Ask the Expert
By SRNA
Listen to a podcast, please open Podcast Republic app. Available on Google Play Store and Apple App Store.
Image by SRNA
Category: Non-Profit
Open in Apple Podcasts
Open RSS feed
Open Website
Rate for this podcast
Subscribers: 3
Reviews: 0
Episodes: 139
Description
The goal of our “Ask the Expert” podcast series is to share the latest research and information on rare neuroimmune disorders and provide an avenue for individuals diagnosed with these disorders and their family members to ask questions to experts who specialize in these disorders. The podcasts are moderated based on questions submitted by our community. We would like to hear from you. If there are topics that you would like us to address in our podcasts, you can share your thoughts by sending an email to info@wearesrna.org and please use SRNA Podcast in the subject.
| Episode | Date |
|---|---|
|
1207. The Latest in Treatments from an Adult and Pediatric Perspective
|
Apr 26, 2024 |
|
1206. Community Spotlight - Voices of SRNA Volunteers | Part 2
|
Apr 15, 2024 |
|
1205. Community Spotlight - Voices of SRNA Volunteers | Part 1
|
Apr 08, 2024 |
|
1204. Community Spotlight - Ilona Williams
|
Mar 22, 2024 |
|
1203. Community Spotlight - Rick Telander
|
Mar 15, 2024 |
|
1202. Increased Intracranial Pressure in Pediatric MOG Antibody Disease
|
Feb 16, 2024 |
|
1201. A Conversation about Grief and Loss with Lisa McDaniel
|
Jan 19, 2024 |
|
1115. A Conversation about Grief and Loss with Chris Lopardi
|
Dec 21, 2023 |
|
1114. Neurosarcoidosis and Rare Neuroimmune Disorders
|
Dec 04, 2023 |
|
1113. Acute Treatments and Rare Neuroimmune Disorders
|
Nov 28, 2023 |
|
1112. Social Determinants of Health in Rare Neuroimmune Disorders
|
Nov 17, 2023 |
|
1111. Dr. Anderson's Fellowship Research
|
Oct 18, 2023 |
|
1110. Can Do MS: Take Charge and Coaching Series
|
Oct 13, 2023 |
|
1109. Disability and Rare Neuroimmune Disorders Part 2: Accessibility and Disability Pride
|
Jul 24, 2023 |
|
1108. Disability and Rare Neuroimmune Disorders Part 1
|
Jun 05, 2023 |
|
1107. Update: Study to Investigate the Safety of the Transplantation of Human Glial Restricted Progenitor Cells into Patients with Transverse Myelitis
