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| Episode | Date |
|---|---|
|
Advocacy in Action with Laurie Gaulter, RN, BSN
|
May 08, 2026 |
|
Growing Up Rare: What Happens Next?
|
Apr 20, 2026 |
|
Living With Von Willebrand: Jackie’s Story
|
Mar 31, 2026 |
|
Finally Being Believed
|
Mar 26, 2026 |
|
Seeing Women Fully: Addressing the Disparities in Bleeding Disorder Care - Part II
|
Mar 19, 2026 |
|
Seeing Women Fully: Addressing the Disparities in Bleeding Disorder Care - Part I
|
Mar 12, 2026 |
|
A Mom’s Story: Loving, Learning, and Living with Duchenne - Part II
|
Feb 17, 2026 |
|
A Mom’s Story: Loving, Learning, and Living with Duchenne - Part 1
|
Feb 10, 2026 |
|
Rare Lives, Real Need: Blood Donation Matters
|
Jan 23, 2026 |
|
Beyond the Rx: The Power of Patient Experience in Rare Disease
|
Jan 13, 2026 |
|
You are not alone - resources to help
|
Dec 23, 2025 |
|
Specialty Pharmacy 101: What rare disease patients should expect
|
Dec 10, 2025 |
|
Welcome to RareAF: Real Talk for Rare Disease
|
Nov 26, 2025 |
|
Welcome to Rare AF - Advocacy & Facts
|
Nov 05, 2025 |