Stronger Every Day
By Bo Bigelow
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Category: Kids & Family
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Subscribers: 3
Reviews: 0
Episodes: 100
Description
I quit my law job to be at home with my kids. Turns out our daughter Tess has a rare genetic disorder called Hao-Fountain Syndrome, or USP7. She's different. And now, so is everything else. #USP7 #HaoFountainSyndrome #autism
| Episode | Date |
|---|---|
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SED 533: Zero Turnovers
|
Apr 02, 2025 |
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SED 532: More Talking Without Words
|
Mar 26, 2025 |
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SED 531: This Will Be Our Year
|
Mar 19, 2025 |
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SED 530: Dunk You Very Much
|
Mar 12, 2025 |
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SED 529: Talking Without Words
|
Mar 05, 2025 |
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SED 528: Pizza Vacuum
|
Feb 26, 2025 |
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SED 527: Why I'm Changing the Show Back
|
Feb 19, 2025 |
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Stronger Every Season: A Caregiver’s Mindset Shift
|
Feb 12, 2025 |
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Max Flex: The Rare-Disease Parent’s Superpower for Navigating Uncertainty
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Feb 05, 2025 |
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Stepping Forward: How Shoes and Therapy Transformed Tess’s Confidence
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Jan 29, 2025 |
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Creative Workarounds for Extraordinary Challenges: Life with Tess
|
Jan 22, 2025 |
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Seeing the Unseen: Navigating CVI and the Power of Being Heard - Part 2 of 2
|
Jan 15, 2025 |
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Seeing the Unseen: Navigating CVI and the Power of Being Heard - Part 1 of 2
|
Jan 08, 2025 |
|
The Power of Accepting Help: A Farewell to Shawdiya
|
Jan 01, 2025 |
|
Unlocked: Tess’s Midnight Adventure and the Lessons It Taught Us
|
Dec 25, 2024 |
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Turning the Tables: How to Face Evaluations and Advocate for Your Child
|
Dec 18, 2024 |
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Burnout Busters: How Caregivers Can Find Energy and Connection Outside the Home
|
Dec 11, 2024 |
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Filling Your Bucket: Stress-Free Holidays for Rare Disease Families
|
Dec 04, 2024 |
|
Uncharted Territory: ADHD, Rare Disease, and the Struggles with Medication
|
Nov 27, 2024 |
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Cha Cha Moments: Navigating Anxiety, Impulsivity, and Focus Challenges in Rare Disease Parenting
|
Nov 20, 2024 |
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Breaking Through Isolation: Finding Connection as a Rare Disease Parent
|
Nov 13, 2024 |
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Refuel to Be Stronger: Quick Self-Care Hacks for Busy Rare Disease Parents
|
Nov 06, 2024 |
|
Building Your Child's Dream Team: Navigating Therapies for Rare Diseases
|
Oct 30, 2024 |
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Stronger Together: Aligning with Your Partner on the Rare Disease Journey
|
Oct 23, 2024 |
|
Tech Solutions for Easier Communication: Helping Your Neurodiverse Child Express and Self-Soothe
|
Oct 16, 2024 |
|
Traveling with Autism: 14 Essential Hacks for a Smoother Journey - Part 2 of 2
|
Oct 09, 2024 |
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Traveling with Autism: 14 Essential Hacks for a Smoother Journey - Part 1 of 2
|
Oct 02, 2024 |
|
Unlocking Tess’s Potential: How a Simple Diet Change Transformed Her Health - Part 2 of 2
|
Sep 25, 2024 |
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Unlocking Tess’s Potential: How a Simple Diet Change Transformed Her Health - Part 1 of 2
|
Sep 18, 2024 |
|
From Stares to Support: Navigating Public Reactions and Guiding Loved Ones in Caring for Your Child
|
Sep 11, 2024 |
|
Eight Tools to Get Organized and Run Your Household Better
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Sep 04, 2024 |
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Empowering the Neurotypical Sibling
|
Aug 28, 2024 |
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Tess Goes to Camp
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Aug 21, 2024 |
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Medical Visits: Essential Moves for Rare-Disease Parents to Get Your Kid Feeling Better Without Depleting Yourself -- Part 2 of 2
|
Aug 17, 2024 |
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Medical Visits: Essential Moves for Rare-Disease Parents to Get Your Kid Feeling Better Without Depleting Yourself
|
Aug 07, 2024 |
|
How to Get an Autism Spectrum Diagnosis and Why It Matters More Than Ever
|
Jul 31, 2024 |
|
Health Insurance: 7 Tips to Beat the Insurance Company and Get Your Family's Bills Covered
|
Jul 24, 2024 |
|