|
May 31, 2023 |
|
1106. CosMOG - Clinical Trial for MOGAD Treatment
|
Apr 24, 2023 |
|
1105. What to Expect Living with NMOSD and MOGAD Long-Term
|
Apr 19, 2023 |
|
1104. Community Spotlight - Paul Turner
|
Apr 05, 2023 |
|
1103. Community Spotlight - Melanie Flood
|
Mar 14, 2023 |
|
1102. COVID-19 and the Risk of CNS Demyelinating Diseases
|
Feb 20, 2023 |
|
1101. What do we know about holistic therapies to manage symptoms of rare neuroimmune disorders?
|
Jan 30, 2023 |
|
1011. Health Disparities and Rare Neuroimmune Disorders
|
Sep 15, 2022 |
|
1010. Immunology of Rare Neuroimmune Disorders Part 3
|
Aug 29, 2022 |
|
1009. Air Travel with a Disability: Blind and Guide Dog Travel
|
Aug 26, 2022 |
|
Bonus Track | COVID-19 Vaccines Part VII with Dr. Greenberg
|
Aug 22, 2022 |
|
1008. An Update on Poliomyelitis
|
Aug 11, 2022 |
|
1007. Immunology of Rare Neuroimmune Disorders Part 2
|
Jul 18, 2022 |
|
1006. Immunology of Rare Neuroimmune Disorders Part 1
|
Jun 16, 2022 |
|
1005. Community Spotlight - Ben Harris
|
Jun 06, 2022 |
|
1004. Community Spotlight - Paul Garrett
|
May 21, 2022 |
|
1003. Managing Spasticity with a Baclofen Pump
|
Mar 21, 2022 |
|
1002. The Future of Diagnosing Transverse Myelitis
|
Feb 21, 2022 |
|
1001. Study of Transverse Myelitis in Veterans Health Administration Records
|
Feb 14, 2022 |
|
913. Avoiding a Misdiagnosis: Understanding the Differences Between MOGAD, MS, and NMOSD
|
Jan 12, 2022 |
|
912. MOG Antibody Disease: Diagnosis and Treatment Guidelines
|
Dec 07, 2021 |
|
911. Temperature Sensitivity and Rare Neuroimmune Disorders
|
Nov 03, 2021 |
|
910. Acute Disseminated Encephalomyelitis: Diagnosis and Treatment Guidelines
|
Oct 21, 2021 |
|
Bonus Track | COVID-19 Vaccines Part VI with Dr. Greenberg
|
Aug 19, 2021 |
|
Bonus Track | COVID-19 Vaccines Part V with Dr. Greenberg
|
Aug 16, 2021 |
|
Bonus Track | COVID-19 Vaccines Part IV with Dr. Greenberg
|
Aug 16, 2021 |
|
Bonus Track | COVID-19 Vaccines Part III with Dr. Greenberg
|
Aug 16, 2021 |
|
Bonus Track | COVID-19 Vaccines Part II with Dr. Greenberg
|
Aug 16, 2021 |
|
Bonus Track | COVID-19 Vaccines Part I with Dr. Greenberg
|
Aug 16, 2021 |
|
909. Transverse Myelitis: Symptom Management
|
Aug 10, 2021 |
|
908. Talking With Your Child About a Difficult Diagnosis
|
Jul 26, 2021 |
|
907. Transverse Myelitis: Diagnosis and Treatment Guidelines
|
Jun 22, 2021 |
|
906. The Role of CDC and Public Health in AFM Surveillance | Part II
|
May 31, 2021 |
|
905. The Role of CDC and Public Health Agencies in AFM Surveillance | Part I
|
May 20, 2021 |
|
904. Behavioral and Psychological Changes in Demyelinating Conditions | Part 2
|
Apr 21, 2021 |
|
903. My child has just been diagnosed with AFM. What do I need to know?
|
Mar 16, 2021 |
|
902. Study on Pediatric Teleneuropsychology
|
Mar 02, 2021 |
|
901. Dr. Michael Levy’s Research at The NMO Clinic and Research Laboratory at Mass General
|
Feb 19, 2021 |
|
809. Managing Visual Issues
|
Dec 14, 2020 |
|
808. MOG Antibody Disease: Adult and Pediatric Presentations
|
Oct 19, 2020 |
|
807. Behavioral and Psychological Changes in Demyelinating Conditions
|
Aug 13, 2020 |
|
806. Latest Updates on COVID-19 and Rare Neuroimmune Disorders
|
May 13, 2020 |
|
805. Helping Children and Families Manage and Cope with Stress During COVID-19
|
Apr 09, 2020 |
|
