to help families better understand early-onset vision loss. Hope in Focus is dedicated to generating awareness, raising funds for research, and providing support, education and outreach to the LCA and IRDs.

Episode Date
Hope in Focus Podcast | Episode 11 - Finding Her Voice: A Conversation with Sarah Hardwig
Jun 03, 2026
Hope in Focus Podcast | Episode 10 - Insights from a Teacher of the Visually Impaired
May 13, 2026
Hope in Focus Podcast | Episode 9 - Vivien’s Wild Ride: Who Am I Without Vision?
Apr 22, 2026
Hope in Focus Podcast | Episode 8 - Odylia Therapeutics: Moving LCA6 Research Forward
Mar 03, 2026
Hope in Focus Podcast | Episode 7 - Shannon Boye: Founding Atsena Therapeutics & Advancing LCA1/XLRS
Feb 11, 2026
Hope in Focus Podcast | Episode 6 - Brett Devloo: Stay on the Board
Jan 16, 2026
Hope in Focus Podcast | Part 2: Life with a Guide Dog – Independence, Confidence, and Companionship
Dec 19, 2025
Hope in Focus Podcast | Episode 4 - Part 1: The Start of a Guide Dog’s Journey
Nov 12, 2025
Hope in Focus Podcast | Episode 3 - Behind the Scenes: Patient Advocacy in Gene Therapy
Oct 09, 2025
Hope in Focus Podcast | Episode 2 - Growing Up with Vision Loss: Challenges, Humor, and Wisdom
Sep 18, 2025
Hope in Focus Podcast | Episode 1 – The LCA Journey: Two Parents' Perspectives & the Founding of Hope in Focus
Sep 10, 2025