Stronger Every Day
By Bo Bigelow
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Category: Kids & Family
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Subscribers: 3
Reviews: 0
Episodes: 100
Description
I quit my law job to be at home with my kids. Turns out our daughter Tess has a rare genetic disorder called Hao-Fountain Syndrome, or USP7. She's different. And now, so is everything else. #USP7 #HaoFountainSyndrome #autism
| Episode | Date |
|---|---|
|
SED 593: I Like That
|
May 27, 2026 |
|
SED 592: Dad Camp
|
May 20, 2026 |
|
SED 591: What Happens When the Pastry Department Never Opens
|
May 13, 2026 |
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SED 590: A Hitch in Her Step
|
May 06, 2026 |
|
SED 589: IEP Meeting - All About the Coffee part 2
|
Apr 29, 2026 |
|
SED 588: Beach Plus Pica
|
Apr 22, 2026 |
|
SED 587: You Answered - A Project Centauri Update
|
Apr 15, 2026 |
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SED 586: A Critical Mistake
|
Apr 08, 2026 |
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SED 585: How We're Using AI to Help Cure our Rare Disease
|
Apr 01, 2026 |
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SED 584: Tuning In
|
Mar 25, 2026 |
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SED 583: Project Centauri
|
Mar 18, 2026 |
|
SED 582: Tess Skips Breakfast
|
Mar 11, 2026 |
|
SED 581: IEP Meeting - All About the Coffee part 1
|
Mar 04, 2026 |
|
SED 580: Mystery Tess
|
Feb 25, 2026 |
|
SED 579: Get On Matrix Already
|
Feb 18, 2026 |
|
SED 578: Get Well Soon
|
Feb 11, 2026 |
|
SED 577: Many Moons
|
Feb 04, 2026 |
|
SED 576: A New Record
|
Jan 28, 2026 |
|
SED 575: Shark Fins
|
Jan 21, 2026 |
|
SED 574: The Woods
|
Jan 14, 2026 |
|
SED 573: Into the Woods
|
Jan 07, 2026 |
|
SED 572: Holiday Break
|
Dec 31, 2025 |
|
SED 571: Waiting
|
Dec 24, 2025 |
|
SED 570: Still Ill
|
Dec 17, 2025 |
|
SED 569: The Cup Is Already Broken
|
Dec 10, 2025 |
|
SED 568: Never Get a Car from GM and Other True Stories
|
Dec 03, 2025 |
|
SED 567: Thankful for Empatica and the Epimonitor
|
Nov 26, 2025 |
|
SED 566: Riding the Waves of Life
|
Nov 19, 2025 |
|
SED 565: Backseat Driver
|
Nov 12, 2025 |
|
SED 564: Sixteen
|
Nov 05, 2025 |
|
SED 563: Tess the Freshman
|
Oct 29, 2025 |
|
SED 562: The Big Four
|
Oct 22, 2025 |
|
SED 561: We Interrupt this Party to Bring You A Special Bulletin
|
Oct 15, 2025 |
|
SED 560: Up the Hearts
|
Oct 08, 2025 |
|
SED 559: Nashville Part 2 of 2
|
Oct 01, 2025 |
|
SED 558: Nashville Part 1 of 2
|
Sep 24, 2025 |
|
SED 557: Social Eyes
|
Sep 17, 2025 |
|
SED 556: Tess in the ER and ICU - Part 2 of 2
|
Sep 10, 2025 |
|
SED 555: Tess in the ER and ICU
|
Sep 03, 2025 |
|
SED 554: Coffee Break
|
Aug 27, 2025 |
|
SED 553: Find a Way to Entertain Yourself
|
Aug 20, 2025 |
|
SED 552: Where to Go
|
Aug 13, 2025 |
|
SED 551: The Tess Schedule
|
Aug 06, 2025 |
|
SED 550: Radar
|
Jul 30, 2025 |
|
SED 549: What's Working So Far This Summer
|
Jul 23, 2025 |
|
SED 548: Helping Tess with MRELD
|
Jul 16, 2025 |
|
SED 547: Tess Tunes In
|
Jul 09, 2025 |
|
SED 546: Melatonin, or Travels Around Iceland
|
Jul 02, 2025 |
|
SED 545: Sensory Issues Deep Dive - Part 2 of 2
|
Jun 25, 2025 |
|
SED 544: Sensory Issues Deep Dive - Part 1 of 2
|
Jun 18, 2025 |
|
SED 543: Sensory Issues and Things that Go Bump in the Night
|
Jun 11, 2025 |
|
SED 542: What Tess Carries with Her
|
Jun 04, 2025 |
|
SED 541: I Will Not Behave and I Will Not Be Nice
|
May 28, 2025 |
|
SED 540: A New Kind of IEP
|
May 21, 2025 |
|
SED 539: Growth in Slo-Mo
|
May 14, 2025 |
|
SED 538: Spring and a New Presence
|
May 07, 2025 |
|