804. Neuroimmune System 101 / A primer on how the nervous and immune systems work together
|
Mar 19, 2020 |
|
803. What is neurosarcoidosis?
|
Feb 19, 2020 |
|
802. Newly Diagnosed with a Rare Neuroimmune Disorder: What You Need to Know
|
Feb 11, 2020 |
|
801. Everything You Need to Know About Spasticity and How It's Treated
|
Jan 30, 2020 |
|
718. Optic Neuritis — When is it just ON and when does it mean more?
|
Dec 12, 2019 |
|
717. Fatigue and Rare Neuroimmune Disorders
|
Dec 05, 2019 |
|
716. Genetic Study of AFM
|
Nov 14, 2019 |
|
715. Nerve Transfers and AFM: Part Two
|
Aug 13, 2019 |
|
714. Nerve Transfers and AFM: Part One
|
Aug 09, 2019 |
|
713. Imaging Patterns in Myelopathies and Myelitis
|
Aug 08, 2019 |
|
712. Understanding Spinal Cord Strokes and Other Vascular Myelopathies
|
Jul 24, 2019 |
|
711. The Role of CDC in AFM Surveillance
|
Jul 24, 2019 |
|
710. Managing Neuropathic Pain and Paresthesia
|
Jun 19, 2019 |
|
709. The Q Study — Q&A
|
Jun 19, 2019 |
|
708. Quality of Life: Adaptive Driving
|
May 24, 2019 |
|
707. Managing Pediatric Urological Issues
|
May 22, 2019 |
|
706. Parent's Perspective on AFM
|
May 16, 2019 |
|
705. Quality of Life: Mindset and Healthy Habits
|
Apr 24, 2019 |
|
704. Managing Adult Urological Issues
|
Apr 24, 2019 |
|
703. Relapsing vs Monophasic Rare Neuroimmune Disorders
|
Apr 12, 2019 |
|
702. Pediatric MOG Antibody Associated Disease and ADEM
|
Mar 20, 2019 |
|
701. Autoimmune Encephalitis and Rare Neuroimmune Disorders
|
Jan 18, 2019 |
|
611. Pregnancy and Rare Neuroimmune Disorders
|
Dec 20, 2018 |
|
610. What You Need to Know about Caregiving
|
Oct 18, 2018 |
|
609. 2018 Podcast on Acute Flaccid Myelitis
|
Oct 18, 2018 |
|
608. Air Travel with a Disability: Your Rights, Best Practices, and Suggestions
|
Sep 24, 2018 |
|
607. Research 101: Finding, Reading, and Understanding Research
|
Sep 04, 2018 |
|
606. Navigating Life After A Rare Neuroimmune Disorder: Social Security, Benefits, Assistive Technology, and More
|
Jul 10, 2018 |
|
605. What is MOG Antibody-Associated Disease?
|
Jul 10, 2018 |
|
604. Aging with rare neuroimmune disorders
|
Apr 24, 2018 |
|
603. Understanding and Managing Spasticity
|
Mar 27, 2018 |
|
602. Alternative therapies for the treatment of rare neuroimmune disorders
|
Mar 01, 2018 |
|
601. Stem Cells as a Treatment for Rare Neuroimmune Disorders
|
Jan 23, 2018 |
|
511. Rheumatological conditions and ADEM, NMOSD, TM and ON
|
Dec 11, 2017 |
|
510. How to Manage and Cope with Grief
|
Nov 21, 2017 |
|
509. How to get the most out of your appointments: Physician and patient perspectives
|
Sep 25, 2017 |
|
508. Gaining Functional Recovery through Occupational Therapy
|
Aug 22, 2017 |
|
507. Open Forum on Acute Disseminated Encephalomyelitis
|
Jul 13, 2017 |
|
506. Open Forum on Neuromyelitis Optica Spectrum Disorder
|
Jun 21, 2017 |
|
505. Open Forum on Transverse Myelitis, including Acute Flaccid Myelitis
|
May 25, 2017 |
|
504. The Role of Nutrition in Managing Your Health
|
Apr 18, 2017 |
|
503. Managing your health after a rare neuroimmune diagnosis
|
Mar 21, 2017 |
|
502. Vaccinations and rare neuroimmune disorders
|
Feb 22, 2017 |
|
501. Building a multidisciplinary team for complex care after a diagnosis of ADEM, NMOSD, ON, and TM (including AFM)
|
Jan 19, 2017 |
|
411. Quality of Life in a Wheelchair