Special Education: 25 Power Moves to Make Your Child Seen and Known at School - Part 2 of 2
|
Jul 17, 2024 |
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Special Education: 25 Power Moves to Make Your Child Seen and Known at School - Part 1 of 2
|
Jul 10, 2024 |
|
#494: Surfer Girl
|
Jul 03, 2024 |
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#493: The Eyes Have It
|
Jun 26, 2024 |
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#492: Community
|
Jun 19, 2024 |
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#491: Three Little Letters
|
Jun 12, 2024 |
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#490: Crunch
|
Jun 05, 2024 |
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#489: Becoming an APS - Two Rare-Disease Tools I Can't Live Without
|
May 29, 2024 |
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#488: The Cloak of Ban D'aid
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May 22, 2024 |
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#487: Nate the Ultra-Fantastic
|
May 15, 2024 |
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#486: Trampopoline
|
May 08, 2024 |
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#485: Costa Rica - Part 2
|
May 01, 2024 |
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#484: Costa Rica - Part 1
|
Apr 24, 2024 |
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#483: I Can Do It, I Know How
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Apr 17, 2024 |
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#482: Eclipse
|
Apr 10, 2024 |
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#481: A Massive Piece of the Quest for a Cure
|
Apr 03, 2024 |
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#480: Thirteen Gallons of Milk
|
Mar 27, 2024 |
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#479: Banquet
|
Mar 20, 2024 |
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#478: Sunday Bloody Sunday
|
Mar 13, 2024 |
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#477: ET and Elliott
|
Mar 06, 2024 |
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#476: Breathe
|
Feb 28, 2024 |
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#475: Awaken
|
Feb 21, 2024 |
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#474: Fifty
|
Feb 14, 2024 |
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#473: The Trails Are Yours
|
Feb 07, 2024 |
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#472: HOOPS
|
Jan 31, 2024 |
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#471: This Won't Happen Without You
|
Jan 24, 2024 |
|
#470: H-Town
|
Jan 17, 2024 |
|
#469: Texas or Bust
|
Jan 10, 2024 |
|
#468: Get Outta My Room
|
Jan 03, 2024 |
|
#467: We Gotta Stop Meeting Like This - Part 2
|
Dec 27, 2023 |
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#466: We Gotta Stop Meeting Like This - Part 1
|
Dec 20, 2023 |
|
#465: Despondent
|
Dec 13, 2023 |
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#464: Let's Do Everything and Nothing
|
Dec 06, 2023 |
|
#463: Real Genius Meets Midnight Madness
|
Nov 29, 2023 |
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#462: Tess in the ER Once Again
|
Nov 22, 2023 |
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#461: Soothe Yourself
|
Nov 15, 2023 |
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#460: Fourteen
|
Nov 08, 2023 |
|
#459: Lewiston
|
Nov 01, 2023 |
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#458: Conference in Denver Pt 3
|
Oct 25, 2023 |
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#457: Conference in Denver Pt 2
|
Oct 18, 2023 |
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#456: Conference in Denver
|
Oct 11, 2023 |
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#455: Bound for Denver
|
Oct 04, 2023 |
|
#454: Bubbly
|
Sep 27, 2023 |
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#453: Amber Turbo
|
Sep 20, 2023 |
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#452: Anti-Anti-Doping
|
Sep 13, 2023 |
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#451: Ritualize Chronic Compassion
|
Sep 06, 2023 |
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#450: New Beginnings
|
Aug 30, 2023 |
|
#449: I Might As Well
|
Aug 23, 2023 |
|
#448: Floating
|
Aug 16, 2023 |
|
#447: Island Blues
|
Aug 09, 2023 |
|
#446: Traveling While Nonverbal Part 3
|
Aug 02, 2023 |
|
#445: Traveling While Nonverbal Part 2
|
Jul 26, 2023 |
|
#444: Traveling While Nonverbal Part 1
|
Jul 19, 2023 |
|
#443: Hit It
|
Jul 12, 2023 |
|
#442: Decaffeinated
|
Jul 05, 2023 |
|
#441: Tess's Power Plant
|
Jun 28, 2023 |
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#440: A Conversation with the Boy
|
Jun 21, 2023 |
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#439: What's For Dinner
|
Jun 14, 2023 |
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#438: Containing Hyperphagia
|
Jun 07, 2023 |
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#437: Signposts
|
May 31, 2023 |
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#436: The Anti-Bullies
|
May 24, 2023 |
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#435: Only Three More
|
May 17, 2023 |
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#434: Malade
|
May 10, 2023 |