SED 537: How It Actually Went Down in Montreal
|
Apr 30, 2025 |
|
SED 536: Tess in Montreal
|
Apr 23, 2025 |
|
SED 535: Tess Gets Sent Home Sick
|
Apr 16, 2025 |
|
SED 534: Tooth or Consequences
|
Apr 09, 2025 |
|
SED 533: Zero Turnovers
|
Apr 02, 2025 |
|
SED 532: More Talking Without Words
|
Mar 26, 2025 |
|
SED 531: This Will Be Our Year
|
Mar 19, 2025 |
|
SED 530: Dunk You Very Much
|
Mar 12, 2025 |
|
SED 529: Talking Without Words
|
Mar 05, 2025 |
|
SED 528: Pizza Vacuum
|
Feb 26, 2025 |
|
SED 527: Why I'm Changing the Show Back
|
Feb 19, 2025 |
|
Stronger Every Season: A Caregiver’s Mindset Shift
|
Feb 12, 2025 |
|
Max Flex: The Rare-Disease Parent’s Superpower for Navigating Uncertainty
|
Feb 05, 2025 |
|
Stepping Forward: How Shoes and Therapy Transformed Tess’s Confidence
|
Jan 29, 2025 |
|
Creative Workarounds for Extraordinary Challenges: Life with Tess
|
Jan 22, 2025 |
|
Seeing the Unseen: Navigating CVI and the Power of Being Heard - Part 2 of 2
|
Jan 15, 2025 |
|
Seeing the Unseen: Navigating CVI and the Power of Being Heard - Part 1 of 2
|
Jan 08, 2025 |
|
The Power of Accepting Help: A Farewell to Shawdiya
|
Jan 01, 2025 |
|
Unlocked: Tess’s Midnight Adventure and the Lessons It Taught Us
|
Dec 25, 2024 |
|
Turning the Tables: How to Face Evaluations and Advocate for Your Child
|
Dec 18, 2024 |
|
Burnout Busters: How Caregivers Can Find Energy and Connection Outside the Home
|
Dec 11, 2024 |
|
Filling Your Bucket: Stress-Free Holidays for Rare Disease Families
|
Dec 04, 2024 |
|
Uncharted Territory: ADHD, Rare Disease, and the Struggles with Medication
|
Nov 27, 2024 |
|
Cha Cha Moments: Navigating Anxiety, Impulsivity, and Focus Challenges in Rare Disease Parenting
|
Nov 20, 2024 |
|
Breaking Through Isolation: Finding Connection as a Rare Disease Parent
|
Nov 13, 2024 |
|
Refuel to Be Stronger: Quick Self-Care Hacks for Busy Rare Disease Parents
|
Nov 06, 2024 |
|
Building Your Child's Dream Team: Navigating Therapies for Rare Diseases
|
Oct 30, 2024 |
|
Stronger Together: Aligning with Your Partner on the Rare Disease Journey
|
Oct 23, 2024 |
|
Tech Solutions for Easier Communication: Helping Your Neurodiverse Child Express and Self-Soothe
|
Oct 16, 2024 |
|
Traveling with Autism: 14 Essential Hacks for a Smoother Journey - Part 2 of 2
|
Oct 09, 2024 |
|
Traveling with Autism: 14 Essential Hacks for a Smoother Journey - Part 1 of 2
|
Oct 02, 2024 |
|
Unlocking Tess’s Potential: How a Simple Diet Change Transformed Her Health - Part 2 of 2
|
Sep 25, 2024 |
|
Unlocking Tess’s Potential: How a Simple Diet Change Transformed Her Health - Part 1 of 2
|
Sep 18, 2024 |
|
From Stares to Support: Navigating Public Reactions and Guiding Loved Ones in Caring for Your Child
|
Sep 11, 2024 |
|
Eight Tools to Get Organized and Run Your Household Better
|
Sep 04, 2024 |
|
Empowering the Neurotypical Sibling
|
Aug 28, 2024 |
|
Tess Goes to Camp
|
Aug 21, 2024 |
|
Medical Visits: Essential Moves for Rare-Disease Parents to Get Your Kid Feeling Better Without Depleting Yourself -- Part 2 of 2
|
Aug 17, 2024 |
|
Medical Visits: Essential Moves for Rare-Disease Parents to Get Your Kid Feeling Better Without Depleting Yourself
|
Aug 07, 2024 |
|
How to Get an Autism Spectrum Diagnosis and Why It Matters More Than Ever
|
Jul 31, 2024 |
|
Health Insurance: 7 Tips to Beat the Insurance Company and Get Your Family's Bills Covered
|
Jul 24, 2024 |
|
Special Education: 25 Power Moves to Make Your Child Seen and Known at School - Part 2 of 2
|
Jul 17, 2024 |
|
Special Education: 25 Power Moves to Make Your Child Seen and Known at School - Part 1 of 2
|
Jul 10, 2024 |
|
#494: Surfer Girl
|
Jul 03, 2024 |