|
Dec 19, 2016 |
|
410. Contraception, pregnancy, delivery and child care after a diagnosis of ADEM, NMOSD and TM
|
Nov 21, 2016 |
|
409. Special Podcast — Understanding Acute Flaccid Myelitis
|
Nov 16, 2016 |
|
408. Sexual function and quality of life after a diagnosis of ADEM, NMOSD and TM
|
Oct 27, 2016 |
|
407. Understanding Types of Research in ADEM, NMOSD, and TM, including AFM
|
Sep 29, 2016 |
|
406. Back-to-School Preparation for Students with Demyelinating Diseases: Legal and Neuropsychological Perspectives
|
Jul 12, 2016 |
|
405. Open Forum on TM including AFM, NMOSD, ON and ADEM
|
Jun 21, 2016 |
|
404. Learning About Acute Disseminated Encephalomyelitis
|
May 19, 2016 |
|
403. The Power of Sharing Stories
|
Mar 30, 2016 |
|
402. Comprehensive Management of Neuropathic Pain
|
Feb 24, 2016 |
|
401. Diagnosing TM, NMO and ADEM
|
Jan 27, 2016 |
|
313. Our Lives: Our Stories
|
Dec 16, 2015 |
|
312. Bowel, Bladder, and Sexual Dysfunction in TM, NMOSD, and ADEM
|
Nov 30, 2015 |
|
311. Educational Support Services: Understanding IEPs and 504 Plans for Students Diagnosed with TM (including AFM), ADEM, and NMOSD
|
Oct 20, 2015 |
|
310. CAPTURE - Town Hall Meeting
|
Sep 02, 2015 |
|
309. Developing a Cardio and Strength Training Program at Home after a Non-Traumatic Spinal Cord Injury
|
Aug 24, 2015 |
|
308. Living with Myelitis (TM/AFM, NMO, ON, ADEM): Navigating Life, School, College, Work and Beyond
|
Jul 13, 2015 |
|
307. Living with a diagnosis of TM including AFM, NMO, or ADEM as an adolescent and young adult
|
Jun 15, 2015 |
|
306. NMO Studies and Clinical Trials: What Should I Know?
|
May 13, 2015 |
|
305. Depresión y Disfunción Cognitiva después de un Diagnóstico de Mielitis Transversa, Neuromielitis Óptica y Encefalomielitis Aguda Diseminada
|
Apr 17, 2015 |
|
304. Understanding Depression and Cognitive Dysfunction After A Diagnosis of TM, NMO, and ADEM
|
Apr 13, 2015 |
|
303. Understanding Neuromyelitis Optica and Neuromyelitis Optica Spectrum Disorder: NMO-101
|
Mar 13, 2015 |
|
302. Hablemos de Mielitis Transversa y Neuromielitis Óptica
|
Feb 16, 2015 |
|
301. Understanding Vaccinations and Autoimmune Diseases
|
Jan 22, 2015 |
|
210. Understanding Transverse Myelitis: TM 101
|
Dec 09, 2014 |
|
209. Support for Caregivers: How to cope when a loved one is diagnosed with NMO, ADEM or TM?
|
Nov 13, 2014 |
|
208. Update on Outbreak of Paralysis in US: Acute Flaccid Myelitis
|
Oct 16, 2014 |
|
207. The Role of Pharmaceutical Companies in Drug Development for Rare Neuroimmune Diseases
|
Oct 13, 2014 |
|
206. Alternative Therapies and Lifestyle Management after TM, NMO and ADEM
|
Sep 16, 2014 |
|
205. Understanding Clinical Trials in NMO and TM
|
Aug 18, 2014 |
|
204. Understanding Pediatric NMO, ADEM and TM
|
Jul 18, 2014 |
|
203. The Role of Exercise and Rehabilitation in Non-Traumatic Spinal Cord Injury
|
Jun 16, 2014 |
|
202. Understanding & Managing Neuropathic Pain
|
May 10, 2014 |
|
201. Understanding Autoimmunity & Rare Neuroimmune Disorders
|
Mar 25, 2014 |
|
103. Children with rare neuroimmune disorders: understanding medical, educational and social considerations
|
Dec 17, 2013 |
|
102. Understanding Repair and Recovery After non-traumatic Spinal Cord Injury
|
Sep 17, 2013 |
|
101. Ask the Expert Podcast in Collaboration with RGI
|
Feb 08, 2013 |